Detalhe da pesquisa
1.
Cognitive testing of the Children's Palliative Outcome Scale (C-POS) with children, young people and their parents/carers.
Palliat Med
; : 2692163241248735, 2024 May 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-38708863
2.
'My life is a mess but I cope': An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition.
Palliat Med
; 38(3): 379-388, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-38439152
3.
What are the anticipated benefits, risks, barriers and facilitators to implementing person-centred outcome measures into routine care for children and young people with life-limiting and life-threatening conditions? A qualitative interview study with key stakeholders.
Palliat Med
; 38(4): 471-484, 2024 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-38481003
4.
Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study.
Palliat Med
; 37(6): 856-865, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36978266
5.
Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's research involvement group and expert item generation.
Palliat Med
; 37(10): 1509-1519, 2023 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-37853579
6.
The NeoPACE study: study protocol for the development of a core outcome set for neonatal palliative care.
BMC Palliat Care
; 22(1): 203, 2023 Dec 19.
Artigo
em Inglês
| MEDLINE | ID: mdl-38114987
7.
British Congenital Cardiac Association Fetal Cardiology Standards: impact of Patient and Public involvement exercise on the development of clinical standards.
Cardiol Young
; : 1-5, 2023 Dec 22.
Artigo
em Inglês
| MEDLINE | ID: mdl-38131145
8.
Palliative care for children and young people with stage 5 chronic kidney disease.
Pediatr Nephrol
; 37(1): 105-112, 2022 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-33988731
9.
Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview study.
Eur J Pediatr
; 181(10): 3739-3752, 2022 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-35953678
10.
Attending to child agency in paediatric palliative care consultations: Adults' use of tag questions directed to the child.
Sociol Health Illn
; 44(3): 566-585, 2022 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-35089602
11.
Parents' responses to prognostic disclosure at diagnosis of a child with a high-risk brain tumor: Analysis of clinician-parent interactions and implications for clinical practice.
Pediatr Blood Cancer
; 68(3): e28802, 2021 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-33226200
12.
Home or hospital as the place of end-of-life care and death: A grounded theory study of parents' decision-making.
Palliat Med
; 35(1): 219-230, 2021 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-33307990
13.
Longitudinal investigation of prognostic communication: Feasibility and acceptability of studying serial disease reevaluation conversations in children with high-risk cancer.
Cancer
; 126(1): 131-139, 2020 01 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-31532566
14.
Communication with children and adolescents about the diagnosis of their own life-threatening condition.
Lancet
; 393(10176): 1150-1163, 2019 Mar 16.
Artigo
em Inglês
| MEDLINE | ID: mdl-30894271
15.
Insights into the perception that research ethics committees are a barrier to research with seriously ill children: A study of committee minutes and correspondence with researchers studying seriously ill children.
Palliat Med
; 34(3): 413-423, 2020 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-31680629
16.
The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome: A qualitative interview study.
Health Expect
; 23(5): 1224-1230, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32671929
17.
Experiences of children with trisomy 18 referred to pediatric palliative care services on two continents.
Am J Med Genet A
; 179(6): 903-907, 2019 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-30932336
18.
Children's and Parents' Conceptualization of Quality of Life in Children With Brain Tumors: A Meta-Ethnographic Exploration.
Qual Health Res
; 29(1): 55-68, 2019 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-30043679
19.
Studying Children's Experiences in Interactions With Clinicians: Identifying Methods Fit for Purpose.
Qual Health Res
; 29(3): 393-403, 2019 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-30270755
20.
Advancing the science of outcome measurement in paediatric palliative care.
Int J Palliat Nurs
; 25(2): 72-79, 2019 Feb 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-30785818