Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases.

Fratantoni, Karen; Livingston, Jessica; Schellinger, Sandra E; Aoun, Samar M; Lyon, Maureen E

Fratantoni, Karen; Livingston, Jessica; Schellinger, Sandra E; Aoun, Samar M; Lyon, Maureen E.

Afiliação

Fratantoni K; Center for Translational Science, Children's Research Institute, Children's National Hospital, Washington, DC 20010, USA.
Livingston J; Division of General and Community Pediatrics, Children's National Hospital, Washington, DC 20010, USA.
Schellinger SE; Center for Translational Science, Children's Research Institute, Children's National Hospital, Washington, DC 20010, USA.
Aoun SM; Livio Health, 401 Harding St NE, Minneapolis, MN 55413, USA.
Lyon ME; Perron Institute for Neurological and Translational Science, Nedlands, WA 6009, Australia.

Children (Basel) ; 9(3)2022 Mar 21.

Article em En | MEDLINE | ID: mdl-35327817

Palavras-chave

advance care planning; communication; decision-making; family caregiver; palliative care; pediatric; psychosocial care; rare disease

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Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Qualitative_research Idioma: En Revista: Children (Basel) Ano de publicação: 2022 Tipo de documento: Article País de afiliação: Estados Unidos

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