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Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): A multicentric French national observational cross-sectional study based on the FranceCoag registry.
Nguyen, Ngoc Anh Thu; Auquier, Pascal; Beltran Anzola, Any; Harroche, Annie; Castet, Sabine; Huguenin, Yoann; Meunier, Sandrine; Repesse, Yohann; D'Oiron, Roseline; Rauch, Antoine; Desprez, Dominique; Spiegel, Alexandra; Chamouni, Pierre; Schneider, Pascale; Baumstarck, Karine; Boucekine, Mohamed; Tabele, Clémence; Viprey, Marie; Leroy, Tanguy; Roques, Marie-Anaïs; Sannie, Thomas; Giraud, Nicolas; Chambost, Hervé; Resseguier, Noémie.
Afiliação
  • Nguyen NAT; CEReSS/UR 3279 - Health Services and Quality of Life Research, Aix Marseille University, Marseille, France.
  • Auquier P; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (APHM), Marseille, France.
  • Beltran Anzola A; CEReSS/UR 3279 - Health Services and Quality of Life Research, Aix Marseille University, Marseille, France.
  • Harroche A; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (APHM), Marseille, France.
  • Castet S; FranceCoag Network, Marseille, France.
  • Huguenin Y; CEReSS/UR 3279 - Health Services and Quality of Life Research, Aix Marseille University, Marseille, France.
  • Meunier S; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (APHM), Marseille, France.
  • Repesse Y; AP-HP, Haemophilia Treatment Centre, Hospital Necker, Paris, France.
  • D'Oiron R; University Hospital of Bordeaux, Haemophilia Treatment Centre, Bordeaux, France.
  • Rauch A; University Hospital of Bordeaux, Haemophilia Treatment Centre, Bordeaux, France.
  • Desprez D; Hospices Civils de Lyon - Haemophilia Treatment Centre, Groupement Hospitalier Est, Bron, France.
  • Spiegel A; University Hospital of Caen, Haemophilia Treatment Centre, Caen, France.
  • Chamouni P; AP-HP, Haemophilia Treatment Centre, Hospital Bicêtre, Paris, France.
  • Schneider P; University Regional Hospital of Lille, Haemophilia Treatment Centre, Lille, France.
  • Baumstarck K; University Regional Hospital of Strasbourg, Haemophilia Treatment Centre, Strasbourg, France.
  • Boucekine M; University Regional Hospital of Strasbourg, Pediatric Onco-Haematology Service, Strasbourg, France.
  • Tabele C; University Hospital of Rouen, Haemophilia Treatment Centre, Rouen, France.
  • Viprey M; University Hospital of Rouen, Haemophilia Treatment Centre, Rouen, France.
  • Leroy T; CEReSS/UR 3279 - Health Services and Quality of Life Research, Aix Marseille University, Marseille, France.
  • Roques MA; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (APHM), Marseille, France.
  • Sannie T; FranceCoag Network, Marseille, France.
  • Giraud N; CEReSS/UR 3279 - Health Services and Quality of Life Research, Aix Marseille University, Marseille, France.
  • Chambost H; Methodological Support Unit for Clinical and Epidemiological Research, University Hospital of Marseille (APHM), Marseille, France.
  • Resseguier N; FranceCoag Network, Marseille, France.
Haemophilia ; 29(5): 1202-1218, 2023 Sep.
Article em En | MEDLINE | ID: mdl-37572328
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Transição para Assistência do Adulto / Hemofilia A Tipo de estudo: Clinical_trials / Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Limite: Adolescent / Adult / Humans Idioma: En Revista: Haemophilia Assunto da revista: HEMATOLOGIA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: França
Texto completo
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XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Transição para Assistência do Adulto / Hemofilia A Tipo de estudo: Clinical_trials / Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Limite: Adolescent / Adult / Humans Idioma: En Revista: Haemophilia Assunto da revista: HEMATOLOGIA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: França