Detalhe da pesquisa
1.
Captains on call: A qualitative investigation of an intervention to support children with retinoblastoma undergoing regular eye examinations.
Psychooncology
; 33(3): e6315, 2024 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-38423988
2.
Quality of life in caregivers of a child with a developmental and epileptic encephalopathy.
Dev Med Child Neurol
; 66(2): 206-215, 2024 Feb.
Artigo
em Inglês
| MEDLINE | ID: mdl-37421242
3.
Communicating with families of young people with hard-to-treat cancers: Healthcare professionals' perspectives on challenges, skills, and training.
Palliat Support Care
; 22(3): 539-545, 2024 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-38263685
4.
Parents' and adolescents' perspectives and understanding of information about childhood cancer precision medicine.
Cancer
; 129(22): 3645-3655, 2023 11 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-37376781
5.
Hopes, concerns, satisfaction and regret in a precision medicine trial for childhood cancer: a mixed-methods study of parent and patient perspectives.
Br J Cancer
; 129(10): 1634-1644, 2023 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-37726477
6.
Going Virtual: Adapting an Institutional Annual Bereavement Event During the COVID-19 Pandemic.
J Pediatr
; 257: 113393, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36940869
7.
Medical experts and trusted confidants: parent perceptions of the clinician-parent relationship in childhood cancer.
Support Care Cancer
; 31(2): 113, 2023 Jan 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-36633686
8.
A Decision Aid for Nutrition Support is Acceptable in the Pediatric Hospital Setting.
J Pediatr Nurs
; 55: 165-173, 2020.
Artigo
em Inglês
| MEDLINE | ID: mdl-32950824
9.
Piloting a parent and patient decision aid to support clinical trial decision making in childhood cancer.
Psychooncology
; 28(7): 1520-1529, 2019 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-31099124
10.
Decision-making in childhood cancer: parents' and adolescents' views and perceptions.
Support Care Cancer
; 27(11): 4331-4340, 2019 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-30880372
11.
Enrolment in paediatric oncology early-phase clinical trials: The health-care professionals' perspective.
J Paediatr Child Health
; 55(5): 561-566, 2019 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-30288839
12.
Adolescent and young adult cancer survivors' memory and future thinking processes place them at risk for poor mental health.
Psychooncology
; 27(12): 2709-2716, 2018 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-30109738
13.
Acceptability and feasibility of an e-mental health intervention for parents of childhood cancer survivors: "Cascade".
Support Care Cancer
; 24(6): 2685-94, 2016 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-26781620
14.
Fertility concerns among child and adolescent cancer survivors and their parents: A qualitative analysis.
J Psychosoc Oncol
; 34(5): 347-62, 2016.
Artigo
em Inglês
| MEDLINE | ID: mdl-27269305
15.
Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study.
J Child Health Care
; : 13674935241238485, 2024 Mar 29.
Artigo
em Inglês
| MEDLINE | ID: mdl-38551845
16.
A Review of Creative Play Interventions to Improve Children's Hospital Experience and Wellbeing.
Hosp Pediatr
; 13(11): e355-e364, 2023 11 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-37830155
17.
"Somewhere to turn to with my questions": A pre-post pilot of an information linker service for caregivers who have a child with a Developmental and Epileptic Encephalopathy.
Eur J Paediatr Neurol
; 47: 94-104, 2023 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-37832466
18.
Parents' understanding of genome and exome sequencing for pediatric health conditions: a systematic review.
Eur J Hum Genet
; 30(11): 1216-1225, 2022 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-35999452
19.
Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol.
BMJ Open
; 12(10): e063249, 2022 10 26.
Artigo
em Inglês
| MEDLINE | ID: mdl-36288836
20.
What's in a Name? Parents' and Healthcare Professionals' Preferred Terminology for Pathogenic Variants in Childhood Cancer Predisposition Genes.
J Pers Med
; 12(8)2022 Aug 18.
Artigo
em Inglês
| MEDLINE | ID: mdl-36013276