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1.
Health Qual Life Outcomes ; 15(1): 103, 2017 May 15.
Artigo em Inglês | MEDLINE | ID: mdl-28506306

RESUMO

BACKGROUND: People with morbid obesity (body mass index ≥40) may experience changes in their health after participating in a tailored patient education course. The aims of this study were to assess the changes in physical and mental health in persons with morbid obesity during the 2 years following an educational course and to explore possible socio-demographic, treatment, and personal predictors of physical and mental health outcomes. METHODS: In this prospective longitudinal cohort study, self-report questionnaire data were collected from people with morbid obesity at the beginning of mandatory educational courses while on a waiting list for gastric surgery and at two-year follow-up. Of the 185 who attended the courses, 142 (77%) volunteered to participate in the study, and the 59 with complete data at the two-year follow-up were included in the analysis. Physical and mental health were measured with the physical and mental component summary scores from the Short Form 12v2. Self-esteem was measured by the Rosenberg Self-Esteem Scale, and self-efficacy by the General Self-Efficacy Scale. RESULTS: The participants reported better physical health at two-year follow-up than at baseline. Mental health did not change significantly over time. Receiving surgical treatment during the study period predicted better physical health at two-year follow-up, even after controlling for physical health at baseline. Mental health at baseline was the only significant baseline predictor of mental health at follow-up. However, increasing self-esteem and self-efficacy over the two-year study period independently predicted better mental health at follow up after controlling for mental health at baseline. CONCLUSION: Our study showed that people with morbid obesity on a waiting list for bariatric surgery improved their physical health during the 2 years after attending a tailored patient educational course. Improving self-esteem and self-efficacy may be important personal factors for maintaining mental health during this period. TRIAL REGISTRATION: NCT01336725 . Registered 14 April 2011.


Assuntos
Obesidade Mórbida/psicologia , Educação de Pacientes como Assunto , Qualidade de Vida/psicologia , Adulto , Cirurgia Bariátrica/psicologia , Feminino , Seguimentos , Humanos , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Estudos Prospectivos , Autoimagem , Autoeficácia , Inquéritos e Questionários
2.
Psychol Health Med ; 20(4): 431-42, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-25220791

RESUMO

Living with chronic illnesses can be stressful and may negatively impact persons' self-esteem. Personal factors, like self-efficacy and illness perceptions, and also factors related to the environment, activity, and participation may be associated with self-esteem in chronic illness populations. This cross-sectional comparative study explored sociodemographic variables, work, physical activity, illness perceptions, and general self-efficacy in relation to self-esteem in persons with morbid obesity and in persons with chronic obstructive pulmonary disease (COPD). The study had a cross-sectional design. A total of 223 eligible participants were recruited from patient education courses, and data were collected at baseline. Self-esteem was measured with The Rosenberg self-esteem scale; the general self-efficacy scale was used to measure self-efficacy, and brief illness perception questionnaire was also used. This is an instrument assessing cognitions about the illness and emotional responses towards it. Multivariate linear regression was used in the statistical analyses. In obese participants (n = 134), higher self-esteem was associated with lower emotional response, a shorter timeline, and higher general self-efficacy. In COPD participants (n = 89), higher self-esteem was associated with higher general self-efficacy. The independent variables accounted for 42.9% (morbid obesity) and 49.4% (COPD) of the self-esteem variance. In participants in both illness groups, higher self-efficacy was associated with increased self-esteem. A shorter timeline and lower emotional response to illness was related to higher self-esteem only for the obese participants. The results indicate that believing in one's capacity to cope with everyday challenges is important for self-esteem in persons with morbid obesity and in persons with COPD, whereas illness perceptions related to the duration of illness and the coping with emotions also is important for self-esteem in persons with morbid obesity.


Assuntos
Obesidade Mórbida/psicologia , Doença Pulmonar Obstrutiva Crônica/psicologia , Autoimagem , Atividades Cotidianas , Adulto , Idoso , Atitude Frente a Saúde , Estudos Transversais , Feminino , Humanos , Relações Interpessoais , Masculino , Pessoa de Meia-Idade , Atividade Motora , Autoeficácia , Apoio Social , Trabalho
3.
Qual Life Res ; 23(2): 707-17, 2014 Mar.
Artigo em Inglês | MEDLINE | ID: mdl-23975381

