Ranking the importance of their own diseases: A positioning analysis in rheumatic patients and their proxies.
Reumatol Clin (Engl Ed)
; 18(7): 429-434, 2022.
Article
em En
| MEDLINE
| ID: mdl-35940676
ABSTRACT
INTRODUCTION/OBJECTIVE:
To assess the positioning that patients with systemic lupus erythematosus (SLE), rheumatoid arthritis (RA), ankylosing spondylitis (AS) and their proxies give to their diseases.METHODS:
Subjects completed a self-administered questionnaire to rank 11 diseases from "worst" to "least bad". Then they defined the "worst" disease and ranked 10 diseases from highest to lowest importance from a list including "my rheumatic disease/my relative's disease". The lists of the included diseases represented the mindshare from a sample of healthy adults.RESULTS:
There were 570 respondents (104 SLE, 99 RA, 82 AS, and 285 proxies). Rheumatoid arthritis was considered the third-worst disease (recoded ranking first by 41% of patients and 43% proxies, second by 49% and 44%, and third by 10% and 13%). A disease that kills was the preferred definition for the worst disease. "My disease/my relative's disease" was ranked fourth in importance (first by 41% of patients, second by 38%, and third by 21%). Rankings were not associated with age, schooling, disease duration, or setting. DISCUSSION ANDCONCLUSIONS:
Most respondents ranked their own disease considerably lower than other non-rheumatic conditions.Palavras-chave
Texto completo:
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Base de dados:
MEDLINE
Assunto principal:
Artrite Reumatoide
/
Espondilite Anquilosante
/
Doenças Reumáticas
/
Lúpus Eritematoso Sistêmico
Limite:
Adult
/
Humans
Idioma:
En
Revista:
Reumatol Clin (Engl Ed)
Ano de publicação:
2022
Tipo de documento:
Article
País de afiliação:
Estados Unidos