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1.
Qual Health Res ; 34(10): 883-894, 2024 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-38205737

RESUMO

Photovoice is a type of visual research method which supports participants to reflect upon their experiences by capturing digital images. It is a methodology that is routinely used with groups that could be considered vulnerable, as a way of allowing participants to tell their stories for themselves. This article details the process of conducting a Photovoice study with individuals in recovery from problem substance use and reflects on the methodological benefits and challenges of utilising a visual research methodology with this population. Researchers wishing to conduct a Photovoice study with individuals in recovery should be mindful of striking a delicate balance between respecting an individual's autonomy and ensuring their wellbeing. Although ethically complex, Photovoice is an ideal method for research with this population as it allows participants to convey meaning and introduce narratives for themselves in an engaging way.


Assuntos
Fotografação , Transtornos Relacionados ao Uso de Substâncias , Humanos , Transtornos Relacionados ao Uso de Substâncias/psicologia , Pesquisa Qualitativa , Feminino , Masculino , Narração , Projetos de Pesquisa , Adulto
2.
Qual Health Res ; : 10497323241274767, 2024 Sep 19.
Artigo em Inglês | MEDLINE | ID: mdl-39299269

RESUMO

Visual methods in mental health research have been extensively explored and utilized following the expanse of art-therapy. The existing literature shows visual arts as a valuable research method with multi-fold benefits for both researchers and research participants. However, the way contemporary art is understood, conceptualized, and experienced has been challenged by the current digital advancements in our society. Despite heated debates whether AI may diminish the value of human creativity, AI-generated art is a complex reality that started to influence the way visual research is conducted. Within this context, researchers employing visual methods need to develop a deeper understanding of this topic. For this purpose, this article explores the concept of AI-generated images with a focus on benefits and limitations when applied to mental health research and potentially other areas of health and social care. As this is an emerging topic, more research on the effectiveness and therapeutic value of AI-generated images is required beyond the current anecdotical evidence, from the perspective of the researchers and research participants.

3.
Behav Res Methods ; 55(1): 38-57, 2023 01.
Artigo em Inglês | MEDLINE | ID: mdl-35260965

RESUMO

Information on peripheral color perception is far from sufficient, since it has predominantly been obtained using small stimuli, limited ranges of eccentricities, and sophisticated experimental conditions. Our goal was to consider the possibility of facilitating technical realization of the classical method of asymmetric color matching (ACM) developed by Moreland and Cruz (1959) for assessing appearance of color stimuli in the peripheral visual field (VF). We adopted the ACM method by employing two smartphones to implement matching procedure at various eccentricities. Although smartphones were successfully employed in vision studies, we are aware that some photometric parameters of smartphone displays are not sufficiently precise to ensure accurate color matching in foveal vision; moreover, certain technical characteristics of commercially available devices are variable. In the present study we provided evidence that, despite these shortages, smartphones can be applied for general and wide investigations of the peripheral vision. In our experiments, the smartphones were mounted on a mechanical perimeter to simultaneously present colored stimuli foveally and peripherally. Trying to reduce essential discomfort and fatigue experienced by most observers in peripheral vision studies, we did not apply bite bars, pupil dilatation, and Maxwellian view. The ACM measurements were performed without prior training of observers and in a wide range of eccentricities, varying between 0 and 95°. The results were presented in the HSV (hue, saturation, value) color space coordinates as a function of eccentricity and stimulus luminance. We demonstrated that our easy-to-conduct method provided a convenient means to investigate color appearance in the peripheral vision and to assess inter-individual differences.


Assuntos
Visão de Cores , Humanos , Smartphone , Percepção Visual , Campos Visuais , Percepção de Cores
4.
Anthropol Med ; 29(2): 175-192, 2022 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-34286642

RESUMO

This paper analyses the lived experiences of people living with HIV in South Africa through the use of body mapping as a visual research method, by focusing on the physical and symbolic use of the body within the broader context of anthropology and medical anthropology. The study consists of an empirical analysis of the body maps themselves and the accompanied narratives of seven participants, six female and one male participant living with HIV in South Africa. Drawing upon theories and literature on theorising the body in medical anthropology and visual research, this study explores the significance of this practice as a visual research method in understanding the nuanced lived experiences of people living with HIV by highlighting the individuality of the body and emotions; embodied experiences: a bio-cultural approach; and the body politic: social injustice. The results of this study illustrate that body mapping is a unique visual research method, that explores the body as the vehicle in which we exist within the world, while containing a vast amount of layered interpretive and cultural meanings, which are key to understanding the lived experience of people from marginalised groups.


