My Digital Refuge.
JAMA
; 331(20): 1707-1708, 2024 05 28.
Article
en En
| MEDLINE
| ID: mdl-38696211
In this narrative medicine essay, a medical ethicist discusses the complexity of juggling the interests of members in online forums dedicated to rare diseases after being blocked upon disclosing her affiliation with a medical school, thus barring her from the support and information she needed to manage her daughter's rare disease.
Texto completo:
1
Bases de datos:
MEDLINE
Asunto principal:
Apoyo Social
/
Enfermedades Raras
/
Información de Salud al Consumidor
/
Enfermedades Genéticas Congénitas
Límite:
Humans
Idioma:
En
Revista:
JAMA
Año:
2024
Tipo del documento:
Article