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1.
Psychooncology ; 32(9): 1452-1460, 2023 09.
Artigo em Inglês | MEDLINE | ID: mdl-37559470

RESUMO

AIMS: We aimed to test a model in which hope and spiritual well-being acted as protective factors against anxiety and depressive symptoms in childhood cancer patients (CCPs). We hypothesized that hope and spiritual well-being were mutually reinforcing factors that would both reduce anxiety and depressive symptoms. METHODS: Using path analysis, the hypothetical model was tested on a cross-sectional sample of 412 Chinese CCPs aged 8-17 years. Self-reported measures were used to obtain data on participants' social and clinical characteristics, spiritual well-being, hope, anxiety and depressive symptoms. RESULTS: The hypothetical model was supported. Results suggested that sex, treatment type and diagnosis predicted spiritual well-being; diagnosis and time since diagnosis predicted hope. Spiritual well-being and hope were mutually predictive and mutually reinforcing, and were both negatively associated with anxiety and depressive symptoms. This model predicted 40% of the variance in spiritual well-being, 37% in hope, 39% in depressive symptoms, and 28% in anxiety. CONCLUSION: Spiritual well-being and hope were mutually reinforcing and served as protective factors against anxiety and depressive symptoms. These support the value for integrating spiritual and hope elements in developing interventions for CCPs to improve their spiritual and psychological well-being along the disease trajectory.


Assuntos
Esperança , Neoplasias , Bem-Estar Psicológico , Criança , Humanos , Ansiedade/psicologia , Estudos Transversais , Depressão/psicologia , População do Leste Asiático , Neoplasias/terapia , Neoplasias/psicologia , Espiritualidade , Adolescente
2.
J Pediatr Nurs ; 72: e193-e200, 2023.
Artigo em Inglês | MEDLINE | ID: mdl-37385939

RESUMO

PURPOSE: First-time parents have an increased risk of depression during the transition to parenthood, which has long-term adverse effect on the infant development. Interpersonal psychotherapy (IPT) has been shown to effectively reduce postnatal depression. The objectives of this study were to explore first-time parents' perceptions of a couple-based IPT program and to identify positive and negative influences on the effectiveness of the intervention through a process evaluation. DESIGN AND METHODS: A process evaluation was conducted as part of a randomized controlled trial of a couple-based IPT program. A program satisfaction questionnaire was used to assess the participants' satisfaction with the structure, process and outcome of the program. Semi-structured telephone interviews were conducted with a purposive sample of 44 first-time parents who had received the couple-based IPT. The interview data were analyzed by thematic analysis. RESULTS: The qualitative findings showed that the parents perceived couple-based IPT as useful for enhancing their interpersonal relationship, emotional control and competence in child care. The successful implementation of the couple-based IPT program was influenced by its delivery by midwives, the interactive lessons used to engage the participants, the close fit of the teaching contents to the needs of first-time parents and the flexible program schedule and delivery mode. CONCLUSIONS: The process evaluation indicates that couple-based IPT is an acceptable and feasible intervention for first-time parents to facilitate a healthy transition to parenthood. PRACTICE IMPLICATIONS: The couple-based IPT can be used as an adjunct to standard care to promote perinatal health.


Assuntos
Psicoterapia Interpessoal , Pais , Feminino , Humanos , Depressão Pós-Parto , Relações Interpessoais , Psicoterapia , Masculino
3.
Matern Child Health J ; 25(12): 1884-1892, 2021 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-34626288

RESUMO

OBJECTIVES: Transition to parenthood is characterized by a high level of stress, which can affect couples' relationship and quality of life. Limited research compares the relationships and trends in stress, marital relationship and quality of life between both couples across the perinatal period. This study examined the associations, changes over time and gender differences in the stress, marital relationship and quality of life of Chinese couples during the perinatal period. METHODS: A convenience sample of 130 couples participated in this longitudinal study. Data on the assessment of stress, marital relationship and quality of life were collected by validated measures during the second or third trimester of pregnancy and at 6 weeks, 6 months and 12 months postpartum. RESULTS: Both couples experienced an increased level of stress at 6 weeks postpartum and a gradual decline in marital relationship from pregnancy to 1 year postpartum. The mental component of women's quality of life declined sharply at 6 weeks postpartum and recovered at 6 months postpartum. The physical component of quality of life showed gradual improvements from pregnancy to 1 year postpartum for the women, but a decline for the men. The women showed more stress and poorer marital relationship and quality of life than their partners, and the women's levels of stress, marital relationship and mental component of quality of life were closely related to those of their partners' across the perinatal period. Stress was related negatively to marital relationship and quality of life, and a positive marital relationship was associated with better quality of life during the perinatal period. CONCLUSION: The study highlights the need to adopt couple-based approaches in clinical practice directed at helping partners develop realistic expectations and manage stress, which are essential to promoting marital relationships and quality of life during the transition to parenthood.


Assuntos
Casamento , Qualidade de Vida , Feminino , Humanos , Estudos Longitudinais , Masculino , Parto , Período Pós-Parto , Gravidez
4.
J Clin Nurs ; 30(21-22): 3259-3267, 2021 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-33963632

RESUMO

AIMS AND OBJECTIVES: To explore perceptions of family sense of coherence among infertile couples and to provide a theoretical interpretation of the comprehensibility, manageability and meaningfulness of couples' experiences coping with infertility. BACKGROUND: Infertility is a devastating experience for many couples and can have long-lasting psychosocial consequences. Family sense of coherence has the potential to facilitate a couple's adjustment to the life crisis of infertility and may provide a useful conceptual lens to understand experiences of infertility. METHODS: Sixty-four couples with infertility participated in semi-structured interviews at subfertility clinics. Data were analysed using the constant comparative approach of grounded theory. COREQ guidelines were followed in reporting the study. RESULTS: Three major themes related to infertility emerged from the interviews: comprehensibility, manageability and meaningfulness. The couples experienced psychological strain while making cognitive sense of infertility. The significance of children, which is embedded in traditional Chinese culture, created a sense of meaning and purpose in couples' lives and motivated them to mobilise both internal and external resources to cope with the demands of infertility and its treatment. CONCLUSIONS: The findings indicate that the salutogenic model of family sense of coherence can contribute to our understanding of the experiences of infertility among Chinese couples. RELEVANCE TO CLINICAL PRACTICE: The results offer a theoretical framework that healthcare professionals can use to help couples cope with the life crisis of infertility by strengthening their sense of family coherence.


Assuntos
Infertilidade , Senso de Coerência , Adaptação Psicológica , Criança , China , Humanos , Percepção
5.
Nurs Health Sci ; 22(3): 723-731, 2020 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-32255554

RESUMO

The father's involvement in childrearing can positively influence health outcomes not only for the man himself but also for his partner and their children. However, the experience of first-time fatherhood is limited in Chinese communities. The aim of this study is to explore men's experience of first-time fatherhood and coping in Hong Kong. An exploratory qualitative design was used. A purposive sample of 44 first-time Chinese fathers who had participated in a couple-based cognitive-behavioral intervention for postnatal depression were recruited for telephone interviews at 1-3 months postpartum. Data were collected by a semistructured interview guide and analyzed using thematic analysis. The process involved in men's transition to first-time fatherhood reveals four major themes: changes in daily life, new paternal roles and responsibilities, availability of resources to enhance adaptation, and coping strategies. The findings have implications for health care professionals and policy-makers in the provision of comprehensive perinatal care and family-friendly policies to aid men's transition to first-time fatherhood in Chinese communities.


Assuntos
Adaptação Psicológica , Pai/psicologia , Comportamentos Relacionados com a Saúde/etnologia , Comportamento Paterno/psicologia , Adulto , Pai/estatística & dados numéricos , Hong Kong/etnologia , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa
6.
BMC Nurs ; 15(1): 51, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27587982

