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Practical Considerations for Using Online Methods to Engage Patients in Guideline Development.
Grant, Sean; Hazlewood, Glen S; Peay, Holly L; Lucas, Ann; Coulter, Ian; Fink, Arlene; Khodyakov, Dmitry.
Afiliação
  • Grant S; Behavioral and Policy Sciences Department, RAND Corporation, 1776 Main Street, PO Box 2138, Santa Monica, CA, 90407-2138, USA. sgrant@rand.org.
  • Hazlewood GS; Department of Medicine, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
  • Peay HL; RTI International, Research Triangle Park, NC, USA.
  • Lucas A; Parent Project Muscular Dystrophy, Hackensack, NJ, USA.
  • Coulter I; Economics, Sociology, and Statistics Department, RAND Corporation, Santa Monica, CA, USA.
  • Fink A; David Geffen School of Medicine, University of California-Los Angeles, Los Angeles, CA, USA.
  • Khodyakov D; Behavioral and Policy Sciences Department, RAND Corporation, 1776 Main Street, PO Box 2138, Santa Monica, CA, 90407-2138, USA.
Patient ; 11(2): 155-166, 2018 Apr.
Article em En | MEDLINE | ID: mdl-29030831
Clinical practice guidelines (CPGs) have been widely used in healthcare policy, practice, and for suggesting future research. As patients increasingly become involved in CPG development to produce patient-centered recommendations, more research is needed on methods to engage patients, particularly methods allowing for scalable engagement of large, diverse, and geographically distributed groups of patients. In this article, we discuss practical considerations for using online methods to engage patients in CPG development. To inform this discussion, we conducted a rapid, systematic review of literature on patient involvement in CPG development and used qualitative evidence synthesis techniques to make inferences about potential advantages and challenges of using online methods to engage patients in this context. We identified 79 articles containing information about involving patients in CPG development. Potential advantages include the ability of online methods to facilitate greater openness and honesty by patients, as well as to reflect the diversity of patient views, which in turn further improve the utility of CPGs. Potential challenges of using online methods may include the extra skill, time, and certain types of resources that may be needed for patient engagement, as well as the difficulty engaging specific patient populations. However, these challenges are mitigated by growing calls for patient engagement as normative for CPG development in addition to patients' increasing familiarity with online technologies. These practical considerations should be examined empirically as guideline development groups further explore the appropriateness of using online methods to engage patients across different stages of CPG development.
Assuntos

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Participação do Paciente / Guias de Prática Clínica como Assunto / Internet Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research / Systematic_reviews Limite: Humans Idioma: En Revista: Patient Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Estados Unidos

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Participação do Paciente / Guias de Prática Clínica como Assunto / Internet Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research / Systematic_reviews Limite: Humans Idioma: En Revista: Patient Ano de publicação: 2018 Tipo de documento: Article País de afiliação: Estados Unidos