Exploring the impact of patient and public involvement with young people with a chronic condition: A multilevel analysis.
Child Care Health Dev
; 47(3): 349-356, 2021 05.
Article
em En
| MEDLINE
| ID: mdl-33377217
ABSTRACT
BACKGROUND:
Patient and Public Involvement (PPI) of young people with a chronic condition (YPCC) receives increasing attention. However, evidence of its impact is lacking. This study explores the impact of PPI on outcomes of projects in health and social care, using quantitative measures.METHODS:
Data were collected from projects funded by a 4-year participatory program addressing the social position of YPCC. These projects addressed challenges associated with, for example, going to college with a physical disability, transitions in care and finding a job. Project coordinators filled out project reports with questions about PPI, that is, to what extent were YPCC involved, were they involved as co-deciders and were they involved in developing the project idea. YPCC filled out questionnaires with questions about PPI, that is, the number of PPI activities and self-perceived importance for the project. They also answered questions about the influence of the project on their social position. Based on these questions, a project outcome scale was developed.RESULTS:
The data concerned 17 projects and 146 YPCC. Variation existed in project outcomes, of which 27% was associated with differences between projects. Using multilevel analyses, a significant relation was found between the self-perceived importance of YPCC for the project and the project outcomes they experience (0.232, p < 0.01). There was no significant association with the other PPI variables.CONCLUSIONS:
This study provided some first quantitative evidence that PPI has a positive impact on the YPCC involved. It is suggested that the meaningfulness of PPI matters more to them than the number of activities and amount of influence provided to YPCC. We strongly recommend conducting more research that critically examines impact of PPI.Palavras-chave
Texto completo:
1
Base de dados:
MEDLINE
Assunto principal:
Participação do Paciente
/
Apoio Social
Limite:
Adolescent
/
Humans
Idioma:
En
Revista:
Child Care Health Dev
Ano de publicação:
2021
Tipo de documento:
Article
País de afiliação:
Holanda