Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS.

van Hoorn, Evelien S; Teela, Lorynn; Kuijlaars, Isolde A R; Fischer, Kathelijn; Gouw, Samantha C; Cnossen, Marjon H; Haverman, Lotte

van Hoorn, Evelien S; Teela, Lorynn; Kuijlaars, Isolde A R; Fischer, Kathelijn; Gouw, Samantha C; Cnossen, Marjon H; Haverman, Lotte.

Afiliação

van Hoorn ES; Erasmus MC, Erasmus University Medical Centre Rotterdam, Department of Public Health, Rotterdam, The Netherlands.
Teela L; Amsterdam University Medical Centres, University of Amsterdam, Emma Children's Hospital, Child and Adolescent Psychiatry & Psychosocial Care, Amsterdam Reproduction and Development, Amsterdam Public Health, Amsterdam, The Netherlands.
Kuijlaars IAR; Centre for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands.
Fischer K; Centre for Benign Haematology, Thrombosis and Haemostasis, Van Creveldkliniek, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands.
Gouw SC; Amsterdam UMC location University of Amsterdam, Emma Children's Hospital, Paediatric Haematology, Amsterdam, The Netherlands.
Cnossen MH; Erasmus MC Sophia Children's Hospital, Erasmus University Medical Centre Rotterdam, Department of Paediatric Haematology, The Netherlands.
Haverman L; Amsterdam University Medical Centres, University of Amsterdam, Emma Children's Hospital, Child and Adolescent Psychiatry & Psychosocial Care, Amsterdam Reproduction and Development, Amsterdam Public Health, Amsterdam, The Netherlands.

Haemophilia ; 29(1): 357-361, 2023 Jan.

Article em En | MEDLINE | ID: mdl-36395776

Assuntos

Transtornos Hemorrágicos; Medidas de Resultados Relatados pelo Paciente; Humanos

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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Medidas de Resultados Relatados pelo Paciente / Transtornos Hemorrágicos Limite: Humans Idioma: En Revista: Haemophilia Assunto da revista: HEMATOLOGIA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Holanda

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