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The Spinal Muscular Atrophy Health Index: Italian validation of a disease-specific outcome measure.
Sansone, Valeria A; Pirola, Alice; Lizio, Andrea; Greco, Lucia Catherine; Coratti, Giorgia; Casiraghi, Jacopo; Pane, Marika; Pera, Maria Carmela; Italiano, Cristina; Messina, Sonia; Pozzi, Susanna; Sframeli, Maria; D'Amico, Adele; Bertini, Enrico; Bruno, Claudio; Mauro, Luca; Salmin, Francesca; Stancanelli, Claudia; Pedemonte, Marina; Albamonte, Emilio; Zizzi, Christine; Heatwole, Chad; Mercuri, Eugenio.
Afiliação
  • Sansone VA; The NEMO Clinical Center in Milan, Milan, Italy; Neurorehabilitation Unit, University of Milan, Milan, Italy. Electronic address: valeria.sansone@centrocliniconemo.it.
  • Pirola A; The NEMO Clinical Center in Milan, Milan, Italy.
  • Lizio A; The NEMO Clinical Center in Milan, Milan, Italy.
  • Greco LC; The NEMO Clinical Center in Milan, Milan, Italy.
  • Coratti G; Pediatric Neurology, Università Cattolica del Sacro Cuore, Rome, Italy.
  • Casiraghi J; The NEMO Clinical Center in Milan, Milan, Italy.
  • Pane M; Pediatric Neurology, Università Cattolica del Sacro Cuore, Rome, Italy; Centro Clinico Nemo, Fondazione Policlinico Universitario Agostino Gemelli IRCCS, Rome, Italy.
  • Pera MC; Pediatric Neurology, Università Cattolica del Sacro Cuore, Rome, Italy.
  • Italiano C; The NEMO Clinical Center in Milan, Milan, Italy.
  • Messina S; Department of Clinical and Experimental Medicine, University of Messina, Messina, Italy; Nemo SUD Clinical Center, University Hospital "G. Martino", Messina, Italy.
  • Pozzi S; The NEMO Clinical Center in Milan, Milan, Italy.
  • Sframeli M; Nemo SUD Clinical Center, University Hospital "G. Martino", Messina, Italy.
  • D'Amico A; Department of Neurosciences, Unit of Neuromuscular and Neurodegenerative Disorders, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
  • Bertini E; Department of Neurosciences, Unit of Neuromuscular and Neurodegenerative Disorders, Bambino Gesù Children's Hospital, IRCCS, Rome, Italy.
  • Bruno C; Center of Translational and Experimental Myology, IRCCS Istituto Giannina Gaslini, Genoa, Italy.
  • Mauro L; The NEMO Clinical Center in Milan, Milan, Italy.
  • Salmin F; The NEMO Clinical Center in Milan, Milan, Italy.
  • Stancanelli C; Nemo SUD Clinical Center, University Hospital "G. Martino", Messina, Italy.
  • Pedemonte M; Center of Translational and Experimental Myology, IRCCS Istituto Giannina Gaslini, Genoa, Italy.
  • Albamonte E; The NEMO Clinical Center in Milan, Milan, Italy.
  • Zizzi C; University of Rochester, NY, United States; Center for Health and Technology (Outcomes Division), Rochester, NY, United States.
  • Heatwole C; University of Rochester, NY, United States; Center for Health and Technology (Outcomes Division), Rochester, NY, United States.
  • Mercuri E; Pediatric Neurology, Università Cattolica del Sacro Cuore, Rome, Italy.
Neuromuscul Disord ; 31(5): 409-418, 2021 05.
Article em En | MEDLINE | ID: mdl-33773884
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Atrofia Muscular Espinal / Efeitos Psicossociais da Doença / Medidas de Resultados Relatados pelo Paciente Tipo de estudo: Etiology_studies / Incidence_studies / Observational_studies / Qualitative_research / Risk_factors_studies Limite: Adolescent / Adult / Child / Female / Humans / Male / Middle aged País/Região como assunto: Europa Idioma: En Revista: Neuromuscul Disord Assunto da revista: NEUROLOGIA Ano de publicação: 2021 Tipo de documento: Article
Texto completo
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Atrofia Muscular Espinal / Efeitos Psicossociais da Doença / Medidas de Resultados Relatados pelo Paciente Tipo de estudo: Etiology_studies / Incidence_studies / Observational_studies / Qualitative_research / Risk_factors_studies Limite: Adolescent / Adult / Child / Female / Humans / Male / Middle aged País/Região como assunto: Europa Idioma: En Revista: Neuromuscul Disord Assunto da revista: NEUROLOGIA Ano de publicação: 2021 Tipo de documento: Article