RESUMO

PURPOSE: The purpose of the study was to examine fatigue interference with daily living in patients with inflammatory bowel disease (IBD) and to explore relationships between severe fatigue interference and socio-demographic and clinical variables, including use of complementary and alternative medicine (CAM). METHODS: Data were collected using self-report questionnaires from adult IBD outpatients. Fatigue interference was assessed with the 5-item Fatigue Severity Scale, and scores ≥ 5 were defined as severe fatigue interference. CAM use was assessed with the International CAM Questionnaire. Multivariate logistic regression analysis was used to examine associations between severe fatigue interference and socio-demographic factors, clinical factors, and CAM use. RESULTS: In total, 428 patients had evaluable questionnaires (response rate 93 %). Severe fatigue interference was reported by 39 % of the total sample. Patients with Crohn's disease (CD) (n = 238) were more likely than patients with ulcerative colitis (UC) (n = 190) to report severe fatigue interference (43 and 33 %, respectively, p = 0.003). In addition, patients reporting severe fatigue interference were more likely to have active disease than patients without severe fatigue interference (p < 0.001 for both diagnoses). Patients with inactive disease had scores comparable to the general population. Factors independently associated with severe fatigue interference in UC included disease activity and CAM use, while in CD they included disease activity and current smoking. CONCLUSIONS: Severe fatigue interference is common among IBD patients with active disease. Among patients with UC, but not CD, CAM use was associated with severe fatigue interference. The relationship between fatigue interference and personal factors should be considered further in subsequent studies.


Assuntos
Atividades Cotidianas , Fadiga/fisiopatologia , Doenças Inflamatórias Intestinais/fisiopatologia , Qualidade de Vida , Adulto , Idoso , Terapias Complementares , Estudos Transversais , Fadiga/etiologia , Fadiga/terapia , Feminino , Humanos , Doenças Inflamatórias Intestinais/complicações , Doenças Inflamatórias Intestinais/terapia , Modelos Logísticos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários , Adulto Jovem
4.
Health Qual Life Outcomes ; 11: 202, 2013 Nov 25.
Artigo em Inglês | MEDLINE | ID: mdl-24268204

RESUMO

BACKGROUND: Self-efficacy is needed for effectuating lifestyle changes, and it is therefore an important target related to health. The purpose of this study was to evaluate the psychometric properties of the General Self-Efficacy Scale (GSE) using Rasch analysis in a sample of adults with morbid obesity. METHODS: A convenience sample of adults with morbid obesity was recruited from patient education courses. A total of 141 participants completed the GSE and a demographic questionnaire at the beginning of the course. The statistical approach included analysis of rating scale function, item fit to the Rasch partial credit model, unidimensionality, aspects of person-response validity, person-separation reliability, and differential item function. A version omitting items with poor fit to the Rasch model was also evaluated. RESULTS: The rating scale did not advance monotonically for item #2 in the original 10-item version, and the first three GSE items did not demonstrate acceptable goodness-of-fit to the Rasch model. In a 7-item version omitting these three items, the rating scale functioned well for all items, and all items demonstrated good fit to the Rasch model. Both the 10-item and 7-item versions of the GSE partially met the criteria for unidimensionality. Neither version met the criterion for person response validity, although the results were slightly better for the 7-item than for the 10-item version. Both versions of the GSE demonstrated the ability to separate the respondents into three distinct levels of general self-efficacy. Several items had differential item function in relation to age, education or work status, but there were fewer in the 7-item version. CONCLUSIONS: For adults with morbid obesity, a 7-item version of the GSE seems to have better psychometric properties than the original 10-item version.


Assuntos
Obesidade Mórbida/psicologia , Qualidade de Vida/psicologia , Autoeficácia , Inquéritos e Questionários , Adulto , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Modelos Estatísticos , Noruega , Educação de Pacientes como Assunto , Estudos Prospectivos , Psicometria , Adulto Jovem
5.
Scand J Gastroenterol ; 47(12): 1436-47, 2012 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-23003678

