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SIGnature Libraries: A roadmap for the formation of special interest group libraries.
Kim, Young-Min; Chin, Eric M; Fahey, Michael; Gelineau-Morel, Rose; Himmelmann, Kate; O'Malley, Jennifer; Oskoui, Maryam; Shapiro, Bruce; Shevell, Michael; Wilson, Jenny L; Wiznitzer, Max; Aravamuthan, Bhooma.
Afiliação
  • Kim YM; Department of Neurology and Pediatrics, Loma Linda University, Loma Linda, California, USA.
  • Chin EM; Department of Neurology and Pediatrics, Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
  • Fahey M; Department of Paediatrics, Monash University, Monash, Australia.
  • Gelineau-Morel R; Division of Neurology, Children's Mercy Hospital, University of Missouri-Kansas City, Kansas City, Missouri, USA.
  • Himmelmann K; Department of Pediatrics, Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
  • O'Malley J; Department of Neurology, Stanford University School of Medicine, Palo Alto, California, USA.
  • Oskoui M; Department of Pediatrics, Department of Neurology & Neurosurgery, Centre for Outcomes Research and Evaluation, McGill University Health Center Research Institute, Faculty of Medicine, McGill University, Montreal, Quebec, Canada.
  • Shapiro B; Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
  • Shevell M; Emeritus Vice President, Training, Kennedy Krieger Institute, Baltimore, Maryland, USA.
  • Wilson JL; Departments of Pediatrics & Neurology/Neurosurgery, McGill University, Montreal, Canada.
  • Wiznitzer M; Division of Pediatric Neurology, Montreal Children's Hospital, Montreal, Canada.
  • Aravamuthan B; Department of Neurology, Case Western Reserve University School of Medicine, Rainbow Babies & Children's Hospital, Cleveland, Ohio, USA.
Ann Child Neurol Soc ; 1(3): 218-227, 2023 Sep.
Article em En | MEDLINE | ID: mdl-37795255
ABSTRACT

Objective:

"SIGnature Libraries" channel the dynamism of academic society-based special interest groups (SIG) to systematically identify and provide user-oriented access to essential literature for a subspecialty field in a manner that keeps pace with the field's continuing evolution. The libraries include literature beyond clinical trial data to encompass historical context, diagnostic conceptualization, and community organization materials to foster a holistic understanding of how neurologic conditions affect individuals, their community, and their lived experience.

Methods:

Utilizing a modified-Delphi approach, Child Neurology Society's Cerebral Palsy (CP) SIG (n = 75) administered two rounds of literature submissions and ratings. A final review by an 11-member international advisory group determined threshold ratings for resource inclusion and the library's final structure.

Results:

Seventy-nine articles were submitted for the first Delphi round and 22 articles for the second Delphi round. Survey response rates among SIG members were 29/75 for the first round and 24/75 for the second round. The advisory board added additional articles in the final review process in view of the overall project goal. A total of 60 articles were included in the final library, and articles were divided into seven sections and stratified by rating scores. A process for ongoing revisions of the library was determined. The library will be published on the Child Neurology Society website and made publicly accessible.

Conclusions:

The CP SIGnature Library offers learners an unprecedented resource that provides equitable access to latest consensus guidelines, existing seminal datasets, up-to-date review articles, and other patient care tools. A distinctive feature of the library is its intentional large scope and depth, presented in a stratified fashion relative to the consensus-determined importance of each article. Learners can efficiently navigate the library based on individual interests and goals, and the library can be used as core curriculum for CP education.
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Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research Idioma: En Revista: Ann Child Neurol Soc Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos

Texto completo: 1 Base de dados: MEDLINE Tipo de estudo: Guideline / Prognostic_studies / Qualitative_research Idioma: En Revista: Ann Child Neurol Soc Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos