A survey of patients' use of the internet for chronic pain-related information.

OBJECTIVE: To investigate the use of the Internet as a pain information seeking tool among a population of patients attending a chronic pain clinic. METHODS: A bespoke self-completing questionnaire was given to 150 patients attending 17 consecutive chronic pain clinics at The Royal Perth Hospital during August and September 2007. RESULTS: One hundred twenty-two completed surveys were received, a response rate of 81%. Only 23.8% of the patients had used the Internet to access pain-related health care information. There was no gender difference between those who did and did not access the Internet for information. Age group, highest educational level attained, and the availability of Internet access were all significantly associated with the use of the Internet to search for pain-related information. 41.4% described the information they found as useful, 6.9% found it frightening and 10.3% found it confusing. Forty-four percent wanted more information to be available on the Internet while only 6.9% planned to discuss their findings with their doctor. CONCLUSIONS: When compared with other studies about patient information-seeking behavior, a smaller than expected percentage of patients attending chronic pain clinics in Perth used the Internet to search for information about pain. There are a variety of reasons for this that would suggest that health care professionals should not be complacent but seek to maximize the potential of the Internet to inform our patients by advising them how and where to look for relevant information.

The quality of internet-sourced information for patients with chronic pain is poor.

BACKGROUND: The Internet is an increasingly popular information resource for patients. Patients with chronic pain are a subsection of the community who are likely to seek information about their condition, but previously little was known about the quality of information they may encounter during an Internet search. AIMS: The aims of this study were to develop and validate a scoring system for assessing chronic pain websites and then use this to determine the quality of chronic pain information on the Internet, which a patient employing typical "surfer" behavior might encounter. METHODS: A scoring system for assessing chronic pain websites was designed and validated. It comprised quality (design features) and technical (information) accuracy scores. Validity was assessed by intraclass correlation coefficients. The search term "chronic pain" was used on 5 popular search engines to identify websites. Only the first 10 sites retrieved were scored. RESULTS: There were 23 websites duplicated across the search engines, leaving a total of 27 websites to be scored. The majority of websites were rated as either poor or fair across the 2 individual scores and the grand score. Two websites had a grand score classified as either very good or excellent. CONCLUSIONS: Although we cannot determine whether patients accurately interpret the quality of websites, our study confirms that good quality information about chronic pain is unlikely to be retrieved by our patients on the Internet.