Consideration and Disclosure of Group Risks in Genomics and Other Data-Centric Research: Does the Common Rule Need Revision?

Chapman, Carolyn Riley; Quinn, Gwendolyn P; Natri, Heini M; Berrios, Courtney; Dwyer, Patrick; Owens, Kellie; Heraty, Síofra; Caplan, Arthur L

Chapman, Carolyn Riley; Quinn, Gwendolyn P; Natri, Heini M; Berrios, Courtney; Dwyer, Patrick; Owens, Kellie; Heraty, Síofra; Caplan, Arthur L.

Afiliação

Chapman CR; NYU Grossman School of Medicine.
Quinn GP; NYU Grossman School of Medicine.
Natri HM; The Translational Genomics Research Institute.
Berrios C; Children's Mercy Kansas City.
Dwyer P; University of Missouri-Kansas City School of Medicine.
Owens K; University of California, Davis.
Heraty S; NYU Grossman School of Medicine.
Caplan AL; Birkbeck, University of London.

Am J Bioeth ; : 1-14, 2023 Nov 27.

Article em En | MEDLINE | ID: mdl-38010648

Palavras-chave

Group harm; big data; genetic research; genomic research; informed consent; institutional review board; research ethics

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Texto completo: 1 Base de dados: MEDLINE Idioma: En Revista: Am J Bioeth Assunto da revista: ETICA Ano de publicação: 2023 Tipo de documento: Article

Texto completo

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XML

PubMed Links

Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Idioma: En Revista: Am J Bioeth Assunto da revista: ETICA Ano de publicação: 2023 Tipo de documento: Article