Pesquisa | BVS IEC

1.

iPS cells: mapping the policy issues.

Zarzeczny, Amy; Scott, Christopher; Hyun, Insoo; Bennett, Jami; Chandler, Jennifer; Chargé, Sophie; Heine, Heather; Isasi, Rosario; Kato, Kazuto; Lovell-Badge, Robin; McNagny, Kelly; Pei, Duanqing; Rossant, Janet; Surani, Azim; Taylor, Patrick L; Ogbogu, Ubaka; Caulfield, Timothy.

Cell ; 139(6): 1032-7, 2009 Dec 11.

Artigo em Inglês | MEDLINE | ID: mdl-20005794

2.

From patients to partners: participant-centric initiatives in biomedical research.

Kaye, Jane; Curren, Liam; Anderson, Nick; Edwards, Kelly; Fullerton, Stephanie M; Kanellopoulou, Nadja; Lund, David; MacArthur, Daniel G; Mascalzoni, Deborah; Shepherd, James; Taylor, Patrick L; Terry, Sharon F; Winter, Stefan F.

Nat Rev Genet ; 13(5): 371-6, 2012 Apr 03.

Artigo em Inglês | MEDLINE | ID: mdl-22473380

3.

Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.

Cassa, Christopher A; Savage, Sarah K; Taylor, Patrick L; Green, Robert C; McGuire, Amy L; Mandl, Kenneth D.

Genome Res ; 22(3): 421-8, 2012 Mar.

Artigo em Inglês | MEDLINE | ID: mdl-22147367

4.

Innovation incentives or corrupt conflicts of interest? Moving beyond Jekyll and Hyde in regulating biomedical academic-industry relationships.

Taylor, Patrick L.

Yale J Health Policy Law Ethics ; 13(1): 135-97, 2013.

Artigo em Inglês | MEDLINE | ID: mdl-23815042

5.

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository.

Harris, Erin D; Ziniel, Sonja I; Amatruda, Jonathan G; Clinton, Catherine M; Savage, Sarah K; Taylor, Patrick L; Huntington, Noelle L; Green, Robert C; Holm, Ingrid A.

Genet Med ; 14(3): 330-7, 2012 Mar.

Artigo em Inglês | MEDLINE | ID: mdl-22241099

6.

Scientific self-regulation-so good, how can it fail? Commentary on "The problems with forbidding science".

Taylor, Patrick L.

Sci Eng Ethics ; 15(3): 395-406, 2009 Sep.

Artigo em Inglês | MEDLINE | ID: mdl-19360483

7.

Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients.

Bourgeois, Fabienne C; Taylor, Patrick L; Emans, S Jean; Nigrin, Daniel J; Mandl, Kenneth D.

J Am Med Inform Assoc ; 15(6): 737-43, 2008.

Artigo em Inglês | MEDLINE | ID: mdl-18755989

8.

Rules of engagement.

Taylor, Patrick L.

Nature ; 450(7167): 163-4, 2007 Nov 08.

Artigo em Inglês | MEDLINE | ID: mdl-17994064

9.

Beyond financial conflicts of interest: Institutional oversight of faculty consulting agreements at schools of medicine and public health.

Mello, Michelle M; Murtagh, Lindsey; Joffe, Steven; Taylor, Patrick L; Greenberg, Yelena; Campbell, Eric G.

PLoS One ; 13(10): e0203179, 2018.

Artigo em Inglês | MEDLINE | ID: mdl-30372431

10.

Research sharing, ethics and public benefit.

Taylor, Patrick L.

Nat Biotechnol ; 25(4): 398-401, 2007 Apr.

Artigo em Inglês | MEDLINE | ID: mdl-17420742

11.

Availability and quality of mobile health app privacy policies.

Sunyaev, Ali; Dehling, Tobias; Taylor, Patrick L; Mandl, Kenneth D.

J Am Med Inform Assoc ; 22(e1): e28-33, 2015 Apr.

Artigo em Inglês | MEDLINE | ID: mdl-25147247

12.

Position statement on the provision and procurement of human eggs for stem cell research.

Haimes, Erica; Skene, Loane; Ballantyne, Angela J; Caulfield, Timothy; Goldstein, Lawrence S; Hyun, Insoo; Kimmelman, Jonathan; Robert, Jason S; Roxland, Beth E; Scott, Christopher T; Solbakk, Jan Helge; Sugarman, Jeremy; Taylor, Patrick L; Testa, Giuseppe.