RESUMO

OBJECTIVE: To determine the proportion of complementary and alternative medicine (CAM) use in patients with inflammatory bowel disease (IBD) and to identify demographic and clinical factors that are associated with CAM use. MATERIAL AND METHODS: In this cross-sectional study design, patients with confirmed diagnosis of ulcerative colitis (UC) or Crohn's disease (CD), and ≥18 years old, attending outpatient clinics at 14 hospitals in Norway were eligible to complete questionnaires including demographics, clinical variables, and the International CAM Questionnaire (I-CAM-Q). RESULTS: Of 460 patients included in the study, 430 had evaluable questionnaires (response rate 93%). Forty-nine percent (95% CI: 44-54) had used some type of CAM within the past 12 months. CAM services were utilized by 27% (95% CI: 23-31) of the patients, 21% (95% CI: 16-23) reported use of CAM products, and 28% (95% CI: 23-31) used CAM self-help practices. The most common pattern of CAM use was to combine CAM services and CAM products. Significantly, more UC patients (56%) than CD patients (44%) reported CAM use, p = 0.03. In UC, only the presence of at least one comorbid condition was directly related to CAM use. In CD, being a woman, being aged 31-50 years, having a higher education level, and experiencing adverse drug reactions from IBD medication were factors independently associated with the use of CAM. CONCLUSION: Use of CAM was common among IBD patients attending outpatient clinics. Both demographic and clinical factors were associated to CAM use, but the factors differed in their significance for UC and CD.


Assuntos
Colite Ulcerativa/terapia , Terapias Complementares/estatística & dados numéricos , Doença de Crohn/terapia , Terapia por Acupuntura/estatística & dados numéricos , Adolescente , Adulto , Fatores Etários , Idoso , Comorbidade , Intervalos de Confiança , Estudos Transversais , Suplementos Nutricionais , Escolaridade , Feminino , Óleos de Peixe/uso terapêutico , Homeopatia/estatística & dados numéricos , Humanos , Modelos Logísticos , Masculino , Pessoa de Meia-Idade , Análise Multivariada , Noruega , Preparações de Plantas/uso terapêutico , Fatores Sexuais , Inquéritos e Questionários , Vitaminas/uso terapêutico , Adulto Jovem
6.
J Clin Nurs ; 21(3-4): 495-503, 2012 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-22171581

RESUMO

AIMS AND OBJECTIVES: To explore patients' perspectives on the significance of informal carers in their information management. BACKGROUND: Being well informed is considered a prerequisite for the ability of heart failure patients to manage their lives at home. Developing knowledge about the informal caregiver's role in patient information management is important, that is, accurate information adapted to the individual level of comprehension. DESIGN: A qualitative approach using in-depth semi-structured interviews conducted with patients was used. METHODS: Eight women and six men suffering from heart failure and with a mean age of 79·6 were interviewed. Data were collected one week after their discharge. A content analysis was performed. RESULTS: The informal carer's role in information management from the patient's perspective represents two different phenomena. The first, variation in involvement, [corrected] is related to the background of the informal carer. From what patients experienced, the process of information involvement throughout their hospital stay was affected by whether or not their informal carer had a health care background. The second phenomenon, information ambivalence, is related to the relationship between the patient and the informal carer with regard to information management at home. CONCLUSION: The informal carers were of great importance in the information management process because the patients relied on them so as to be able to devote their energy to managing their daily life. Relevance to clinical practice. Patients should be assessed with regard to their information management problems and to the role of their informal carers in this process.


Assuntos
Cuidadores , Insuficiência Cardíaca/psicologia , Serviços de Informação , Idoso , Idoso de 80 Anos ou mais , Humanos , Masculino
7.
Scand J Caring Sci ; 26(4): 635-42, 2012 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-22417055

RESUMO

Renal recipients need to acquire significant amount of knowledge for their life post-transplantation. More knowledge on kidney recipients' experiences after transplantation with regard to the patient education provided is needed. Sixteen renal recipients were interviewed 4-6 weeks post-transplantation about content and methods in the patient education programme. Data were analysed in the hermeneutic tradition. The patients experienced barriers towards learning in the early post-operative phase. Kidney transplantation was expressed as a 'turning point in life', causing learning difficulties because of both physical and mental stress. Survival knowledge was the label for topics concerning medication and rejection as they were experienced as essential for life. Situational knowledge, that is, knowledge related to recipients' individual life situations, requires further details in the main topics provided. The difference between knowing and practising what was taught was experienced as troublesome. The recipients expressed that a supportive learning atmosphere characterized by patience, respect, continuity and active participation was essential. This study revealed new knowledge about renal recipients' need for individual application of the educational content, as well as cognitive difficulties, and other factors impacting on learning in the early post-operative phase. The patients' perspective is an important and useful aid in creating effective interventions in this field.