Assuntos
Infecções por HIV , Antropologia Cultural , Antropologia Médica , Feminino , Humanos , Masculino , Narração , África do Sul
5.
Health Promot Pract ; 22(2_suppl): 2S-7S, 2021 12.
Artigo em Inglês | MEDLINE | ID: mdl-34664521

RESUMO

This special collection of Health Promotion Practice introduces critical narrative intervention (CNI) as a key theoretical framing for an asset-based, narrative, and participatory approach to promoting health and addressing social inequality. Innovative digital and visual methodologies highlighted in this special collection-comics and graphic novels, cellphilms and other participatory film, story booths, digital storytelling, and photovoice-are changing the way critical public health researchers and practitioners forge new knowledge, creating new possibilities for interdisciplinary and activist-based inquiry. Public health research and engagement efforts that critically contend with historically repressive structures and intervene through narrative and participatory processes to enact change with and for disenfranchised communities are long overdue. This special collection showcases six CNI projects that promote equity and justice in the context of LGBTQ, nonbinary, and other gender-diverse young people; people who inject drugs living with hepatitis C virus; young women who trade sex; undocumented and formerly undocumented immigrants; and people living with HIV/AIDS. It is our intent that this collection of exemplars can serve as a guidepost for practitioners and researchers interested in expanding the scope of critical public health praxis. Individually and collectively, the special collection illustrates how CNI can create space for the increased representation of historically silenced populations, redress stigma, and provoke important questions to guide a new era of health equity research.


Assuntos
Equidade em Saúde , Adolescente , Comunicação , Feminino , Promoção da Saúde/métodos , Humanos , Narração , Saúde Pública
6.
BMC Nurs ; 19: 28, 2020.
Artigo em Inglês | MEDLINE | ID: mdl-32327935

RESUMO

BACKGROUND: The presence of family members and their active involvement in caring for hospitalised children is an established practice in many African paediatric settings, with family members often regarded as a resource. This aspect of African paediatric nursing practice lacks formal expression or a clear conceptual basis, and difficulties arise when applying concepts of family involvement originating from the culturally distinct practice environments of higher resourced settings including Europe and America. The aim of this study was to articulate a nurse-led practice innovation intended to facilitate family involvement in the care of hospitalised children, observed in a paediatric inpatient ward in a district hospital in rural KwaZulu-Natal, South Africa. METHODS: A qualitative case study design was used. Data collection included visual research methods (graphic facilitation, sociograms and photo-elicitation) as well as a focus group, interviews and practice observation. Activities associated with 20 nurses and 22 mother-child dyads were observed. Data were subjected to content analysis, with Standards for Reporting Qualitative Research (SRQR) applied. RESULTS: Findings relate to six aspects of practice, categorised thematically as: preserving the mother-child pair; enabling continuous presence; psychological support and empathy; sharing knowledge; mothers as a resource; and belief and trust. CONCLUSION: The nursing practices and organisational policies observed in this setting relating to the facilitation of continuous maternal presence represent a distinctive nursing practice innovation. This deliberate practice contrasts with models of care provision which originate in higher resourced settings including Europe and America, such as Family Centred Care, and contrasts with informal practices in local African settings which tolerate the presence of mothers in other settings, as well as local institutional policies which limit mothers' presence to varying extents.

