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Enhancing diversity, equity, inclusion, and accessibility in eosinophilic gastrointestinal disease research: the consortium for eosinophilic gastrointestinal disease researchers' journey.
Chehade, Mirna; Furuta, Glenn; Klion, Amy; Abonia, J Pablo; Aceves, Seema; Bose, Paroma; Collins, Margaret H; Davis, Carla; Dellon, Evan S; Eickel, Grant; Falk, Gary; Gupta, Sandeep; Hiremath, Girish; Howard, Amari; Jensen, Elizabeth T; Kesh, Susamita; Khoury, Paneez; Kocher, Kendra; Kodroff, Ellyn; Kyle, Shay; Mak, NaDea; McCoy, Dawn; Mehta, Pooja; Menard-Katcher, Paul; Mukkada, Vincent; Paliana, Ally; Rothenberg, Marc; Sable, Kathleen; Schmitt, Cara; Scott, Melissa; Spergel, Jonathan; Strobel, Mary Jo; Wechsler, Joshua B; Yang, Guang-Yu; Zicarelli, Amy; Muir, Amanda B; Wright, Benjamin L; Bailey, Dominique D.
Afiliação
  • Chehade M; Mount Sinai Center for Eosinophilic Disorders, Icahn School of Medicine at Mount Sinai, One Gustave L. Levy Place, Box 1198, New York, NY 10029, USA.
  • Furuta G; Digestive Health Institute, Section of Pediatric Gastroenterology, Hepatology and Nutrition, Children's Hospital of Colorado, Auroral, CO, USA.
  • Klion A; Gastrointestinal Eosinophilic Disease Program, Mucosal Inflammation Program, University of Colorado School of Medicine, Aurora, CO, USA.
  • Abonia JP; National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD, USA.
  • Aceves S; Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
  • Bose P; University of California San Diego, Rady Children's Hospital of San Diego, San Diego, CA, USA.
  • Collins MH; Riley Hospital for Children, Indiana University, Indianapolis, IN, USA.
  • Davis C; Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
  • Dellon ES; Baylor College of Medicine, Houston, TX, USA.
  • Eickel G; University of North Carolina School of Medicine, Chapel Hill, NC, USA.
  • Falk G; Mount Sinai Center for Eosinophilic Disorders, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
  • Gupta S; University of Pennsylvania, Philadelphia, PA, USA.
  • Hiremath G; Riley Hospital for Children, Indiana University, Indianapolis, IN, USA.
  • Howard A; Vanderbilt University Medical Center, Nashville, TN, USA.
  • Jensen ET; National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD, USA.
  • Kesh S; Wake Forest University School of Medicine, Winston-Salem, NC, USA.
  • Khoury P; Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
  • Kocher K; National Institute of Allergy and Infectious Diseases, National Institutes of Health, Bethesda, MD, USA.
  • Kodroff E; Digestive Health Institute, Section of Pediatric Gastroenterology, Hepatology and Nutrition, Children's Hospital of Colorado, Auroral, CO, USA.
  • Kyle S; Gastrointestinal Eosinophilic Disease Program, Mucosal Inflammation Program, University of Colorado School of Medicine, Aurora, CO, USA.
  • Mak N; Campaign Urging Research for Eosinophilic Disease, Lincolnshire, IL, USA.
  • McCoy D; Campaign Urging Research for Eosinophilic Disease, Lincolnshire, IL, USA.
  • Mehta P; Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
  • Menard-Katcher P; American Partnership for Eosinophilic Disorders, Atlanta, GA, USA.
  • Mukkada V; Digestive Health Institute, Section of Pediatric Gastroenterology, Hepatology and Nutrition, Children's Hospital of Colorado, Auroral, CO, USA.
  • Paliana A; Gastrointestinal Eosinophilic Disease Program, Mucosal Inflammation Program, University of Colorado School of Medicine, Aurora, CO, USA.
  • Rothenberg M; University of Colorado School of Medicine, Anchutz Medical Campus, Aurora, CO, USA.
  • Sable K; Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
  • Schmitt C; Campaign Urging Research for Eosinophilic Disease, Lincolnshire, IL, USA.
  • Scott M; Department of Pediatrics, Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine, Cincinnati, OH, USA.
  • Spergel J; American Partnership for Eosinophilic Disorders, Atlanta, GA, USA.
  • Strobel MJ; American Partnership for Eosinophilic Disorders, Atlanta, GA, USA.
  • Wechsler JB; Eosinophilic Family Coalition, Cincinnati, OH, USA.
  • Yang GY; Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
  • Zicarelli A; American Partnership for Eosinophilic Disorders, Atlanta, GA, USA.
  • Muir AB; Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA.
  • Wright BL; Northwestern University, Evanston, IL, USA.
  • Bailey DD; Eosinophilic Family Coalition, Cincinnati, OH, USA.
Ther Adv Rare Dis ; 4: 26330040231180895, 2023.
Article em En | MEDLINE | ID: mdl-37588777
ABSTRACT
In response to the social inequities that exist in health care, the NIH-funded Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) recently formed a diversity committee to examine systemic racism and implicit bias in the care and research of eosinophilic gastrointestinal diseases (EGIDs). Herein, we describe our process, highlighting milestones and issues addressed since the committee's inception, which we hope will inspire other researchers to enhance diversity, equity, inclusion, and accessibility (DEIA) in their fields. Our journey began by establishing mission and vision statements to define the purpose of the committee. Regular discussion of diversity-related topics was incorporated into existing meetings and web-based materials were shared. This was followed by educational initiatives, including establishing a library of relevant publications and a speaker series to address DEIA topics. We then established a research agenda focused on the following actionable items (1) to define what is known about the demographics of EGIDs by systematic review of population-based studies; (2) to develop a practical tool for reporting participant demographics to reduce bias in EGID literature; (3) to examine health disparities in the care of individuals with eosinophilic esophagitis who present to the emergency department with an esophageal food impaction; (4) to examine how access to a gastroenterologist affects the conclusions of published research examining the prevalence of pediatric eosinophilic esophagitis; and (5) to develop a model for examining the dimensions of diversity, and provide a framework for CEGIR's ongoing projects and data capture. In addition to promoting consciousness of DEIA, this initiative has fostered inclusivity among CEGIR members and will continue to inspire positive changes in EGID care and research.
Diversity in Eosinophilic Gastrointestinal Disease Research To address systemic bias in patient care and research in eosinophilic gastrointestinal diseases, the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) recently formed a diversity committee. The CEGIR diversity committee has defined its purpose through mission and vision statements and developed structured educational and research initiatives to enhance diversity, equity, inclusivity, and accessibility (DEIA) in all CEGIR activities. Here, we share the process of formation of our diversity committee, highlighting milestones achieved and summarizing future directions. We hope that this report will serve as a guide and an inspiration for other researchers to enhance DEIA in their fields.
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Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Qualitative_research / Risk_factors_studies Idioma: En Revista: Ther Adv Rare Dis Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos

Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Qualitative_research / Risk_factors_studies Idioma: En Revista: Ther Adv Rare Dis Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos