Detalhe da pesquisa
1.
Psychometric performance of the Primary Mitochondrial Myopathy Symptom Assessment (PMMSA) in a randomized, double-blind, placebo-controlled crossover study in subjects with mitochondrial disease.
J Patient Rep Outcomes
; 6(1): 129, 2022 Dec 23.
Artigo
em Inglês
| MEDLINE | ID: mdl-36562873
2.
"I Want That Life a Lot How on Earth Do I Get That?" Examining Challenges for Men With Barth Syndrome in Their Transitions to Adulthood.
J Patient Exp
; 8: 23743735211060783, 2021.
Artigo
em Inglês
| MEDLINE | ID: mdl-34869844
3.
Development and content validity of the Barth Syndrome Symptom Assessment (BTHS-SA) for adolescents and adults.
Orphanet J Rare Dis
; 16(1): 264, 2021 06 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-34108006
4.
Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF©.
Orphanet J Rare Dis
; 16(1): 414, 2021 10 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-34627355
5.
Development of a Patient-Reported Outcome Questionnaire to Evaluate Primary Mitochondrial Myopathy Symptoms: The Primary Mitochondrial Myopathy Symptom Assessment.
J Clin Neuromuscul Dis
; 22(2): 65-76, 2020 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-33214391
6.
Understanding the life experience of Barth syndrome from the perspective of adults: a qualitative one-on-one interview study.
Orphanet J Rare Dis
; 14(1): 243, 2019 11 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-31699126
7.
Development of the Rheumatoid Arthritis Symptom Questionnaire (RASQ): a patient reported outcome scale for measuring symptoms of rheumatoid arthritis.
Curr Med Res Opin
; 33(9): 1643-1651, 2017 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-28574727
8.
Patient-Reported Outcomes in Oncology Drug Labeling in the United States: A Framework for Navigating Early Challenges.
Am Health Drug Benefits
; 9(4): 188-97, 2016 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-27688832
9.
Clinical Trial Patient-reported Outcomes Data: Going Beyond the Label in Oncology.
Clin Ther
; 38(4): 811-20, 2016 04.
Artigo
em Inglês
| MEDLINE | ID: mdl-27036873
10.
Patient-reported preferences for oral versus intravenous administration for the treatment of cancer: a review of the literature.
Patient Prefer Adherence
; 10: 1609-21, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-27601886
11.
Patient-Reported Outcomes in Metastatic Breast Cancer: A Review of Industry-Sponsored Clinical Trials.
Breast Cancer (Auckl)
; 10: 93-102, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-27441001
12.
The use of patient-reported outcomes in advanced breast cancer clinical trials: a review of the published literature.
Curr Med Res Opin
; 32(10): 1709-17, 2016 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-27331272
13.
Patient-reported outcomes for US oncology labeling: review and discussion of score interpretation and analysis methods.
Expert Rev Pharmacoecon Outcomes Res
; 15(6): 951-9, 2015.
Artigo
em Inglês
| MEDLINE | ID: mdl-26594897