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Quality of life measurement in rosacea. Position statement of the European Academy of Dermatology and Venereology Task Forces on Quality of Life and Patient Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa.
Chernyshov, P V; Finlay, A Y; Tomas-Aragones, L; Steinhoff, M; Manolache, L; Pustisek, N; Dessinioti, C; Svensson, A; Marron, S E; Bewley, A; Salavastru, C; Dréno, B; Suru, A; Koumaki, D; Linder, D; Evers, A W M; Abeni, D; Augustin, M; Salek, S S; Nassif, A; Bettoli, V; Szepietowski, J С; Zouboulis, C C.
Afiliação
  • Chernyshov PV; Department of Dermatology and Venereology, National Medical University, Kiev, Ukraine.
  • Finlay AY; Division of Infection and Immunity, School of Medicine, Cardiff University, Cardiff, UK.
  • Tomas-Aragones L; Department of Psychology, University of Zaragoza, Zaragoza, Spain.
  • Steinhoff M; Department of Dermatology and Venereology, Hamad Medical Corporation, Doha, Qatar.
  • Manolache L; Dermatology Institute, Academic Health System, Hamad Medical Corporation, Doha, Qatar.
  • Pustisek N; Translational Research Institute, Academic Health System, Hamad Medical Corporation, Doha, Qatar.
  • Dessinioti C; Weill Cornell Medicine-Qatar, Doha, Qatar.
  • Svensson A; Medical School, Qatar University, Doha, Qatar.
  • Marron SE; School of Medicine, Weill Cornell University, New York, New York, USA.
  • Bewley A; Dermatology, Dali Medical, Bucharest, Romania.
  • Salavastru C; Children's Hospital Zagreb, Zagreb, Croatia.
  • Dréno B; Department of Dermatology, Andreas Syggros Hospital, University of Athens, Athens, Greece.
  • Suru A; Department of Dermatology and Venereology, Skane University Hospital, Malmö, Sweden.
  • Koumaki D; Department of Dermatology, Royo Villanova Hospital, Aragon Psychodermatology Research Group (GAI+PD), Zaragoza, Spain.
  • Linder D; Whipps Cross University Hospital, London, UK.
  • Evers AWM; The Royal London Hospital, London, UK.
  • Abeni D; Department of Paediatric Dermatology, Colentina Clinical Hospital, "Carol Davila" University of Medicine and Pharmacy, Bucharest, Romania.
  • Augustin M; INSERM, Immunology and New Concepts in ImmunoTherapy, INCIT, Nantes Université, Univ Angers, Nantes, France.
  • Salek SS; Department of Paediatric Dermatology, Colentina Clinical Hospital, "Carol Davila" University of Medicine and Pharmacy, Bucharest, Romania.
  • Nassif A; Department of Dermatology and Venereology, University Hospital of Heraklion, Heraklion, Crete, Greece.
  • Bettoli V; University Clinic for Medical Psychology and Psychotherapy, Medical University of Graz, Graz, Austria.
  • Szepietowski JС; Institute of Psychology, Health, Medical, and Neuropsychology Unit, Leiden University, Leiden, The Netherlands.
  • Zouboulis CC; Clinical Epidemiology Unit, IDI-IRCCS, Rome, Italy.
J Eur Acad Dermatol Venereol ; 37(5): 954-964, 2023 May.
Article em En | MEDLINE | ID: mdl-36744752
ABSTRACT
The European Academy of Dermatology and Venereology (EADV) Task Forces (TFs) on Quality of Life (QoL) and Patient-Oriented Outcomes and Acne, Rosacea and Hidradenitis Suppurativa (ARHS) do not recommend the use of any generic instrument as a single method of Health Related (HR) QoL assessment in rosacea, except when comparing quimp (quality of life impairment) in rosacea patients with that in other non-dermatologic skin diseases and/or healthy controls. The EADV TFs on QoL and Patient-Oriented Outcomes and ARHS recommend the use of the dermatology-specific HRQoL instrument the Dermatology Life Quality Index (DLQI) and the rosacea-specific HRQoL instrument RosaQoL in rosacea patients. The DLQI minimal clinically important difference may be used as a marker of clinical efficacy of the treatment and DLQI score banding of 0 or 1 corresponding to no effect on patients' HRQoL could be an important treatment goal. This information may be added to consensuses and guidelines for rosacea.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Venereologia / Hidradenite Supurativa / Acne Vulgar / Rosácea / Dermatologia Tipo de estudo: Guideline Limite: Humans Idioma: En Revista: J Eur Acad Dermatol Venereol Assunto da revista: DERMATOLOGIA / DOENCAS SEXUALMENTE TRANSMISSIVEIS Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Ucrânia
Texto completo
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XML
PubMed Links
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Venereologia / Hidradenite Supurativa / Acne Vulgar / Rosácea / Dermatologia Tipo de estudo: Guideline Limite: Humans Idioma: En Revista: J Eur Acad Dermatol Venereol Assunto da revista: DERMATOLOGIA / DOENCAS SEXUALMENTE TRANSMISSIVEIS Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Ucrânia