7.
Hum Reprod ; 34(9): 1735-1745, 2019 09 29.
Artigo em Inglês | MEDLINE | ID: mdl-31411328

RESUMO

STUDY QUESTION: What are the views, experiences and healthcare needs of infertile women from a minority ethnic or religious background living in Wales? SUMMARY ANSWER: Women from ethnic and religious minority backgrounds consider that their communities have highly pronatalistic attitudes and stigmatize infertility, and express the need for more infertility education (for themselves and their communities), as well as more socio-culturally and interpersonally sensitive fertility care. WHAT IS ALREADY KNOWN: Some people from minority ethnic or religious groups perceive pressure to conceive from their communities, experience social costs when they are unable to have children and stressful interactions with the fertility healthcare system while attempting to conceive. STUDY DESIGN, SIZE, DURATION: This study was based on a one-day drawing workshop to collect visual (artwork produced by participants) and textual (all conversations and discussions during the workshop) data about the participants' views and experiences of infertility and their fertility care needs. PARTICIPANTS/MATERIALS, SETTING, METHODS: Participants were nine adult women with a minority ethnic or religious status living in Wales, UK, who were experiencing or had experienced infertility in the past. The workshop comprised five activities: (i) small and large group discussion of infertility-related drawings, (ii) lide-based lecture consisting of an introduction to the basics of drawing objects and people and (iii) thoughts and feelings, (iv) free drawing session and (v) group sharing. Audio recordings of the workshop were transcribed verbatim. Textual data was analysed with thematic analysis. Risk for bias was addressed via individual coding by two authors followed by joint presentation and discussion of results with the research team and participants. MAIN RESULTS AND THE ROLE OF CHANCE: Forty-one themes were identified and grouped into eight distinct higher order themes. These themes described the emotional, relational and social burden of infertility experienced by women, which they perceived to result from their communities' highly pronatalistic attitudes and stigmatization of infertility. Themes also captured women's adaptive coping strategies and critical attitude towards pronatalist ideologies. Lastly, themes captured their overall positive evaluation of their fertility health care, their desire for more infertility education (for themselves and their communities) and for culturally competent and interpersonally sensitive care. LIMITATIONS, REASONS FOR CAUTION: Our participants were a small, non-random sample recruited in collaboration with a local charity, which may mean that all participants were well integrated in their communities. Analysis focused on capturing commonalities in participants' experiences and this may sometimes result in homogenising diverse experiences. WIDER IMPLICATIONS OF THE FINDINGS: More education about the infertility experiences of minority ethnic and religious groups at the community and healthcare delivery level may translate into lessened negative attitudes towards infertility and more culturally competent care, which can be beneficial for women. STUDY FUNDING/COMPETING INTEREST(S): This research was funded by Welsh Crucible. The authors have no conflict of interests to declare.


Assuntos
Cristianismo/psicologia , Aconselhamento/métodos , Assistência à Saúde Culturalmente Competente/métodos , Educação/métodos , Infertilidade Feminina/etnologia , Infertilidade Feminina/epidemiologia , Islamismo/psicologia , Adaptação Psicológica , Adulto , Emoções , Etnicidade/psicologia , Feminino , Humanos , Infertilidade Feminina/psicologia , Pessoa de Meia-Idade , Relações Médico-Paciente , País de Gales/epidemiologia
8.
Qual Health Res ; 26(13): 1787-1801, 2016 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-27184518

RESUMO

Digital storytelling (DST) engages participants in a group-based process to create and share narrative accounts of life events. We present key evaluation findings of a 2-year, mixed-methods study that focused on effects of participating in the DST process on young Puerto Rican Latina's self-esteem, social support, empowerment, and sexual attitudes and behaviors. Quantitative results did not show significant changes in the expected outcomes. However, in our qualitative findings we identified several ways in which the DST made positive, health-bearing effects. We argue for the importance of "measuring down" to reflect the locally grounded, felt experiences of participants who engage in the process, as current quantitative scales do not "measure up" to accurately capture these effects. We end by suggesting the need to develop mixed-methods, culturally relevant, and sensitive evaluation tools that prioritize process effects as they inform intervention and health promotion.

9.
Appetite ; 85: 118-25, 2015 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-25464023

RESUMO

Food stored, prepared, cooked and eaten at home contributes to foodborne disease which, globally, presents a significant public health burden. The aim of the study reported here was to investigate, analyse and interpret domestic kitchen practices in order to provide fresh insight about how the domestic setting might influence food safety. Using current theories of practice meant the research, which drew on qualitative and ethnographic methods, could investigate people and material things in the domestic kitchen setting whilst taking account of people's actions, values, experiences and beliefs. Data from 20 UK households revealed the extent to which kitchens are used for a range of non-food related activities and the ways that foodwork extends beyond the boundaries of the kitchen. The youngest children, the oldest adults and the family pets all had agency in the kitchen, which has implications for preventing foodborne disease. What was observed, filmed and photographed was not a single practice but a series of entangled encounters and actions embedded and repeated, often inconsistently, by the individuals involved. Households derived logics and principles about foodwork that represented rules of thumb about 'how things are done' that included using the senses and experiential knowledge when judging whether food is safe to eat. Overall, food safety was subsumed within the practice of 'being' a household and living everyday life in the kitchen. Current theories of practice are an effective way of understanding foodborne disease and offer a novel approach to exploring food safety in the home.