Assuntos
Transplante de Rim/psicologia , Educação de Pacientes como Assunto/organização & administração , Humanos , Noruega , Período Pós-Operatório , Pesquisa Qualitativa
8.
Scand J Psychol ; 53(4): 333-9, 2012 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-22680700

RESUMO

Change of lifestyle may be necessary for persons with chronic illnesses in order to manage their health situation and reduce symptom distress. Success in changing lifestyle partly depends on a person's self-efficacy beliefs. This cross-sectional study explores social support, physical activity, and illness perceptions in relation to self-efficacy in a sample with morbid obesity and in a sample with chronic obstructive pulmonary disease (COPD). The linear regression analyses showed that higher physical activity and less emotional response to illness were directly associated with higher self-efficacy among persons with obesity, while more social support; fewer perceived consequences from illness; and more understanding of the illness were directly associated with higher self-efficacy among persons with COPD. The results indicate that obese persons are likely to benefit from increasing physical activity and from receiving emotional support. Persons with COPD may be empowered by being able to utilize cognitive coping strategies and by receiving social support.


Assuntos
Doença Crônica/psicologia , Obesidade Mórbida/psicologia , Doença Pulmonar Obstrutiva Crônica/psicologia , Autoeficácia , Adulto , Idoso , Estudos Transversais , Feminino , Comportamentos Relacionados com a Saúde , Humanos , Modelos Lineares , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Atividade Motora , Educação de Pacientes como Assunto , Estudos Prospectivos , Fatores de Risco , Apoio Social
9.
Qual Life Res ; 20(8): 1187-96, 2011 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-21336658

RESUMO

PURPOSE: To explore relationships of socio-demographic variables, health behaviours, environmental characteristics and personal factors, with physical and mental health variables in persons with morbid obesity, and to compare their health-related quality of life (HRQoL) scores with scores from the general population. METHODS: A cross-sectional correlation study design was used. Data were collected by self-reported questionnaire from adult patients within the first 2 days of commencement of a mandatory educational course. Of 185 course attendees, 142 (76.8%) volunteered to participate in the study. Valid responses on all items were recorded for 128 participants. HRQoL was measured with the Short Form 12v2 from which physical (PCS) and mental component summary (MCS) scores were computed. Other standardized instruments measured regular physical activity, social support, self-esteem, sense of coherence, self-efficacy and coping style. RESULTS: Respondents scored lower on all the HRQoL sub-domains compared with norms. Linear regression analyses showed that personal factors that included self-esteem, self-efficacy, sense of coherence and coping style explained 3.6% of the variance in PCS scores and 41.6% in MCS scores. CONCLUSION: Personal factors such as self-esteem, sense of coherence and a high approaching coping style are strongly related to mental health in obese persons.


Assuntos
Obesidade/psicologia , Satisfação Pessoal , Qualidade de Vida , Autoimagem , Adulto , Estudos Transversais , Feminino , Comportamentos Relacionados com a Saúde , Humanos , Modelos Lineares , Masculino , Pessoa de Meia-Idade , Noruega , Perfil de Impacto da Doença , Apoio Social , Listas de Espera , Adulto Jovem
10.
Pain Manag Nurs ; 11(2): 99-107, 2010 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-20510840

RESUMO

Women report more postoperative pain and problems performing domestic activities than men in the first month of recovery after cardiac surgery. The purpose of this article is to describe how women rate and describe pain interference with daily life after early discharge from cardiac surgery. A qualitative study was conducted in 2004-2005 with ten women recruited from a large Norwegian university hospital before discharge from their first elective cardiac surgery. Various aspects of the women's postoperative experiences were collected with qualitative interviews in the women's homes 8-14 days after discharge: a self-developed pain diary measuring pain intensity, types and amount of pain medication taken every day after returning home from hospital; and the Brief Pain Inventory-Short Form immediately before the interview. Qualitative content analysis was used to identify recurring themes from the interviews. Data from the questionnaires provided more nuances to the experiences of pain, pain management, and interference of postoperative pain. Postoperative pain interfered most with sleep, general activity, and the ability to perform housework during the first 2 weeks after discharge. Despite being advised at the hospital to take pain medication regularly, few women consumed the maximum amount of analgesics. Early hospital discharge after open cardiac surgery implies increased patient participation in pain management. Women undergoing this surgery need more information in hospital on why postoperative pain management beyond simple pain relief is important.


