Effects of home-based specialized palliative care and dyadic psychological intervention on caregiver burden: results from a randomized controlled trial.

Background The Domus study, a randomized controlled trial (RCT), evaluated the effect of home-based specialized palliative care (SPC) reinforced with a psychological intervention for the patient-caregiver dyad on increasing advanced cancer patients' time spent at home, as opposed to hospitalized, and the number of home deaths. As palliative care extends to include support for patients' families and may thus assist caregivers and decrease demands on them, in this study we evaluated a secondary outcome, caregiver burden.Material and Methods Patients with incurable cancer and their caregivers were randomized (1:1) to care as usual or home-based SPC. Caregiver burden was assessed using the Zarit Burden Interview (ZBI) at baseline and 2, 4, 8 weeks and 6 months after randomization. Intervention effects were assessed in mixed effects models.Results A total of 258 caregivers were enrolled. Eleven per cent of informal caregivers experienced severe caregiver burden at baseline. Caregiver burden increased significantly over time in both groups (p = 0.0003), but no significant effect of the intervention was seen on overall caregiver burden (p = 0.5046) or burden subscales measuring role and personal strain.Conclusion In line with the majority of previous RCTs, the Domus intervention was not able to significantly reduce caregiver burden. Future interventions should consider targeting only caregivers reporting the greatest caregiver burden.

Deaf Identity, Social Relationships, and Social Support: Toward a Microsociological Perspective.

This study is the first to analyze data from a national survey to investigate the significance for deaf identity of the different forms of social and technological support that deaf people rely upon. Data were derived from a survey among 839 deaf people and were analyzed with regard to social identification as deaf, hearing, bicultural, and marginal. Findings showed connections between technology and identity, including the use of a range of technology to support being culturally deaf. Findings also showed that the deaf and hearing groups had strong homophilous social networks, while the bicultural group tended toward more mixed but equally strong social connectivity. The marginal group had a much thinner social connectivity and relied more upon institutional social support, findings that are in line with previous research revealing a sub-group struggling with social participation and well-being. Theoretically, the paper builds bridges between the fields of social identity and microsociology and shows how a microsociological perspective brings attention to the significance of reiterated social relations and practice for constructing social identity.

Couple similarity with respect to physical and mental disabilities.

AIMS: Existing research on relationships provides strong evidence of couple similarity on a wide range of variables including physical attributes, abilities, and attitudes. However, couple similarity with respect to disability has not been researched. This study investigated couple similarity with respect to both physical and mental disabilities, as well as associations with life satisfaction, among adult cohabiting couples in Denmark. METHODS: The study analysed data on self-reported mental and physical disabilities from a national survey involving 18,957 participants aged 16 to 65 years. RESULTS: The results showed that participants with a disability were more likely to have a partner with a disability. Further, results showed similarity by type and severity of disability as well as age of onset of disability. Having a partner with a disability was found to be associated with low life satisfaction among men with a disability. Results also showed an association among men with a disability between low life satisfaction and the onset of their disability after (as opposed to before) the start of their relationship. These associations were not found among women with a disability. CONCLUSIONS: The findings provide clear evidence for couple similarity with respect to disability. Findings on life satisfaction showed gender differences that might be explained by cultural gender norms that may play a particular role with respect to disability. Longitudinal research is required to research the factors that mediate how having or developing a disability affects relationships and wellbeing over time.

The Moderating Influence of School Achievement on Intelligence in Young Adulthood.

Education has been suggested to be possibly the most consistent, robust, and durable method available for raising intelligence, but little is known about the genetic and environmental interplay underlying this association. Therefore, we investigated how school achievement, as measured by grade point average in lower secondary school at 15 years of age, moderated intelligence variation in young adulthood. The sample consisted of all Danish male twin pairs who had left lower secondary school since 2002 and appeared, typically at age 18, before a draft board through 2015 (N = 2660). Shared environmental variance unique to intelligence (10% of total variance) was found to be greater among individuals with poor school achievement. However, school achievement did not moderate the genetic influences or the non-shared environmental influences on intelligence. We discuss the implications of this in light of the constraints imposed by the statistical models we used.

A Review of the Conversational Pragmatic Skills of Children With Cochlear Implants.

Many children who use cochlear implants (CI) have strong skills in many aspects of spoken language; however, limited information is available about their mastery of the pragmatic skills required to participate in conversation. This study reviewed published literature describing the pragmatic skills of children who use CIs in conversational contexts. Twenty-five studies met the inclusion criteria, and data were extracted describing participant characteristics, methodology, data type, outcomes, and factors associated with outcomes. Pragmatic skills were described in three broad categories: speech acts, turns, and breakdowns and repairs. Participants showed heterogeneity in age, age at implantation, duration of implant use, and languages used. Studies employed a variety of methodologies, used a range of different sample types and coding strategies, and considered different factors associated that might be associated with children's pragmatic skills. Across studies, children with CIs were reported to have a range of pragmatic skills in conversational contexts, from few to severe difficulties. The body of literature on this topic is small and considered heterogeneous children with CIs with a wide range of skills. Further research is needed to understand the pragmatics language skills of children with CIs and the factors influencing the diversity in skills observed.