RESUMO

BACKGROUND: In Hong Kong, the population is at risk of seasonal influenza infection twice a year. Seasonal influenza is significantly associated with the increased hospitalization of children. Maintaining personal hygiene and vaccination are the most effective measures to prevent influenza infection. Research demonstrates a positive relationship between the health practices applied by parents and the behaviour of their children highlighting the importance of parental heath education. However, there is minimal research that provides an understanding of how Hong Kong Chinese parents teach their children to prevent seasonal influenza. METHODS: Mixed methods research was undertaken that employed a multiple-case study approach to gain an understanding of parental teaching practices regarding seasonal influenza prevention. Purposive intensity sampling was adopted to recruit twenty parents and their healthy children. A thematic analysis was employed to examine the qualitative interview data and the quantitative survey data were examined descriptively. These data were then integrated to provide a more rigorous understanding of parental teaching strategies. Comparisons were made across cases to reveal commonalities and differences. RESULTS: Five major themes were identified: processes parents used to teach personal hygiene; parent-child interaction during teaching; approaches to managing children's health behaviours; enhancing children's healthy practices; and parents' perspective of the role of the nurse in health promotion. CONCLUSIONS: This study provided valuable insight into the approach of Hong Kong Chinese parents in teaching their children to prevent seasonal influenza. The results indicate that parents can be better supported to develop effective strategies to teach their preschool children hygiene practices for seasonal influenza prevention. Partnerships with community nurses can play a role in building effective parent-child interactions to enhance children's learning and adoption of healthy practices.

7.
J Clin Nurs ; 24(7-8): 891-905, 2015 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-24964081

RESUMO

AIMS AND OBJECTIVES: To identify factors affecting the delivery of health promotion interventions to prevent early childhood human influenza at the household level. BACKGROUND: Yearly, influenza epidemics seriously affect all age groups, particularly those with weakened immune systems, including children. Influenza is transmitted easily from person to person through droplet and direct contact. Maintaining personal hygiene, avoiding close contact with the infected person and proper hand washing are recommended as the most effective means of preventing the transmission of influenza. However, it is not clear what programme-related mechanisms and contexts are crucial to the successful delivery of interventions in the home. This study systematically reviewed published research studies to identify factors influencing the effective delivery of health promotion programmes targeting influenza in a household. DESIGN: Realist review. METHODS: A realist review methodology was selected to examine what interventions are effective in preventing and managing influenza at the household level and in what circumstances. A structured search of the peer-reviewed primary research literature was undertaken using a defined search protocol. RESULTS: Eight studies were retrieved for the analysis. Mechanisms impacting on intervention delivery were identified, including timing of implementation, programme reach, organisational and healthcare worker involvement, mode and place of delivery, contact with infected person, health practice compliance and sustainability at home. CONCLUSION: These findings suggest contextual factors that could be identified through ecological approaches to health promotion that are crucial for policymakers to consider when designing interventions. RELEVANCE TO CLINICAL PRACTICE: The active involvement of community nurses through an integrated household visiting programme may help to better deliver family-based health promotion interventions to prevent illnesses such as influenza in children.


Assuntos
Controle de Doenças Transmissíveis , Enfermagem em Saúde Comunitária , Promoção da Saúde , Influenza Humana/prevenção & controle , Criança , Pré-Escolar , Feminino , Hong Kong , Humanos , Masculino
8.
J Pain Symptom Manage ; 68(1): e8-e20, 2024 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-38518833

RESUMO

CONTEXT: Although spiritual intervention is crucial in the care of childhood cancer patients (CCPs), its effectiveness has not yet been systematically evaluated. OBJECTIVES: To determine the effectiveness of existing spiritual interventions on psychological, spiritual outcomes, and quality of life (QoL) in CCPs. METHODS: We searched eight databases to identify relevant randomized controlled trials and quasi-experimental studies. Risk of bias was assessed using the Cochrane risk-of-bias tool for randomized trials. Results were either synthesized in a systematic narrative synthesis or a meta-analysis using a random effects model, where appropriate. The pooled treatment effect was estimated using the standardized mean difference (SMD) and 95% confidence interval (CI). RESULTS: Twelve studies with 576 CCPs were included. Eight studies showed a high risk of bias. The overall effect of existing spiritual interventions on QoL (Z = 1.05, SMD = 0.64, 95%CI = -0.15 to 1.83, P = 0.29), anxiety (Z = 1.11, SMD = -0.83, 95%CI = -2.30 to 0.64, P = 0.28) and depressive symptoms (Z = 1.06, SMD = -0.49, 95%CI = -1.40 to 0.42, P = 0.12) were statistically nonsignificant. The nonsignificant findings could be attributed to the high heterogeneity among the included studies (QoL: I2 = 85%; anxiety: I2 = 90%; depressive symptoms: I2 = 58%). CONCLUSION: Evidence to support the positive effects of existing spiritual interventions on psychological and spiritual outcomes and QoL in CCPs is insufficient. Future studies should adopt a more rigorous design and unify the outcome measures to reduce the risk of bias and heterogeneity, respectively.