Assuntos
Atividades Cotidianas/psicologia , Atitude Frente a Saúde , Procedimentos Cirúrgicos Cardíacos/efeitos adversos , Dor Pós-Operatória/psicologia , Alta do Paciente , Mulheres/psicologia , Idoso , Idoso de 80 Anos ou mais , Efeitos Psicossociais da Doença , Feminino , Identidade de Gênero , Humanos , Tempo de Internação , Pessoa de Meia-Idade , Noruega , Pesquisa Metodológica em Enfermagem , Medição da Dor , Dor Pós-Operatória/diagnóstico , Dor Pós-Operatória/etiologia , Dor Pós-Operatória/prevenção & controle , Alta do Paciente/estatística & dados numéricos , Pesquisa Qualitativa , Autoadministração/psicologia , Autoadministração/estatística & dados numéricos , Índice de Gravidade de Doença , Inquéritos e Questionários , Mulheres/educação
11.
Stud Health Technol Inform ; 146: 373-7, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-19592869

RESUMO

As more and more people are living with chronic diseases, there is a greater need for patients to have access to accurate and reliable information about health in general and their own health care in particular. In this study we explored how patients suffering from chronic heart insufficiency who needed post-hospital home nursing care assessed their need for health information and their use of the health information they received. Fourteen patients were interviewed in their homes one week after their discharge. Using a thematic approach, we identified three main areas: the hospital systems for providing information to patients, how patients processed the information, and how patients managed the information. Next of kin had a significant role in information management for the patient. The patient's condition has implications for his or her ability to manage the information, and therefore it seems important to customize information according to the patient's level of comprehension.


Assuntos
Gestão da Informação , Educação de Pacientes como Assunto , Índice de Gravidade de Doença , Idoso , Idoso de 80 Anos ou mais , Feminino , Serviços de Assistência Domiciliar , Humanos , Entrevistas como Assunto , Masculino , Sistemas Computadorizados de Registros Médicos/organização & administração , Noruega , Cuidados de Enfermagem
12.
J Patient Rep Outcomes ; 3(1): 55, 2019 Aug 16.
Artigo em Inglês | MEDLINE | ID: mdl-31420775

RESUMO

PURPOSE: To explore the relationship between illness perceptions and self-reported general health of patients with chronic heart disease, using some core elements from the Common Sense Model. METHODS: Patients with heart failure (New York Heart Association [NYHA] Functional Class I-III) from five outpatient clinics in Eastern Norway were invited to participate in this cross-sectional study. Two research nurses collected socio-demographic data (age, sex, education and work status) and standardized questionnaires in structured interviews. Patients' self-reported general health was measured with the Euro-Qual Visual Analogue Scale (EQ-VAS), illness perceptions were measured with the 8-item Brief Illness Perception Questionnaire (BIPQ), and mood was assessed using the Hospital Anxiety and Depression Scale. RESULTS: Among the 220 patients who were recruited into this study (98% response rate), the mean age was 67.5 years (SD ± 12.5), and 65.9% were men. Patients were classified as NYHA Class I (8.7% with no activity limitations), Class II (47.6% with slight limitations), or Class III (43.8% with marked limitations). Mean EQ-VAS score was 58.8 (SD ± 21.0). Three of the eight perception of illness items (consequences, personal control and identity) were associated with the patients' general health rating, controlling for their NYHA Class, mood and other BIPQ items. CONCLUSIONS: Our findings suggest that patients' perceptions of their illness have an independent and substantial relationship to the self-rated general health of patients with chronic heart failure. Peoples' illness perceptions are beliefs that have been shown to be modifiable in clinical interventions. Thus, targeted interventions aimed to modify these, such as patient education courses, ought to be developed and tested, as they may be helpful for improving perceived health status.

13.
J Adv Nurs ; 63(5): 476-85, 2008 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-18727750

RESUMO

AIM: This paper is a report of a study to describe women's experiences and their self-management of postoperative pain after elective cardiac surgery. BACKGROUND: Cardiac surgery involves several pain-sensitive areas, and untreated postoperative pain may lead to chronic pain. Early discharge requires increased patient participation in pain management. Women report more postoperative pain than men after cardiac surgery. METHODS: Semi-structured interviews were conducted in 2004-2005 with 10 women 1-2 weeks after discharge from their first elective cardiac surgery. Qualitative content analysis was used to identify recurring themes. Pain diaries were used to record postoperative pain experiences 1-2 weeks before the interviews, providing more nuances to the experiences of pain and pain management. FINDINGS: Postoperative pain experiences varied from no pain to pain all the time. Worst pain intensity was recorded as moderate or more. Pain experiences depended on what women's expectations of pain after cardiac surgery. None wanted to complain about their painful experiences. The women had needed for more individualized information about self-management of pain, and had difficulties remembering the information they had received. Most did not want to use pain medication, or waited to do so until pain was unbearable. CONCLUSION: Patients need more individualized and gender-specific information before early discharge from cardiac surgery to improve self-management. More specific predischarge education on self-management using analgesics regularly might prevent pain ratings rising to a severe level after discharge home.


