Opt-In and Opt-Out Consent Procedures for the Reuse of Routinely Recorded Health Data in Scientific Research and Their Consequences for Consent Rate and Consent Bias: Systematic Review.

de Man, Yvonne; Wieland-Jorna, Yvonne; Torensma, Bart; de Wit, Koos; Francke, Anneke L; Oosterveld-Vlug, Mariska G; Verheij, Robert A

de Man, Yvonne; Wieland-Jorna, Yvonne; Torensma, Bart; de Wit, Koos; Francke, Anneke L; Oosterveld-Vlug, Mariska G; Verheij, Robert A.

Afiliação

de Man Y; Nivel, Netherlands Institute for Health Services Research, Utrecht, the Netherlands.
Wieland-Jorna Y; Nivel, Netherlands Institute for Health Services Research, Utrecht, the Netherlands.
Torensma B; Leiden University Medical Centre, Leiden, the Netherlands.
de Wit K; Department of Gastroenterology and Hepatology, Amsterdam UMC, University of Amsterdam, Amsterdam Gastroenterology Endocrinology Metabolism, Amsterdam, the Netherlands.
Francke AL; Nivel, Netherlands Institute for Health Services Research, Utrecht, the Netherlands.
Oosterveld-Vlug MG; Department of Public and Occupational Health, Location Vrije Universiteit Amsterdam, Amsterdam UMC, Amsterdam, the Netherlands.
Verheij RA; Nivel, Netherlands Institute for Health Services Research, Utrecht, the Netherlands.

J Med Internet Res ; 25: e42131, 2023 02 28.

Article em En | MEDLINE | ID: mdl-36853745

Assuntos

Renda; Consentimento Livre e Esclarecido; Feminino; Humanos; Masculino; Viés; Escolaridade; PubMed

Palavras-chave

consent bias; consent rate; consent resentativeness; electronic health records; opt-in; opt-out; procedure; real-world data; representativeness; routine health data; secondary data use

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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Renda / Consentimento Livre e Esclarecido Tipo de estudo: Systematic_reviews Limite: Female / Humans / Male Idioma: En Revista: J Med Internet Res Assunto da revista: INFORMATICA MEDICA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Holanda

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