Assuntos
Neoplasias , Qualidade de Vida , Espiritualidade , Humanos , Neoplasias/psicologia , Neoplasias/terapia , Criança , Adolescente , Terapias Espirituais
9.
J Clin Nurs ; 22(13-14): 1988-2001, 2013 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-23745646

RESUMO

AIMS AND OBJECTIVES: To explore the interprofessional collaboration between nursing and social work professionals in their delivery of health services for schoolchildren. BACKGROUND: Interprofessional education has long been recommended as a way to meet the need for effective collaboration in school health service with a view to improving the quality of health care. No local study in Hong Kong has looked specifically at how nursing and social work professionals carry out school health services through interprofessional education and practice. Therefore, an examination was conducted of collaboration on a community-based school caring project. DESIGN: A qualitative design was employed, using semi-structured interviews, field observation and field debriefing. METHODS: Seven nursing students and five social work students were recruited and interviewed in 2011. The transcripts were analysed using qualitative content analysis. RESULTS: Three themes were identified: (1) early identification of children's needs through interprofessional collaboration for health promotion, (2) prompt referral for schoolchildren in need, and (3) comprehensive planning and implementation of school health service. CONCLUSION: The strength of collaborative work between nursing and social work professionals is that it helps to identify and address these complex health needs of children. Healthcare providers are hence able to develop a fuller understanding of children's problems, which in turn enables them to provide appropriate and effective health promotion interventions. RELEVANCE TO CLINICAL PRACTICE: The development of interprofessional education for school health services should be envisaged by the local higher educational institute and policy makers to reduce children's risk-taking behaviours and promote their health and well-being. Health educators and health policy makers can better understand how interprofessional education and collaboration can promote children health service for regional and national policy and practice.


Assuntos
Educação Profissionalizante/organização & administração , Serviços de Enfermagem Escolar , Criança , Comportamento Cooperativo , Currículo , Promoção da Saúde , Necessidades e Demandas de Serviços de Saúde , Hong Kong , Humanos
10.
J Nurs Educ ; 52(9): 509-15, 2013 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-23957720

RESUMO

Being a professional in today's health care system carries with it an expectation of becoming interprofessional. This study was designed to explore the perceived development of the participants' interprofessional competence through interprofessional seminars and collaborative community practice. Data were collected from social work and nursing undergraduates through two interprofessional seminar discussions, followed by focus group interviews after the completion of 2 weeks of practice experience. Study findings included: (a) role clarification and enhancement, (b) evolving role emphasis, (c) understanding the importance of and various communications in teamwork, and (d) being more responsive to the meaning of teamwork and the understanding of collaborative interdependence. Through interprofessional collaborative practice, students developed an insight into teamwork, where they witnessed the merits of collaboration and gained an understanding of each other's lack of holistic approach. In addition, not only the particular practice settings but also the role variations involved revealed various dimensions of interprofessional learning.


Assuntos
Bacharelado em Enfermagem , Comunicação Interdisciplinar , Relações Interprofissionais , Serviço Social/educação , Estudantes de Enfermagem/psicologia , Adolescente , Competência Clínica , Comportamento Cooperativo , Feminino , Humanos , Masculino , Pesquisa em Educação em Enfermagem , Pesquisa Qualitativa , Adulto Jovem
11.
J Midwifery Womens Health ; 68(1): 117-124, 2023 01.
Artigo em Inglês | MEDLINE | ID: mdl-36533775

