Detalhe da pesquisa
1.
Should secondary pharmacogenomic variants be actively screened and reported when diagnostic genome-wide sequencing is performed in a child?
Genet Med
; 26(2): 101033, 2024 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-38007624
2.
A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data access.
BMC Med Ethics
; 25(1): 51, 2024 May 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-38706004
3.
Ethics Education for Healthcare Professionals in the Era of ChatGPT and Other Large Language Models: Do We Still Need It?
Am J Bioeth
; 23(10): 17-27, 2023 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-37487184
4.
A systematic literature review to identify ethical, legal, and social responsibilities of nonprofit organizations when funding clinical trials in pediatric cancer.
Pediatr Blood Cancer
; 69(9): e29854, 2022 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-35713116
5.
A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada.
BMC Med Ethics
; 22(1): 71, 2021 06 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-34107925
6.
Communication of Pharmacogenomic test results and treatment plans in pediatric oncology: deliberative stakeholder consultations with parents.
BMC Palliat Care
; 20(1): 15, 2021 Jan 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-33435936
7.
Assessing the quality of deliberative stakeholder consultations involving allied health professionals in pediatric palliative care and hematology/oncology in Canada.
BMC Palliat Care
; 20(1): 189, 2021 Dec 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-34906102
8.
Pros and cons of prosent as an alternative to traditional consent in medical research.
J Med Ethics
; 2020 Jun 22.
Artigo
em Inglês
| MEDLINE | ID: mdl-32571849
9.
The Ethical Data Practices Framework and Its Implications for Data Privacy Relations between the United States and the European Union.
Am J Bioeth
; 23(11): 29-33, 2023 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-37879019
10.
Integrating Social Determinants of Health into Ethical Digital Simulations.
Am J Bioeth
; 23(9): 57-60, 2023 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-37647482
11.
Regulatory Angels and Technology Demons? Making Sense of Evolving Realities in Health Data Privacy for the Digital Age.
Am J Bioeth
; 22(7): 68-70, 2022 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-35737504
12.
Promoting Ethical Deployment of Artificial Intelligence and Machine Learning in Healthcare.
Am J Bioeth
; 22(5): 4-7, 2022 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-35499568
13.
Automating Justice: An Ethical Responsibility of Computational Bioethics.
Am J Bioeth
; 22(7): 30-33, 2022 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-35737496
14.
The Serious Factor in Expanded Prenatal Genetic Testing.
Am J Bioeth
; 22(2): 23-25, 2022 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-35089840
15.
Statement of principles on the return of research results and incidental findings in paediatric research: a multi-site consultative process.
Genome
; 58(12): 541-8, 2015 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-26613133
16.
Promoting an ethic of engagement in pediatric palliative care research.
BMC Palliat Care
; 14: 50, 2015 Oct 16.
Artigo
em Inglês
| MEDLINE | ID: mdl-26474573
17.
Genetics and primary care: where are we headed?
J Transl Med
; 12: 238, 2014 Aug 28.
Artigo
em Inglês
| MEDLINE | ID: mdl-25164605
18.
Investigating the Roles and Responsibilities of Institutional Signing Officials After Data Sharing Policy Reform for Federally Funded Research in the United States: National Survey.
JMIR Form Res
; 8: e49822, 2024 Mar 20.
Artigo
em Inglês
| MEDLINE | ID: mdl-38506894
19.
Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members.
Biopreserv Biobank
; 22(2): 123-129, 2024 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-37192473
20.
Deliberative stakeholder consultations: creating insights into effective practice-change in family medicine.
Fam Pract
; 35(6): 749-752, 2018 12 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-30541124