Challenges of parenting children born before 24 weeks of gestation.
Acta Paediatr
; 2024 Jul 10.
Article
em En
| MEDLINE
| ID: mdl-38984707
ABSTRACT
AIM:
To assess experience of care, well-being of parents and children's development in a cohort of extremely premature infants born <24 weeks of gestation in Sweden from 2007 to 2018.METHODS:
A survey based on multiple questionnaires answered by 124/349 (35.5%) parents.RESULTS:
The median age of parents and children was 43 and 9 years, respectively; 74.2% were mothers. Parents expressed high healthcare satisfaction. Following discharge from neonatal care, the satisfaction with the infant's treatment, support from personnel and being respected as a parent significantly declined but remained high. The criteria for suspected developmental deviation according to the screening test early symptomatic syndromes eliciting neurodevelopmental clinical examinations-questionnaire was fulfilled by 84.3%, 55.6% had suspected avoidant restrictive food intake disorder and 47.9% had visual perception problems. Parents experienced severe fatigue (48.6%) despite strong social support and family self-efficacy. Economic support was provided to 30.6%, and 37.9% of children were enrolled in habilitation services.CONCLUSION:
This study highlighted the substantial challenges faced by parents of infants born before 24 weeks of gestation, including decreased satisfaction post-discharge, fatigue and concerns about children's well-being. The findings underscore the need for comprehensive family-centred support and long-term multi-professional follow-up centres.
Texto completo:
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Base de dados:
MEDLINE
Idioma:
En
Revista:
Acta Paediatr
Ano de publicação:
2024
Tipo de documento:
Article
País de afiliação:
Suécia