Assuntos
Dor Pós-Operatória/psicologia , Cuidados Pós-Operatórios , Cirurgia Torácica , Adaptação Psicológica , Idoso , Idoso de 80 Anos ou mais , Analgésicos/uso terapêutico , Procedimentos Cirúrgicos Eletivos , Feminino , Humanos , Pessoa de Meia-Idade , Dor Pós-Operatória/tratamento farmacológico , Inquéritos e Questionários
14.
J Adv Nurs ; 64(4): 363-71, 2008 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-18783472

RESUMO

AIM: This paper is a report of a study to explore the development of relationships between parents and nurses in a neonatal intensive care unit. BACKGROUND: As increasingly smaller premature babies survive, the prolonged hospitalization that follows makes relationships between parents and nurses crucial. A collaborative partnership in which all the family members' needs are acknowledged is suggested as the best approach. METHOD: A hermeneutic approach was adopted, using overt participant observation (160 hours) and in-depth interviews to study interactions between parents and nurses. The participants were six mothers, six fathers, and six nurses from a 13-bed Norwegian neonatal intensive care unit. Data were obtained over 27 weeks from 2003 until 2004. FINDINGS: A partnership between parents and nurses developed in three phases: the acute critical phase, the stabilizing phase, and the discharge phase. The stabilizing phase seemed the most challenging. As exhausted parents expressed the importance of maintaining the trusting relationship with their primary nurses to become confident when assuming more responsibility and adjusting to the new situation, nurses purposely withdrew and reduced their contact with parents, facilitating their independence and confidence as caretakers. Parents and nurses rarely seemed to discuss with each other the discrepancy in their understanding of the detachment process. CONCLUSION: Acknowledging the need for parents and nurses to discuss the processes of involvement and detachment may contribute positively to the development of family-centred care in neonatal intensive care units.


Assuntos
Terapia Intensiva Neonatal/psicologia , Enfermagem Neonatal/métodos , Enfermeiras e Enfermeiros/psicologia , Pais/psicologia , Relações Profissional-Família , Adulto , Feminino , Humanos , Recém-Nascido , Recém-Nascido Prematuro , Unidades de Terapia Intensiva Neonatal , Masculino , Pessoa de Meia-Idade , Noruega , Pesquisa Qualitativa
15.
J Clin Nurs ; 17(15): 2051-60, 2008 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-18705782

RESUMO

AIM AND OBJECTIVES: To provide new insights into the postoperative pain experiences of women after coming home following cardiac surgery. BACKGROUND: Studies show that many patients experience postoperative wound discomfort after cardiac surgery and women experience more pain than men before discharge. Male experiences have shaped the accepted biomedical theories on how cardiac surgery influences the lives of women. This has led to more cardiac studies with only female respondents in the past 10 years, but few focus on pain and pain management after early discharge. METHODS: The study reported here is part of a larger qualitative descriptive study. A self-developed pain diary measured pain intensity, types and amount of pain medication and its effectiveness at bedtime every day after returning home from hospital. The Brief Pain Inventory - Short Form provided a basis for comparison with the pain scores rated in the diaries from the final sample of nine women. Semi-structured interviews gave illuminating statements. RESULTS: The women had pain in the chest almost every day the first two weeks at home and this was expected. The pain in their neck, shoulders and back was unexpected and this pain worried them more. The women wanted to take as little medication as possible. Regular intake of pain medication resulted in more even pain scores, but not necessarily lower pain scores. CONCLUSIONS: The study adds new insights into how women experience postoperative pain upon returning home. Findings indicate that the women did not follow the recommended pain medication despite reporting worst pain as moderate or more during the whole period. RELEVANCE TO CLINICAL PRACTICE: Early discharge from hospitals gives patients more responsibility for taking care of themselves. Patients need more specific information about taking pain medication on a specified schedule to control pain.


