Offering and Returning Secondary Findings in the Context of Exome Sequencing for Hearing Loss: Clinicians' Views and Experiences.

Notini, Lauren; Gaff, Clara; Savulescu, Julian; Vears, Danya F

Notini, Lauren; Gaff, Clara; Savulescu, Julian; Vears, Danya F.

Afiliação

Notini L; University of Melbourne, Carlton, Australia.
Gaff C; Biomedical Ethics Research Group, Murdoch Children's Research Institute, Parkville, Australia.
Savulescu J; Genomics in Society, Murdoch Children's Research Institute, Parkville, Australia.
Vears DF; Department of Paediatrics, University of Melbourne, Parkville, Australia.

AJOB Empir Bioeth ; 14(2): 74-83, 2023.

Article em En | MEDLINE | ID: mdl-36595590

Assuntos

Perda Auditiva; Pais; Lactente; Humanos; Criança; Recém-Nascido; Sequenciamento do Exoma; Estudos Longitudinais; Perda Auditiva/diagnóstico; Perda Auditiva/genética

Palavras-chave

Genome sequencing; ethics; genetic counseling; pediatrics; qualitative research; secondary findings

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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Pais / Perda Auditiva Tipo de estudo: Diagnostic_studies / Observational_studies / Prognostic_studies / Qualitative_research Limite: Child / Humans / Infant / Newborn Idioma: En Revista: AJOB Empir Bioeth Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Austrália

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