RESUMO

INTRODUCTION: The emotional bond that parents feel with their child is a crucial determinant of the child's psychosocial well-being and future development. Few studies have evaluated the predictive roles of depressive symptoms, relationship satisfaction, and family sense of coherence in the quality of parent-infant bonding for both parents during the perinatal period. The aim of this study was to determine the predictive effects of depressive symptoms, relationship satisfaction, and family sense of coherence during pregnancy; changes thereof from pregnancy to 6 weeks postpartum; and the partner's bond with the infant on the quality of parent-infant bonding at 6 weeks postpartum in Chinese mothers and fathers. METHODS: This was a secondary analysis of data from an intervention study. A convenience sample of 231 Chinese childbearing couples was recruited from the antenatal clinics of public hospitals in Hong Kong. Parent-infant bonding, depressive symptoms, relationship satisfaction, and family sense of coherence were measured using the Postpartum Bonding Questionnaire, Edinburgh Postnatal Depression Scale, Dyadic Adjustment Scale, and Family Sense of Coherence Scale during pregnancy and at 6 weeks postpartum. RESULTS: The findings indicated that higher depressive symptoms during pregnancy and poor partner bonding with the infant were the major predictors of impaired parent-infant bonding at 6 weeks postpartum for both parents. Prenatal relationship satisfaction was not a significant predictor of parent-infant bonding at 6 weeks postpartum for either parent. Prenatal family sense of coherence was a strong predictor of parent-infant bonding for mothers but not for fathers. DISCUSSION: The findings highlight the significant effects of depressive symptoms, family sense of coherence, and the partner's bond with the infant on parent-infant bonding during the perinatal period. Comprehensive early prenatal programs that promote parental well-being and strengthen family sense of coherence should be integrated into existing perinatal services to promote the quality of parent-infant bonding for both parents.


Assuntos
Depressão Pós-Parto , Apego ao Objeto , Feminino , Humanos , Lactente , Masculino , Gravidez , Depressão Pós-Parto/psicologia , População do Leste Asiático , Pai/psicologia , Mães/psicologia , Período Pós-Parto/psicologia
12.
BMJ Open ; 13(3): e070810, 2023 03 07.
Artigo em Inglês | MEDLINE | ID: mdl-36882254

RESUMO

INTRODUCTION: Cancer and its treatment affect children's physical, psychological and social well-being throughout the disease trajectory. Spiritual well-being is a fundamental dimension of people's overall health and is considered a source of strength to motivate patients to cope with and adapt to their disease. Appropriate spiritual interventions are important to mitigate the psychological impact of cancer on children, with an ultimate goal of improving their quality of life (QoL) throughout the treatment course. However, the overall effectiveness of spiritual interventions for paediatric patients with cancer remains unclear. This paper describes a protocol to systematically summarise the characteristics of studies related to existing spiritual interventions and synthesise their effectiveness on psychological outcomes and QoL among children with cancer. METHODS AND ANALYSIS: Ten databases will be searched to identify appropriate literature: MEDLINE, the Cochrane Central Register of Controlled Trials, EMBASE, CINAHL, PsycINFO, LILACS, OpenSIGLE, the Chinese Biomedical Literature Database, the Chinese Medical Current Contents and the Chinese National Knowledge Infrastructure. All randomised controlled trials that meet our inclusion criteria will be included. The primary outcome will be QoL as evaluated by self-reported measures. The secondary outcomes will be self-reported or objectively measured psychological outcomes, including anxiety and depression. Review Manager V.5.3 will be used to synthesise the data, calculate treatment effects, perform any subgroup analyses and assess the risk of bias in included studies. ETHICAL AND DISSEMINATION: The results will be presented at international conferences and published in peer-reviewed journals. As no individual data will be involved in this review, ethical approval is not required.


Assuntos
Neoplasias , Qualidade de Vida , Criança , Humanos , Ansiedade , Neoplasias/psicologia , Neoplasias/terapia , Espiritualidade , Revisões Sistemáticas como Assunto
13.
Sci Rep ; 13(1): 6805, 2023 04 26.
Artigo em Inglês | MEDLINE | ID: mdl-37100834

