Quality of life in childhood immune thrombocytopenia: Revision of the Kids' ITP Tools (KIT).
Br J Haematol
; 2024 Jul 27.
Article
em En
| MEDLINE
| ID: mdl-39072718
ABSTRACT
The Kids ITP Tools (KIT) is a health-related quality of life (HRQoL) questionnaire that evaluates quality of life in children with immune thrombocytopenia (ITP). There are three formats Child Self-Report, Parent Proxy-Report and Parent Impact-Report. This study aimed to develop a domain structure by grouping-related questions from the questionnaire into domains that independently reflect various aspects of HRQoL. The study was conducted in two phases. Phase 1 involved an online survey distributed to experts to identify conceptual domains for the KIT. Phase 2 utilized a statistical approach to analyse responses from patients with ITP and their families. A revised KIT 2.0 was ultimately developed to aid in treatment decision-making and monitoring of ITP.
Texto completo:
1
Base de dados:
MEDLINE
Idioma:
En
Revista:
Br J Haematol
/
Br. j. haematol
/
British journal of haematology
Ano de publicação:
2024
Tipo de documento:
Article
País de afiliação:
Canadá