Perspectives from diverse stakeholders in a youth community-based participatory research project.

INTRODUCTION: TEEN HEED (Help Educate to Eliminate Diabetes) is a community-based youth participatory action research (YPAR) study in which prediabetic adolescents from a predominantly low-income, non-white neighborhood in New York City participated in a peer-led diabetes prevention intervention. The aim of the current analysis is to evaluate the TEEN HEED program through examination of multiple stakeholder perspectives to identify strengths and areas for improvement that may inform other YPAR projects. METHODS: We conducted 44 individual in-depth interviews with representatives from six stakeholder groups (study participants, peer leaders, study interns and coordinators, and younger and older community action board members). Interviews were recorded, transcribed, and analyzed using thematic analysis to identify overarching themes. RESULTS: Dominant themes identified were: 1) YPAR principles and engagement, 2) Youth engagement through peer education, 3) Challenges and motivations for research participation, 4) Study improvements and sustainability, and 5) Professional and personal impacts of the study. CONCLUSIONS: Emergent themes from this study provided insights on the value of youth participation in research and informed recommendations for future YPAR studies.

Unraveling the concepts of distress, burnout, and depression in type 1 diabetes: A scoping review.

BACKGROUND: Psychological complications are frequent in type 1 diabetes (T1D) but they might be difficult to distinguish one from the other in clinical practice. Our objective was to study the distinguishing characteristics, overlaps and their use in the literature between three concepts of T1D: depression, diabetes distress (DD) and diabetes burnout (DB). METHODS: A scoping review (PRISMA guidelines) performed in three databases (PubMed/MEDLINE, PsycInfo, Web of Science) with the keywords: T1D, depression, diabetes and burnout, from January 1990 to June 2021. We selected original studies with participants with T1D, which reported depression, DD, or DB. We extracted information about the concepts, their sub-concepts and screening tools. FINDINGS: Of the 4763 studies identified, 201 studies were included in the study. Seventy-three percent, 57% and 45% of sub-concepts do not overlap in depression, DD, and DB, respectively. We observed overlap between depression (27%)/DD (27%) and between DD (20%)/DB (50%). INTERPRETATION: A number of sub-concepts distinguish depression and DD. Overlaps between concepts suggest that a more precise definition is still lacking. DB is still a relatively new concept and more research is needed to better understand how it can present itself differently, in order to personalize care in comparison to those having DD.

Social and Demographic Patterns of Health-Related Internet Use Among Adults in the United States: A Secondary Data Analysis of the Health Information National Trends Survey.

National surveys of U.S. adults have observed significant increases in health-related internet use (HRIU), but there are documented disparities. The study aims to identify social and demographic patterns of health-related internet use among U.S. adults. Using data from the Health Information National Trends Survey (HINTS) 4 cycle 3 and HINTS 5 cycle 1, we examined HRIU across healthcare, health information seeking, and participation on social media. Primary predictors were gender, race/ethnicity, age, education, income, and nativity with adjustments for smoking and survey year. We used multivariable logistic regression with survey weights to identify independent predictors of HRIU. Of the 4817 respondents, 43% had used the internet to find a doctor; 80% had looked online for health information. Only 20% had used social media for a health issue; 7% participated in an online health support group. In multivariable models, older and low SES participants were significantly less likely to use the internet to look for a provider, use the internet to look for health information for themselves or someone else, and less likely to use social media for health issues. Use of the internet for health-related purposes is vast but varies significantly by demographics and intended use.