Changes in personality traits among candidates for special operations forces.

This study examines the personality traits of 32 male candidates (Age: M = 27.2, SD = 4.2) who completed an eight-month intensive training program to become operators in the Danish Naval Special Warfare Group (also known as Frogmen). The Frogmen candidates completed the Big Five Inventory (BFI) the day before the start of (T1) and at the end (T2) of the training program. For comparison, first year students from the Danish Technical University 2013 (N = 192) completed the BFI at enrollment of study (T1) and one year later (T2). The results showed that Frogman candidates at T1 had significantly higher levels of Conscientiousness and Agreeableness than the university students. Relative to the university students, the Frogmen showed higher scores in Extraversion and lower scores in Neuroticism at T2 compared to T1.

An explorative study of the individual differences associated with consumer stockpiling during the early stages of the 2020 Coronavirus outbreak in Europe.

There is little existing research on why some people stockpile goods and others do not at a time of crisis. More research on this phenomenon and the individual differences associated with it is needed in order to gain a better understanding of what is a potentially economically and socially disruptive behavior. In this study, 175 adult participants from Denmark and 90 from the United Kingdom responded to a survey about the activity of extra shopping (stockpiling) during the first weeks of the Coronavirus outbreak. Questions exploring the "big five" personality traits, Social Dominance Orientation, Health Literacy, and attitudes to the governmental response to the crisis were included in the survey. The explorative analysis showed that stockpiling was associated with high scores on Extraversion and Neuroticism, and low scores on Conscientiousness and Openness to Experience. Stockpiling was also associated with the view that the government should be doing more to stop the Coronavirus epidemic. An explorative factor analysis of reasons for stockpiling identified the two factors "Panic" and "Action".

Vicarious traumatisation in lawyers working with traumatised asylum seekers: a pilot study.

Although vicarious traumatisation has been documented in numerous professional groups, the research on asylum lawyers is sparse. This pilot study aimed to explore whether asylum lawyers are affected by their work with traumatised clients. Seventy asylum lawyers completed a pilot survey consisting of the Trauma and Attachment Belief Scale; Impact of Event Scale-Revised; Depression, Anxiety and Stress Scales; and a work-characteristics questionnaire. The results included significant association between higher contacts with trauma-exposed clients and anxiety; higher weekly work hours and fewer years of experience in asylum law with more stress; fewer years of experience with general trauma scores and intrusion symptoms; and more clients per week with cognitive changes regarding trust in others. The findings highlight the potentially detrimental impact on asylum lawyers of working with traumatised clients and the need for further investigation.

Work and Employment Characteristics of Deaf and Hard-of-Hearing Adults.

Studies have reported a higher level of unemployment among deaf and hard-of-hearing (DHH) adults compared to adults without hearing loss. However, little is known about factors explaining success in the labor market. This study presents the analysis of two data sets. The first was drawn from a survey of 804 DHH adults in Denmark. The second was a survey completed by 190 DHH adults with post-secondary qualification in the United States. In the Danish sample, among the spoken language users, higher ages, higher level of educational attainment, and no additional disabilities were associated with having a job. Among the sign language users, higher ages, higher level of educational attainment, earlier ages at hearing loss diagnosis, and not using cochlear implants were associated with having a job. In the US sample, male gender and better sign language skills were associated with having a job.

A national survey on violence and discrimination among people with disabilities.

BACKGROUND: The aim of the study was to quantify levels of violence and discrimination among people with disabilities and analyze the effects of gender and the type and degree of disability. METHODS: The study analyzed data on self-reported violence and discrimination from a Danish national survey of 18,019 citizens, of whom 4519 reported a physical disability and 1398 reported a mental disability. RESULTS: Individuals with disabilities reported significantly higher levels of violence than those without. Specifically, individuals reporting a mental disability reported higher levels of violence and discrimination. Significant gender differences were found with regard to type of violence: while men with disabilities were more likely to report physical violence, women with disabilities were more likely to report major sexual violence, humiliation and discrimination. Neither severity nor visibility of disability was found to be a significant factor for risk of violence. CONCLUSIONS: This large-scale study lends support to existing research showing that people with disabilities are at greater risk of violence than people without disabilities. Further, the study found that people with mental disabilities were significantly more likely to report all types of violence and discrimination than those with physical disabilities. The findings also show that gender is significant in explaining the type of violence experienced and the experience of discrimination.