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Radical collaboration during a global health emergency: development of the RDA COVID-19 data sharing recommendations and guidelines.
Pickering, Brian; Biro, Timea; Austin, Claire C; Bernier, Alexander; Bezuidenhout, Louise; Casorrán, Carlos; Crawley, Francis P; David, Romain; Engelhardt, Claudia; Mitrea, Geta; Mochmann, Ingvill Constanze; Nagrani, Rajini; O'Brien-Uhlmansiek, Mary; Parker, Simon; Wang, Minglu; Castro, Leyla Jael; Cournia, Zoe; Dharmawardena, Kheeran; Diallo, Gayo; Dillo, Ingrid; Gonzalez-Beltran, Alejandra; Gururaj, Anupama; Gutam, Sridhar; Harrower, Natalie; Jonnagaddala, Jitendra; McNeill, Katherine; Mietchen, Daniel; Pienta, Amy; Polydoratou, Panayiota; Tovani-Palone, Marcos Roberto.
Afiliación
  • Pickering B; University of Southampton, Southampton, UK.
  • Biro T; Digital Repository of Ireland / Royal Irish Academy, Dublin, Ireland.
  • Austin CC; Environment and Climate Change Canada, Canada, Canada.
  • Bernier A; Centre of Genomics and Policy / McGill University, Montreal, Canada.
  • Bezuidenhout L; University of Oxford, Oxford, UK.
  • Casorrán C; European Commission, Brussels, Belgium.
  • Crawley FP; Good Clinical Practice Alliance - Europe (GCPA) / Strategic Initiative for Developing Capacity in Ethical Review (SIDCER), Leuven, Belgium.
  • David R; European Research Infrastructure on Highly Pathogenic Agents, Paris, France.
  • Engelhardt C; Göttingen State and University Library, Göttingen, Germany.
  • Mitrea G; Carol I National Defence University, Bucharest, Romania.
  • Mochmann IC; GESIS-Leibniz Institute for the Social Sciences, Cologne, Germany.
  • Nagrani R; Leibniz Institute for Prevention Research and Epidemiology (BIPS), Bremen, Germany.
  • O'Brien-Uhlmansiek M; Research Data Alliance, St. Louis, USA.
  • Parker S; The German Cancer Research Center (Deutsches Krebsforschungszentrum, DKFZ), Heidelberg, Germany.
  • Wang M; York University, Toronto, Canada.
  • Castro LJ; ZB MED Information Centre for Life Sciences, Köln,, Germany.
  • Cournia Z; Biomedical Research Foundation, Academy of Athens, Athens, Greece.
  • Dharmawardena K; Cytrax consulting, Canberra, Australia.
  • Diallo G; Université Bordeaux, Bordeaux, France.
  • Dillo I; Data Archiving and Networked Services (DANS), The Hague, The Netherlands.
  • Gonzalez-Beltran A; Science and Technology Facilities Council, UK Research & Innovation, Oxford, UK.
  • Gururaj A; National Institute of Allergy and Infectious Disease, National Institutes of Health, Fairfax, USA.
  • Gutam S; ICAR-Indian Institute of Horticultural Research, Bengaluru, India.
  • Harrower N; Digital Repository of Ireland / Royal Irish Academy, Dublin, Ireland.
  • Jonnagaddala J; University of New South Wales / School of Population Health, Kensington, Australia.
  • McNeill K; Harvard University, Cambridge, USA.
  • Mietchen D; School of Data Science, University of Virginia, Charlottesville, USA.
  • Pienta A; ICPSR-University of Michigan, Ann Arbor, USA.
  • Polydoratou P; International Hellenic University, Marseille, France.
  • Tovani-Palone MR; University of São Paulo, São Paulo, Brazil.
Open Res Eur ; 1: 69, 2021.
Article en En | MEDLINE | ID: mdl-37645170
ABSTRACT

Background:

The coronavirus disease 2019 (COVID-19) global pandemic required a rapid and effective response. This included ethical and legally appropriate sharing of data. The European Commission (EC) called upon the Research Data Alliance (RDA) to recruit experts worldwide to quickly develop recommendations and guidelines for COVID-related data sharing.

Purpose:

The purpose of the present work was to explore how the RDA succeeded in engaging the participation of its community of scientists in a rapid response to the EC request.

Methods:

A survey questionnaire was developed and distributed among RDA COVID-19 work group members. A mixed-methods approach was used for analysis of the survey data.

Results:

The three constructs of radical collaboration (inclusiveness, distributed digital practices, productive and sustainable collaboration) were found to be well supported in both the quantitative and qualitative analyses of the survey data. Other social factors, such as motivation and group identity were also found to be important to the success of this extreme collaborative effort.

Conclusions:

Recommendations and suggestions for future work were formulated for consideration by the RDA to strengthen effective expert collaboration and interdisciplinary efforts.
Palabras clave

Texto completo: 1 Bases de datos: MEDLINE Tipo de estudio: Guideline / Qualitative_research Idioma: En Revista: Open Res Eur Año: 2021 Tipo del documento: Article País de afiliación: Reino Unido

Texto completo: 1 Bases de datos: MEDLINE Tipo de estudio: Guideline / Qualitative_research Idioma: En Revista: Open Res Eur Año: 2021 Tipo del documento: Article País de afiliación: Reino Unido