Assuntos
Doenças Transmitidas por Alimentos/prevenção & controle , Conhecimentos, Atitudes e Prática em Saúde , Adulto , Idoso , Idoso de 80 Anos ou mais , Culinária , Características da Família , Feminino , Contaminação de Alimentos/prevenção & controle , Microbiologia de Alimentos , Inocuidade dos Alimentos , Inquéritos Epidemiológicos , Humanos , Masculino , Pessoa de Meia-Idade , Gravidez , Pesquisa Qualitativa , Reino Unido
10.
J Neurosci Methods ; 408: 110173, 2024 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-38782125

RESUMO

BACKGROUND: The use of Rhesus macaques in vision research is crucial due to their visual system's similarity to humans. While invasive techniques have been the norm, there has been a shift towards non-invasive methods, such as facemasks and head molds, to enhance animal welfare and address ethical concerns. NEW METHOD: We present a non-invasive, 3D-printed chinrest with infrared sensors, adapted from canine research, allowing for accurate eye movement measurements and voluntary animal participation in experiments. RESULTS: The chinrest method showed a 16% and 28% increase in average trial numbers for Monkey 1 and Monkey 2, respectively, compared to the traditional headpost method. The engagement was high, with monkeys performing over 500 trials per session and initiating a new trial after an average intertrial interval of approximately 1 second. The hit rate improved by about 10% for Monkey 1 in the chinrest condition, and the fixation precision, measured by the standard deviation of gaze positions, was significantly better in the chinrest condition, with Monkey 1 showing a reduction in fixation imprecision from 0.26° to 0.17° in the X-axis. COMPARISON WITH EXISTING METHODS: The chinrest approach showed significant improvements in trial engagement and reduction in aborted trials due to fixation breaks, indicating less stress and potentially improved data quality compared to previous non-invasive methods. CONCLUSIONS: The chinrest method offers a significant advancement in primate cognitive testing by allowing for precise data collection while addressing animal welfare concerns, possibly leading to better scientific outcomes and a paradigm shift in primate research methodologies.


Assuntos
Macaca mulatta , Animais , Movimentos Oculares/fisiologia , Masculino , Restrição Física/métodos , Medições dos Movimentos Oculares , Impressão Tridimensional
11.
J Empir Res Hum Res Ethics ; 16(1-2): 3-14, 2021.
Artigo em Inglês | MEDLINE | ID: mdl-33550880

RESUMO

Participatory visual research can offer critical insight into the experiences of those most affected by health issues. As these methods are increasingly used to research sensitive topics, there is a need for a clear ethical framework to guide best practice on the part of researchers and research ethics committees. Here we reflect on a project where we used digital storytelling as a participatory visual methodology to explore HIV treatment adherence in rural South Africa, with a focus on the ethical issues we encountered during the lifetime of the project. To ground our reflections, we use the framework for ethical research developed by Emanuel et al., and the adaptation of this framework for social science proposed by Wassenaar and Mamotte. We suggest that fellow PVM practitioners and REC members draw on this holistic framework to support the optimal application of PVM in health research.


Assuntos
Comitês de Ética em Pesquisa , Ética em Pesquisa , Comunicação , Humanos , Projetos de Pesquisa , África do Sul
12.
Am J Pharm Educ ; 84(1): 7123, 2020 01.
Artigo em Inglês | MEDLINE | ID: mdl-32292188

RESUMO

Objective. To explore the use of a qualitative visual research method, analysis of Lifenets, to understand students' conceptions of their social and material worlds. Methods. The Lifenet View model and drawing exercise invites students to create a cognitive map of the self in social and material contexts. Ninety-five undergraduate students enrolled in an online undergraduate human development course created Lifenet drawings depicting their connections to people, places, and things at two points in time: the present and the distant future. They also wrote essays describing their drawings. Researchers used an inductive analytical process to identify patterns in the set of drawings, developing a coding taxonomy used to systematically analyze the data. Results. Results offered insights into participants' current self-perceptions and their expectations for the future. Analysis of Lifenets allowed researchers to document and gain insight into participants' perspectives on their current relationships, career aspirations, and assumptions about aging. While students often depicted strong ties to family, friends, and religious entities, few students expressed ties to the secular institutions that define civic and professional life. Conclusion. The Lifenet View exercise may provide instructors with a way to better understand students' social circumstances and to identify and address specific gaps in the professional education curriculum. Use of the Lifenet View exercise in the pharmacy curriculum could provide valuable opportunities for career exploration and expanded cultural awareness of self and others.