RESUMO

Hope plays an extremely important role in protecting childhood cancer patients from psychological distress caused by cancer. The availability of a valid and reliable instrument that can accurately assess hope is crucial for the development of interventions to enhance hope among childhood cancer patients. This study aimed to examine the psychometric properties of the Chinese version of the Herth Hope Index (HHI). Chinese childhood cancer patients aged 8-17 years (n = 412) were invited to participate in this cross-sectional study. Participants completed the Chinese translated version of the HHI, the Center for Epidemiology Studies Depression Scale for Children and the Paediatric Quality of Life Inventory 3.0 Cancer Module. Exploratory factor analysis and confirmatory factor analysis were conducted to assess the structural validity of the HHI. Content validity, convergent validity, internal consistency, and test-retest reliability at 2 weeks were also examined. The content validity index for items ranged from 0.8 to 1.0, and that for the scale was 0.9, demonstrating appropriate content validity. There was a positive correlation between HHI and Center for Epidemiology Studies Depression Scale for Children scores and a negative correlation between HHI and Paediatric Quality of Life Inventory 3.0 Cancer Module scores. The results indicated that the Chinese version of the HHI showed reasonable convergent validity and discriminant validity. Exploratory factor analysis yielded a three-factor model, which could explain 82.74% of the total variance. The confirmatory factor analysis results showed that χ2/df was 2.20, comparative fit index was 0.98, goodness of fit index was 0.94, and root-mean-square error of approximation was 0.07. Cronbach's alpha was 0.78, indicating good internal consistency. The findings of the study showed that the Chinese version of the HHI (11-item) is a reliable and valid instrument for assessing hope among Chinese childhood cancer patients. Evidence-based interventions can be provided to enhance hope in this population.


Assuntos
Neoplasias , Qualidade de Vida , Humanos , Criança , Qualidade de Vida/psicologia , Psicometria/métodos , Reprodutibilidade dos Testes , Estudos Transversais , Inquéritos e Questionários , Neoplasias/psicologia , Análise Fatorial
14.
Front Psychol ; 13: 1065854, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-36544451

RESUMO

Background: Spiritual well-being is a strength for childhood cancer patients to cope with cancer. The availability of a valid and reliable instrument for assessing spiritual well-being is crucial. This study translated and adapted the Functional Assessment of Chronic Illness Therapy Spiritual Well-being scale (FACIT-Sp) for Chinese childhood cancer patients and examined the psychometric properties and factor structure in this population. Methods: This was a methodological study. The FACIT-Sp was translated into Chinese. Adaptation was based on our qualitative study. For psychometric evaluation, a convenience sample of 412 were recruited based on the suggested sample size for the exploratory factor analysis (EFA) and confirmatory factor analysis (CFA). Childhood cancer patients were included if they aged 8-17 years, with parental consent to participate, able to communicate that they were being treated for cancer, and able to communicate and read Chinese. Participants answered the Chinese version of the adapted FACIT-Sp, the Center for Epidemiology Studies Depression Scale for Children (CES-DC), and the Pediatric Quality of Life Inventory 3.0 Cancer Module (PedsQL). Content validity, convergent validity, internal consistency and test-retest reliability were examined. Both EFA and CFA assessed the structural validity of the adapted FACIT-Sp. Results: The content validity index values for items ranged 0.8-1.0 and that for the scale was 0.84, indicating appropriate content validity. The scale had good internal consistency, with a Cronbach's alpha of 0.815. The FACIT-Sp scores positively correlated with the CES-DC scores, and negatively correlated with PedsQL scores, suggesting that the Chinese version of the adapted FACIT-Sp had reasonable convergent validity. EFA yielded a four-factor (meaning, peace, faith, and connection with others) model. The CFA results revealed that the four-factor model achieved a better fit than the original three-factor model (Chi-Square Mean/Degree of Freedom = 2.240 vs. 3.557, Comparative Fit Index = 0.953 vs. 0.916, Goodness of Fit Index = 0.909 vs. 0.884, Root Mean Square Error of Approximation = 0.078 vs. 0.112). Conclusion: The Chinese version of the adapted FACIT-Sp is a reliable and valid instrument for assessing spiritual well-being among Chinese childhood cancer patients. This instrument can be applied in clinical settings for routine assessment.

15.
Cancer Nurs ; 45(5): E775-E781, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-34732679

RESUMO

BACKGROUND: Because of their cancer and treatment adverse effects, most pediatric oncology patients will experience 1 or more symptoms at one time that can seriously affect their quality of life. Because these children are attached to parents, their symptom burden directly influences the parental stress level and parental interpretations of their children's quality of life. OBJECTIVE: The aim of this study was to examine the association between child-reported symptom burden and the pediatric quality of life reported by children with cancer and their parents, and whether parental perceived stress mediates these relationships. METHODS: In a cross-sectional design, convenience sampling was used to recruit 80 parent-child dyads. Advanced statistical methods were adopted to analyze the mediating effects of parental stress between children's symptom burden and their quality of life. RESULTS: The results revealed that parental stress was the mediator in the relationship between child-reported symptom burden and children's quality of life reported by parents. The results also showed that parental stress was not a mediator in the relationship between child-reported symptom burden and their quality of life. This underscored the differences in interpretations of quality of life reported by children and their parents. CONCLUSION: Children's symptom burden is an important factor in predicting parental stress level and the quality of life reported by the children. Children's voice should be incorporated whenever possible. IMPLICATIONS FOR PRACTICE: The knowledge gained from this study will facilitate intervention development to enhance parents' abilities in stress management and symptom management for their children with the support of the nursing profession.