Assuntos
Atitude Frente a Saúde , Procedimentos Cirúrgicos Cardíacos/efeitos adversos , Dor Pós-Operatória , Alta do Paciente , Autocuidado , Mulheres/psicologia , Adaptação Psicológica , Adulto , Idoso , Procedimentos Cirúrgicos Cardíacos/psicologia , Feminino , Hospitais Universitários , Humanos , Prontuários Médicos , Pessoa de Meia-Idade , Noruega , Pesquisa Metodológica em Enfermagem , Medição da Dor , Dor Pós-Operatória/diagnóstico , Dor Pós-Operatória/prevenção & controle , Dor Pós-Operatória/psicologia , Educação de Pacientes como Assunto , Pesquisa Qualitativa , Autoadministração , Autocuidado/métodos , Autocuidado/psicologia , Índice de Gravidade de Doença , Caracteres Sexuais , Fatores Sexuais , Inquéritos e Questionários , Mulheres/educação
16.
Scand J Caring Sci ; 22(4): 616-28, 2008 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-18785919

RESUMO

For patients 40 years and over, ischemic coronary heart diseases are the most common reasons for admittance in European and North American hospitals. Coronary artery bypass grafting (CABG) has proved to be the most effective treatment for ischemic coronary heart diseases when other treatments are ineffective. The aim of this article was through a synthesis to integrate and explore qualitative studies regarding patients' post-CABG experiences. Electronic searches were carried out in four databases using search terms for CABG combined with key search terms associated with qualitative research. Nineteen of 45 qualitative studies identified met the inclusion criteria. The included studies were appraised by a reading guide. Relevant findings where subsequently thematically analyzed in line with principles in qualitative descriptive research. The following key concepts described patients' experiences after CABG: The paradox of surviving alone with supportive relations, sense of self-disrupted, losses, fears and getting on with life. Thus, the synthesis revealed that patients' postoperative experiences influence their existential aspects of lifelong after surgery. Surprisingly, few studies treated suffering from postoperative pain as a specific topic. This underlines the need for more qualitative research exploring specific postsurgical experiences such as postoperative pain.


Assuntos
Ponte de Artéria Coronária/psicologia , Ponte de Artéria Coronária/reabilitação , Adulto , Atitude Frente a Saúde , Doença das Coronárias/cirurgia , Dependência Psicológica , Medo , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Noruega , Seleção de Pacientes , Apoio Social , Estados Unidos
17.
BMC Psychol ; 5(1): 18, 2017 Jun 08.
Artigo em Inglês | MEDLINE | ID: mdl-28595651

RESUMO

BACKGROUND: A person's sense of coherence (SOC) reflects their perception that the world is meaningful and predictable, and impacts their ability to deal with stressors in a health-promoting manner. A valid, reliable, and sensitive measure of SOC is needed to advance health promotion research based on this concept. The 13-item Sense of Coherence Scale (SOC-13) is widely used, but we reported in a previous evaluation its psychometric limitations when used with adults with morbid obesity. To determine whether the identified limitations were specific to that population or also generalize to other populations, we have replicated our prior study design and analysis in a new sample of adults with inflammatory bowel disease (IBD). METHODS: A sample of 428 adults with IBD completed the SOC-13 at a routine clinic visit in Norway between October 1, 2009 and May 31, 2011. Using a Rasch analysis approach, the SOC-13 and its three subscales were evaluated in terms of rating scale functioning, internal scale validity, person-response validity, person-separation reliability and differential item functioning. RESULTS: Collapsing categories at the low end of the 7-category rating scale improved its overall functioning. Two items demonstrated poor fit to the Rasch model, and once they were deleted from the scale, the remaining 11-item scale (SOC-11) demonstrated acceptable item fit. However, neither the SOC-13 nor the SOC-11 met the criteria for unidimensionality or person-response validity. While both the SOC-13 and SOC-11 were able to distinguish three groups of SOC, none of the subscales could distinguish any such groups. Minimal differential item functioning related to demographic characteristics was also observed. CONCLUSIONS: An 11-item version of the sense of coherence scale has better psychometric properties than the original 13-item scale among adults with IBD. These findings are similar to those of our previous evaluation among adults with morbid obesity and suggest that the identified limitations may exist across populations. Further refinement of the SOC scale is therefore warranted.


Assuntos
Testes de Personalidade , Senso de Coerência , Adolescente , Adulto , Idoso , Feminino , Humanos , Doenças Inflamatórias Intestinais/psicologia , Masculino , Pessoa de Meia-Idade , Noruega , Qualidade de Vida , Reprodutibilidade dos Testes , Inquéritos e Questionários , Adulto Jovem
18.
Patient Educ Couns ; 63(1-2): 169-76, 2006 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-16426797

RESUMO

OBJECTIVE: To describe patients' perceptions of a new information procedure related to going home after urological surgery. This procedure, developed in an action research project, included a discharge talk with the nurse and an information booklet for the patients to keep. METHODS: A convenience sample of 99 patients responded to a survey sent home 1 week after discharge (return 78.6%). The Patient Information and Nurse Interaction Scale (PINI) was used for data collection. RESULTS: The sample were mostly male (81%), older (mean 71.9 years), and hospitalised on average less than 4 days. Patients who got the booklet had significantly more favourable perceptions on information received (p<0.05) on 11 of 21 items, and 91% said they would not have managed very well at home without it. CONCLUSION: The patients who received the booklet knew more about what might happen to them, were less uncertain and had fewer concerns when going home. PRACTICE IMPLICATIONS: The combination of standardised written information and a talk with the nurse where patients participated in individualising the information appears to have had a significant impact on self-management at home.