Assuntos
Educação em Farmácia/métodos , Estudantes de Farmácia/psicologia , Adulto , Currículo , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Adulto Jovem
13.
Neurosci Lett ; 728: 134970, 2020 05 29.
Artigo em Inglês | MEDLINE | ID: mdl-32302700

RESUMO

BACKGROUND: Gabor patterns are defined as the product of a sinusoid function and a Gaussian envelope and are commonly used in visual and attentional research due to their ability to selectively stimulate the primary visual cortex. The aim of this study was to investigate whether Gabor patterns can be used as visual stimuli in the rodent continuous performance test (rCPT), a newly developed task to study attentional function and impulsivity. METHODS: Sixteen male C57BL/6 J mice were trained in the rCPT using Gabor patterns as visual stimuli and their performance was compared to sixteen mice that were trained using traditional high-contrast pattern stimuli. Mice were compared during training, baseline, and a variable stimulus duration probe. RESULTS: The Gabor pattern group required more training sessions to reach criteria than the group with high-contrast patterns. At baseline, the Gabor pattern group showed a higher false alarm rate and a lower discriminability index. As task difficulty increased during the variable stimulus duration probe, differences between groups became more pronounced. Specifically, the Gabor pattern group showed decreased hit rate and discriminability index, as well as increased false alarm rate and premature responses compared to the high-contrast pattern group. CONCLUSION: This feasibility study showed that it is possible to use Gabor patterns as visual stimuli in the rCPT, although it increases task demands. We discuss the differences between Gabor patterns and high-contrast patterns in the context of translatability of animal models in visual and cognitive research and give two examples of applicability.


Assuntos
Atenção/fisiologia , Estimulantes do Sistema Nervoso Central/farmacologia , Reconhecimento Visual de Modelos/fisiologia , Estimulação Luminosa , Percepção Visual/efeitos dos fármacos , Animais , Comportamento Impulsivo/efeitos dos fármacos , Masculino , Camundongos Endogâmicos C57BL , Estimulação Luminosa/métodos
14.
Nutrients ; 11(8)2019 Aug 14.
Artigo em Inglês | MEDLINE | ID: mdl-31416148

RESUMO

Young men do not consume enough fruit and vegetables, increasing their risk for future ill health. To understand what motivates their food choice, a novel conceptual framework that included key concepts from the theory of planned behavior and risk theory was developed. Thirty-four British men (18-24 years) took part in focus groups, where innovative visual qualitative methods provided insight into participants' motivations for fruit and vegetable consumption. Based on information from food diaries, participants were described as high (4+ portions) or low (up to 3 portions) consumers. Interviews were coded thematically into concepts and characteristics of the conceptual framework. Young men were generally unaware of the UK government's recommendation to consume 5 portions of fruit and vegetable a day and chronic health risks associated with low consumption. High consumers were motivated by perceived risk, perceived behavioral control, and health-conscious self-identity. They held internalized, holistic beliefs about diet and health, whereas low consumers' beliefs were externalized, based on physical appearances. Low consumers were driven by social influences to consume cheap, easily available convenience foods. The conceptual framework differentiated levels of fruit and vegetable consumption between the two groups and provided new information about young men's motivations for fruit and vegetable consumption.


Assuntos
Dieta Saudável , Comportamento Alimentar , Frutas , Motivação , Valor Nutritivo , Tamanho da Porção , Recomendações Nutricionais , Verduras , Adolescente , Fatores Etários , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Fatores de Proteção , Comportamento de Redução do Risco , Fatores Sexuais , Determinantes Sociais da Saúde , Fatores Socioeconômicos , Adulto Jovem
15.
Glob Public Health ; 14(5): 722-736, 2019 05.
Artigo em Inglês | MEDLINE | ID: mdl-30351190

RESUMO

With the need to design and evaluate Community Health Worker (CHW) programmes from a more human-centred perspective, researchers and programme managers are exploring the role of participatory visual methodologies (PVMs). This review identifies, maps, and assesses the quality of current literature that describes the use of PVMs with CHWs. It includes material from the grey literature and 10 major databases between 1978-2018. A Critical Appraisal Skills Programme (CASP) Qualitative checklist was used to assess the overall quality of the included studies. 12 original studies met the inclusion criteria. The studies were located in North America (n = 9) or sub-Saharan Africa (n = 3), with photovoice (n = 6) and digital storytelling (n = 5) being the most commonly used forms of PVMs. The overall quality of the evidence described in these articles was high, but it was notable that seven studies did not fully report the ethical considerations of their work. The studies revealed that PVMs can help assist CHWs' reflective practice and understanding of complex health issues, as well as identifying key issues in the community to potentially leverage social action.


