Motivations and Decision-Making of Adult Sickle Cell Patients in High-Risk Clinical Research.

Cho, Hae Lin; Kim, Scott Y H; Fitzhugh, Courtney; Hsieh, Matthew; Tisdale, John; Grady, Christine

Cho, Hae Lin; Kim, Scott Y H; Fitzhugh, Courtney; Hsieh, Matthew; Tisdale, John; Grady, Christine.

Afiliação

Cho HL; Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland.
Kim SYH; Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland.
Fitzhugh C; Laboratory of Early Sickle Mortality Prevention, National Heart Lung Blood Institute, National Institutes of Health, Bethesda, Maryland.
Hsieh M; Cellular and Molecular Therapeutics Laboratory, National Heart Lung Blood Institute, National Institutes of Health, Bethesda, Maryland.
Tisdale J; Cellular and Molecular Therapeutics Laboratory, National Heart Lung Blood Institute, National Institutes of Health, Bethesda, Maryland.
Grady C; Department of Bioethics, Clinical Center, National Institutes of Health, Bethesda, Maryland. Electronic address: cgrady@nih.gov.

Biol Blood Marrow Transplant ; 26(6): 1225-1232, 2020 06.

Article em En | MEDLINE | ID: mdl-32200120

Assuntos

Anemia Falciforme; Motivação; Adulto; Anemia Falciforme/terapia; Tomada de Decisões; Humanos; Pesquisa Qualitativa; Estudos Retrospectivos

Palavras-chave

Gene therapy; Informed consent; Motivations; Sickle cell disease; Stem cell transplantation; Understanding

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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Anemia Falciforme / Motivação Tipo de estudo: Etiology_studies / Observational_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Limite: Adult / Humans Idioma: En Revista: Biol Blood Marrow Transplant Assunto da revista: HEMATOLOGIA / TRANSPLANTE Ano de publicação: 2020 Tipo de documento: Article

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