Assuntos
Neoplasias , Qualidade de Vida , Criança , China , Estudos Transversais , Humanos , Relações Pais-Filho , Pais
16.
Artigo em Inglês | MEDLINE | ID: mdl-36293795

RESUMO

Spiritual well-being is the fourth dimension of health, as equally important as physical, mental, and social well-being. The shadow of death associated with cancer triggers children to explore their personal values, meanings, and life goals throughout the illness trajectory, enabling them to identify their unique spiritual needs. Chinese children are generally non-religious, unlike Western children, which affects their spiritual needs. To address the literature gaps, we applied a qualitative, descriptive, phenomenological approach for exploring the spiritual needs of Chinese children hospitalized with cancer. Purposive sampling was conducted in two public hospitals with special wards for pediatric oncology patients in Hunan Province, China. Consequently, 22 children, hospitalized with cancer, were recruited and individually interviewed using a semi-structured interview format. We conducted a thematic analysis of the interview transcripts. Four important themes were identified: the need for self-exploration, inner needs, need for a connection with others, and need for a connection with gods, supernatural powers, and fictional characters. We found that culture significantly influenced the spiritual needs of Chinese children with cancer. Hope was a key factor motivating the children to continue cancer treatment. To address their unique spiritual needs, culturally specific interventions should be developed and incorporated into their care to enhance their spiritual well-being.


Assuntos
Neoplasias , Espiritualidade , Criança , Humanos , Hospitalização , China
17.
Artigo em Inglês | MEDLINE | ID: mdl-36011474

RESUMO

BACKGROUND: The aim of this study was to investigate the association between children's reported symptom burden and their parents' quality of life, and whether parents' perceived stress mediates this relationship. METHOD: this was a cross-sectional quantitative research study. Convenience sampling was used to recruit 80 pairs of parents and their children with cancer. Advanced statistical methods were used to analyse the mediating effects of parental stress between children's symptom burden and parents' quality of life. RESULTS: The results showed that parental stress was the mediator in the relationship between children's reported symptom burden and their parents' quality of life. CONCLUSIONS: Symptom burden was prevalent in Chinese children with cancer living in the community. Children's symptom burden is an important factor in predicting parental stress level, which simultaneously and directly lower parents' quality of life. The evidence in this study enlarges the knowledge base about the mediating effect of parental stress on the association between the symptom burden of children with cancer and their parents' quality of life. This evidence is crucial in paving the way for the development of interventions that improve the parental quality of life through stress-reduction programs.


Assuntos
Neoplasias , Qualidade de Vida , Criança , Estudos Transversais , Humanos , Neoplasias/epidemiologia , Relações Pais-Filho
18.
J Eval Clin Pract ; 27(6): 1291-1298, 2021 12.
Artigo em Inglês | MEDLINE | ID: mdl-33527689

RESUMO

RATIONALE: Postpartum depression is a worldwide public health issue that can have long-term impact on the family. It is crucial to evaluate intervention program to help new parents cope with the stress of parenthood to reduce the risk of postpartum depression. The aim of this study was to explore the perceived benefits of the couple-based psychoeducation to first-time Hong Kong Chinese parents, and the crucial factors influencing the effectiveness of this program underpinned by the concept of process evaluation. METHOD: Using an exploratory qualitative design, a purposeful sample of 27 couples who had participated in the program were interviewed at 1-3 months postpartum. Data were collected using semi-structured interviews and analysed by thematic analysis. FINDINGS: The findings showed that the parents perceived the program to be useful in enhancing their parenting skills and emotional control, and increasing their sense of support. The effectiveness of the program was facilitated by (a) the predisposing factors such as couple-based approach to enhance mutual expectation and shared decision making when experiencing and managing challenges, and telephone follow-up calls to sustain the continuity of care from hospital to the community, (b) the enabling factor for instance, the time of intervention arranged in non-working hour, and (c) reinforcing factor namely involvement of midwives during program implementation and telephone follow-up consultation. CONCLUSIONS: The results of this study suggest the potential of the couple-based psychoeducation to support first-time parents in taking care of their children and controlling their emotions in this critical transition. The program could be integrated into maternal and child care services on a regular basis, and thus accessible to all first-time parents.