Cell Stem Cell ; 12(3): 285-91, 2013 Mar 07.

Artigo em Inglês | MEDLINE | ID: mdl-23472870

13.

Science aside: the trajectory of embryonic stem cell research in the USA.

Schlaeger, Thorsten M; Lensch, M William; Taylor, Patrick L.

Drug Discov Today ; 12(7-8): 269-71, 2007 Apr.

Artigo em Inglês | MEDLINE | ID: mdl-17395086

14.

Responsibility rewarded: ethics, engagement, and scientific autonomy in the labyrinth of the minotaur.

Taylor, Patrick L.

Neuron ; 70(4): 577-81, 2011 May 26.

Artigo em Inglês | MEDLINE | ID: mdl-21609816

15.

Overseeing innovative therapy without mistaking it for research: a function-based model based on old truths, new capacities, and lessons from stem cells.

Taylor, Patrick L.

J Law Med Ethics ; 38(2): 286-302, 2010.

Artigo em Inglês | MEDLINE | ID: mdl-20579252

16.

State payer mandates to cover care in US oncology trials: do science and ethics matter?

Taylor, Patrick L.

J Natl Cancer Inst ; 102(6): 376-90, 2010 Mar 17.

Artigo em Inglês | MEDLINE | ID: mdl-20197514

17.

Multidimensional results reporting to participants in genomic studies: getting it right.

Kohane, Isaac S; Taylor, Patrick L.

Sci Transl Med ; 2(37): 37cm19, 2010 Jun 23.

Artigo em Inglês | MEDLINE | ID: mdl-20574066

18.

Leaping the Data Chasm: Structuring Donation of Clinical Data for Healthcare Innovation and Modeling.

Taylor, Patrick L; Mandl, Kenneth D.

Harvard Health Policy Rev ; 14(2): 18-21, 2015.

Artigo em Inglês | MEDLINE | ID: mdl-26078727

19.

Patients beware: commercialized stem cell treatments on the web.

Taylor, Patrick L; Barker, Roger A; Blume, Karl G; Cattaneo, Elena; Colman, Alan; Deng, Hongkui; Edgar, Harold; Fox, Ira J; Gerstle, Claude; Goldstein, Lawrence S B; High, Katherine A; Lyall, Andrew; Parkman, Robertson; Pitossi, Fernando J; Prentice, Ernest D; Rooke, Heather M; Sipp, Douglas A; Srivastava, Alok; Stayn, Susan; Steinberg, Gary K; Wagers, Amy J; Weissman, Irving L.

Cell Stem Cell ; 7(1): 43-9, 2010 Jul 02.

Artigo em Inglês | MEDLINE | ID: mdl-20621049

20.

Retroactive ethics in rapidly developing scientific fields.

Taylor, Patrick L.

Cell Stem Cell ; 4(6): 479-82, 2009 Jun 05.

Artigo em Inglês | MEDLINE | ID: mdl-19446517

BVS IEC

Instituto Evandro Chagas

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iPS cells: mapping the policy issues.

From patients to partners: participant-centric initiatives in biomedical research.

Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.

Innovation incentives or corrupt conflicts of interest? Moving beyond Jekyll and Hyde in regulating biomedical academic-industry relationships.

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository.

Scientific self-regulation-so good, how can it fail? Commentary on "The problems with forbidding science".

Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients.

Rules of engagement.

Beyond financial conflicts of interest: Institutional oversight of faculty consulting agreements at schools of medicine and public health.

Research sharing, ethics and public benefit.

Availability and quality of mobile health app privacy policies.

Position statement on the provision and procurement of human eggs for stem cell research.

Science aside: the trajectory of embryonic stem cell research in the USA.

Responsibility rewarded: ethics, engagement, and scientific autonomy in the labyrinth of the minotaur.

Overseeing innovative therapy without mistaking it for research: a function-based model based on old truths, new capacities, and lessons from stem cells.

State payer mandates to cover care in US oncology trials: do science and ethics matter?

Multidimensional results reporting to participants in genomic studies: getting it right.

Leaping the Data Chasm: Structuring Donation of Clinical Data for Healthcare Innovation and Modeling.

Patients beware: commercialized stem cell treatments on the web.

Retroactive ethics in rapidly developing scientific fields.