Colorectal Cancer Registration: Data Approach to Knowledge.

ABSTRACT

For ensuring the quality of data and facilitating data exchange between healthcare providers and professional organizations, it is necessary to define a standard data set. The main aim of this study was to define a national minimum data set for colorectal cancer in Iran. To develop this data set, a combination of literature review and two rounds of a modified Delphi technique were used. An initial checklist was proposed based on a literature review and comparative studies. Based on the literature review, main categories, including demographic information, diagnostic information, treatment information, clinical status assessment information, and clinical trial information were proposed. In this study, the national minimum data set of colorectal cancer was collected. Developing this data set through standard contents can improve effective health information exchange for both healthcare providers and health information systems.