Assuntos
Poder Familiar , Pais , Adaptação Psicológica , Feminino , Humanos , Período Pós-Parto , Avaliação de Programas e Projetos de Saúde , Telefone
19.
Cancer Nurs ; 43(4): E186-E196, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-30543568

RESUMO

BACKGROUND: Nurse-patient communication is of the utmost importance to oncology patients. OBJECTIVE: The aim of this study was to investigate the factors influencing the level of satisfaction with nurse-patient communication among oncology patients during their daily routine procedures. METHODS: In this observational study, 25 registered nurses and 94 patients were recruited from an oncology unit. The patients were asked to complete a concern checklist before and after each admission, administration of medication, and wound-dressing procedure. Nonverbal cues expressed by the nurses and patients were noted on the checklist during these nursing procedures. RESULTS: The results showed that patients at stage 3 cancer and patients receiving admission procedures were significantly more satisfied with their communication with nurses compared with those who were more concerned about the impact of the disease on self-care. CONCLUSIONS: Cancer stage, time of admission, and psychological concern related to self-care ability are the potential factors affecting the satisfaction level of nurse-patient communication. IMPLICATIONS FOR NURSING: Emphasis could be placed on utilizing the time of admission to interact with patients in a busy environment to strive for better communication with oncology patients. The results underscore the importance of applying the self-care enhancement approach for hospitalized cancer patients.


Assuntos
Comunicação , Neoplasias/enfermagem , Relações Enfermeiro-Paciente , Satisfação do Paciente/estatística & dados numéricos , Idoso , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Estadiamento de Neoplasias , Neoplasias/patologia , Admissão do Paciente/estatística & dados numéricos , Autocuidado/psicologia , Fatores de Tempo
20.
PLoS One ; 14(10): e0224178, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31648272

RESUMO

BACKGROUND: Despite an increase in emphasis on psychosocial care in cancer nursing, time constraints and nurses' lack of knowledge in skilled communication continue to be challenges. AIMS: To examine how cancer care nurses view their communication with patients and how they deal with the psychosocial needs of patients in busy wards. DESIGN: A qualitative interview study. METHODS: Focus groups and individual interviews were conducted with eleven hospital-based cancer nurses in Hong Kong from July 2, 2017 to January 2, 2018. RESULTS: A qualitative thematic analysis of the data identified three themes: 1. Intentional and unintentional psychosocial care that is secondary in focus; 2. Managing an emotionally challenged environment; 3. Mentoring and learning. CONCLUSION: Oncology settings are time-constrained, emotionally charged environments for nurses, and providing psychosocial care for patients is a secondary concern. While proactive strategies can be used to avert patient complaints, being open and attending to the individual needs of patients is equally important to avoid blocking in nurse-patient communication. Despite emotional entanglement and tensions, the positive follow-up strategies used by nurses to manage the patients' emotions and provide psychosocial care reflect good practices. Leadership and support are needed to deal with the nurses' perception that their communication training has been ineffective and their ability to manage strong emotions deficient. Communication skills, honed by making continuous opportunities to communicate available, as well as an understanding of emotional labour, need to be integrated with mindfulness in the nurses' care of themselves and their patients. Notwithstanding the importance of experience in oncology care for junior nurses, it is necessary for both junior and senior nurses to learn about and reflect upon the different forms of emotional labour if value-based care is to be provided. In addition, it is essential for junior nurses to receive continuous coaching and mentoring, and to engage in reflective learning from each clinical encounter with oncology patients.


Assuntos
Comunicação , Neoplasias/enfermagem , Neoplasias/psicologia , Relações Enfermeiro-Paciente , Recursos Humanos de Enfermagem Hospitalar/psicologia , Enfermagem Oncológica/métodos , Feminino , Humanos , Masculino , Pesquisa Qualitativa
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