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1.
J Health Commun ; 18(9): 1131-47, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23639101

RESUMO

Clinical trials hold great promise for cancer treatment; yet, Hispanic cancer patients have low rates of clinical trial participation. Lack of awareness and knowledge of clinical trials and language barriers may account for low participation rates. Patient education through audiovisual materials can improve knowledge of and attitudes toward clinical trials among Hispanic populations. In this study, 36 Hispanic cancer patients/survivors and caregivers in Florida and Puerto Rico participated in focus groups to aid in developing a Spanish-language DVD and booklet intervention designed to increase knowledge about clinical trials. Focus group results showed (a) low levels of knowledge about clinical trials, (b) uncertainty about why a physician would expect a patient to make a choice about treatment, and (c) desire for family participation in decision making. Respondents expressed various preferences for aspects of the DVD such as showing extended family in the DVD and physician explanations about key terms. On the basis of these preferences, the authors developed a creative brief for a DVD. The content of the DVD was reviewed by Hispanic community leaders and key stakeholders. A final DVD was created, in Spanish, using Hispanic patients and physicians, which contained the information deemed important from the focus groups and stakeholder interviews. The DVD is complete with companion booklet and currently undergoing a randomized control trial.


Assuntos
Ensaios Clínicos como Assunto , Conhecimentos, Atitudes e Prática em Saúde/etnologia , Hispânico ou Latino/educação , Neoplasias/etnologia , Educação de Pacientes como Assunto/métodos , Adolescente , Adulto , Tomada de Decisões , Família/etnologia , Feminino , Florida , Grupos Focais , Hispânico ou Latino/psicologia , Hispânico ou Latino/estatística & dados numéricos , Humanos , Masculino , Pessoa de Meia-Idade , Neoplasias/terapia , Folhetos , Participação do Paciente , Preferência do Paciente/etnologia , Porto Rico , Gravação de Videodisco , Adulto Jovem
2.
J Community Health ; 37(4): 773-80, 2012 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-22105601

RESUMO

Racial/ethnic, socioeconomic, and gender disparities in health and access to and use of health care services currently exist. Health professionals are continually striving to reduce and eliminate health disparities within their own community. One such effort in the area of Tampa Bay, Florida was the creation of the African American Men's Health Forum, currently referred to as the Men's Health Forum. The African American Men's Health Forum was the result of the community's desire to reduce the gap in health outcomes for African American men. Later, it was recognized that the gap in health outcomes impacts other communities; therefore, it was broadened to include all men considered medically underserved (those who are uninsured, underinsured, or without a regular health care provider). The Men's Health Forum empowers men with the resources, knowledge, and information to effectively manage their health by providing health education and screenings to the community. This article provides an explanation of the key components that have contributed to the success of the Men's Health Forum, including challenges and lessons learned. It is intended that this information be replicated in other communities in an effort to eliminate health disparities.


Assuntos
Negro ou Afro-Americano/educação , Serviços de Saúde Comunitária/organização & administração , Promoção da Saúde/métodos , Disparidades nos Níveis de Saúde , Saúde do Homem/etnologia , Negro ou Afro-Americano/psicologia , Relações Comunidade-Instituição , Comportamento Cooperativo , Detecção Precoce de Câncer , Florida , Educação em Saúde , Pesquisa sobre Serviços de Saúde , Humanos , Masculino , Programas de Rastreamento , Pessoas sem Cobertura de Seguro de Saúde/etnologia , Relações Médico-Paciente , Poder Psicológico , Neoplasias da Próstata/etnologia , Tradução
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