Overview of patients' cohorts in the French National rare disease registry.

Pichon, Thibaut; Messiaen, Claude; Soussand, Louis; Angin, Céline; Sandrin, Arnaud; Elarouci, Nabila; Jannot, Anne-Sophie

Pichon, Thibaut; Messiaen, Claude; Soussand, Louis; Angin, Céline; Sandrin, Arnaud; Elarouci, Nabila; Jannot, Anne-Sophie.

Afiliação

Pichon T; French National Rare Disease Registry (BNDMR), Greater Paris University Hospitals (AP-HP), 33 bld de Picpus, Paris, 75012, France.
Messiaen C; French National Rare Disease Registry (BNDMR), Greater Paris University Hospitals (AP-HP), 33 bld de Picpus, Paris, 75012, France.
Soussand L; French National Rare Disease Registry (BNDMR), Greater Paris University Hospitals (AP-HP), 33 bld de Picpus, Paris, 75012, France.
Angin C; French National Rare Disease Registry (BNDMR), Greater Paris University Hospitals (AP-HP), 33 bld de Picpus, Paris, 75012, France.
Sandrin A; French National Rare Disease Registry (BNDMR), Greater Paris University Hospitals (AP-HP), 33 bld de Picpus, Paris, 75012, France.
Elarouci N; French National Rare Disease Registry (BNDMR), Greater Paris University Hospitals (AP-HP), 33 bld de Picpus, Paris, 75012, France.
Jannot AS; French National Rare Disease Registry (BNDMR), Greater Paris University Hospitals (AP-HP), 33 bld de Picpus, Paris, 75012, France. annesophie.jannot@aphp.fr.

Orphanet J Rare Dis ; 18(1): 176, 2023 07 03.

Article em En | MEDLINE | ID: mdl-37400917

Assuntos

Doenças Raras; Humanos; Doenças Raras/epidemiologia; Sistema de Registros; França/epidemiologia; Prevalência; Bases de Dados Factuais

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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doenças Raras Tipo de estudo: Prevalence_studies / Risk_factors_studies Limite: Humans País/Região como assunto: Europa Idioma: En Revista: Orphanet J Rare Dis Assunto da revista: MEDICINA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: França

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