Assuntos
Agentes Comunitários de Saúde , Atenção à Saúde , Fotografação , África Subsaariana , Comunicação , Humanos , Papel Profissional
16.
Behav Sci (Basel) ; 8(8)2018 Jul 26.
Artigo em Inglês | MEDLINE | ID: mdl-30050003

RESUMO

Sexual violence in the higher education is an epidemic of global proportions. Scholars conclude that the individual and collective silence that surrounds such violence enables its perpetration and that violence will only be eradicated when we break this silence. In this paper, we used two participatory visual methods (PVM), collage and storytelling, to explore what sexual violence at university looks like and what it means to woman students. Two groups of student teachers in two South African universities were engaged in collage and storytelling workshops in late 2017 and early 2018, respectively. We thematically analyzed the issues that emerged from the data, drawing on transformative learning theory to explore how our approach might help women students to break the silence around sexual violence and stimulate critical dialogue to address it. Our analysis suggests that these visual tools enabled deep reflections on the meaning and impact of sexual violence, particularly for women. In addition, the participatory process supported introspection about their experiences of sexual violence and their responses to it as bystanders in and around campus. More importantly, they discussed how they, as young women, might break the silence and sustain new conversations about gender and gender equality in institutions and beyond.

17.
Syst Rev ; 7(1): 41, 2018 03 05.
Artigo em Inglês | MEDLINE | ID: mdl-29506568

RESUMO

BACKGROUND: Digital storytelling is an arts-based research method with potential to elucidate complex narratives in a compelling manner, increase participant engagement, and enhance the meaning of research findings. This method involves the creation of a 3- to 5-min video that integrates multimedia materials including photos, participant voices, drawings, and music. Given the significant potential of digital storytelling to meaningfully capture and share participants' lived experiences, a systematic review of its use in healthcare research is crucial to develop an in-depth understanding of how researchers have used this method, with an aim to refine and further inform future iterations of its use. METHODS: We aim to identify and synthesize evidence on the use, impact, and ethical considerations of using digital storytelling in health research. The review questions are as follows: (1) What is known about the purpose, definition, use (processes), and contexts of digital storytelling as part of the research process in health research? (2) What impact does digital storytelling have upon the research process, knowledge development, and healthcare practice? (3) What are the key ethical considerations when using digital storytelling within qualitative, quantitative, and mixed method research studies? Key databases and the grey literature will be searched from 1990 to the present for qualitative, quantitative, and mixed methods studies that utilized digital storytelling as part of the research process. Two independent reviewers will screen and critically appraise relevant articles with established quality appraisal tools. We will extract narrative data from all studies with a standardized data extraction form and conduct a thematic analysis of the data. To facilitate innovative dissemination through social media, we will develop a visual infographic and three digital stories to illustrate the review findings, as well as methodological and ethical implications. DISCUSSION: In collaboration with national and international experts in digital storytelling, we will synthesize key evidence about digital storytelling that is critical to the development of methodological and ethical expertise about arts-based research methods. We will also develop recommendations for incorporating digital storytelling in a meaningful and ethical manner into the research process. SYSTEMATIC REVIEW REGISTRATION: PROSPERO registry number CRD42017068002 .


Assuntos
Arte , Comunicação , Pesquisa sobre Serviços de Saúde , Narração , Humanos , Projetos de Pesquisa
18.
Int J Qual Stud Health Well-being ; 13(1): 1511767, 2018 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-30176152

RESUMO

PURPOSE: This article explores experiences of the acute-care environment as a setting for end-of-life (EoL) care from the perspective of family members of a dying person. METHOD: We used participant-produced photographs in conjunction with follow-up interviews with nine family members to persons at the EoL, cared for in two acute-care settings. RESULTS: The interpretive description analysis process resulted in three constructed themes-Aesthetic and un-aesthetic impressions, Space for privacy and social relationships, and Need for guidance in crucial times. Aspects of importance in the physical setting related to aesthetics, particularly in regard to sensory experience, and to a need for enough privacy to facilitate the maintenance of social relationships. Interactions between the world of family members and that of professionals were described as intrinsically related to guidance about both the material and immaterial environment at crucial times. CONCLUSION: The care environment, already recognized to have an impact in relation to patients, is concluded to also affect the participating family members in this study in a variety of ways.


Assuntos
Cuidados Críticos , Planejamento Ambiental , Família , Assistência Terminal , Adulto , Atitude , Estética , Feminino , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Fotografação , Privacidade , Relações Profissional-Família , Inquéritos e Questionários , Adulto Jovem
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