Assuntos
Atitude Frente a Saúde , Alta do Paciente/normas , Educação de Pacientes como Assunto/organização & administração , Procedimentos Cirúrgicos Urológicos , Adaptação Psicológica , Idoso , Distribuição de Qui-Quadrado , Feminino , Pesquisa sobre Serviços de Saúde , Hospitais Universitários , Humanos , Masculino , Avaliação das Necessidades , Noruega , Papel do Profissional de Enfermagem/psicologia , Relações Enfermeiro-Paciente , Pesquisa em Avaliação de Enfermagem , Pesquisa Metodológica em Enfermagem , Recursos Humanos de Enfermagem Hospitalar/organização & administração , Recursos Humanos de Enfermagem Hospitalar/psicologia , Folhetos , Materiais de Ensino/normas , Ressecção Transuretral da Próstata/educação , Ressecção Transuretral da Próstata/enfermagem , Ressecção Transuretral da Próstata/psicologia , Procedimentos Cirúrgicos Urológicos/educação , Procedimentos Cirúrgicos Urológicos/enfermagem , Procedimentos Cirúrgicos Urológicos/psicologia
19.
J Multidiscip Healthc ; 9: 191-200, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27175082

RESUMO

BACKGROUND: Morbid obesity and chronic obstructive pulmonary disease (COPD) are prevalent diseases associated with impaired health-related quality of life (HRQoL). Research generally indicates that persons with morbid obesity increase their HRQoL following intervention, whereas evidence of increases in HRQoL in persons with COPD is mixed. Examining the patterns of change over time instead of merely examining whether HRQoL changes will add to the knowledge in this field. METHODS: A sample of persons with morbid obesity and persons with COPD was recruited from learning and mastery courses and rehabilitation centers in Norway. The data were collected by self-report questionnaires at the start of patient education and at four subsequent time points during the 1-year follow-up. HRQoL was measured with the Short Form 12, version 2, and repeated measures analysis of variance was employed in the statistical analysis. RESULTS: Participants with morbid obesity linearly increased their physical HRQoL during the 1-year follow-up, whereas participants with COPD showed no change. None of the groups changed their mental HRQoL during follow-up. In all subdomains of HRQoL, the participants with morbid obesity showed favorable, linearly increasing trajectories across the follow-up period. Among the participants with COPD, no change patterns occurred in the subdomains of HRQoL, except for a fluctuating pattern in the mental health domain. Age, sex, and work status did not influence the trajectories of HRQoL in any of the domains. CONCLUSION: A more favorable trajectory of HRQoL was found for persons with morbid obesity than for persons with COPD, possibly due to the obese persons' better chances of recovery.

20.
J Multidiscip Healthc ; 9: 355-63, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-27574438

RESUMO

BACKGROUND: Chronic illness is a risk factor for low self-esteem, and the research literature needs to include more studies of self-esteem and its development in chronic illness groups using longitudinal and comparative designs. The aim of this study was to explore the trajectories of self-esteem and of positive and negative affect in persons with morbid obesity and in persons with chronic obstructive pulmonary disease (COPD). METHODS: Patient education course attendants in Norway having morbid obesity (n=139) or COPD (n=97) participated in the study. Data concerning self-esteem, positive and negative affect, and sociodemographic background were collected at the start and at the end of the patient education, with subsequent follow-ups at 3, 6, and 12 months. Data were analyzed using linear mixed models for repeated measures. RESULTS: Taking all measurements into account, our data revealed a statistically significant increase in self-esteem for participants with morbid obesity but not for those with COPD. There were no significant differences in levels of negative and positive affect between the two groups, and the time-trajectories were also similar. However, participants in both groups achieved lower levels of negative affect for all the successive measurement points. CONCLUSION: An increase in self-esteem during the first year after the patient education course was observed for persons with morbid obesity, but not for persons with COPD. Initial higher levels of self-esteem in the participants with COPD may indicate that they are less troubled with low self-esteem than people with morbid obesity are. The pattern of reduced negative affect for both groups during follow-up is promising.

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