Detalhe da pesquisa
1.
Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes.
Clin Genet
; 103(6): 672-680, 2023 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-36960544
2.
Out of This World: re-grounding justice through science fiction.
Perspect Biol Med
; 66(2): 284-298, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-37755717
3.
Dobbs, the Intrusive State, and the Future of Solidarity.
Camb Q Healthc Ethics
; 32(3): 344-356, 2023 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-36924181
4.
Othering and Health Justice.
Perspect Biol Med
; 65(4): 604-611, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-36468388
5.
Tracheostomy decision-making for children with medical complexity: What supports and resources do caregivers need?
Palliat Support Care
; : 1-7, 2022 Aug 24.
Artigo
em Inglês
| MEDLINE | ID: mdl-36000170
6.
Early Check: translational science at the intersection of public health and newborn screening.
BMC Pediatr
; 19(1): 238, 2019 07 17.
Artigo
em Inglês
| MEDLINE | ID: mdl-31315600
7.
Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity.
J Pediatr
; 203: 354-360.e1, 2018 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-30236548
8.
Ensuring respect for persons in COMPASS: a cluster randomised pragmatic clinical trial.
J Med Ethics
; 44(8): 560-566, 2018 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-29720489
9.
Points to consider to avoid unfair discrimination and the misuse of genetic information: A statement of the American College of Medical Genetics and Genomics (ACMG).
Genet Med
; 24(3): 512-520, 2022 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-35253645
10.
Ethical considerations in tissue engineering research: Case studies in translation.
Methods
; 99: 135-44, 2016 Apr 15.
Artigo
em Inglês
| MEDLINE | ID: mdl-26282436
11.
Beyond the Medical Model: Retooling Bioethics for the Work Ahead.
Am J Bioeth
; 21(2): 53-55, 2021 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-33534685
12.
Why Climate Literacy Is Health Literacy.
AMA J Ethics
; 26(2): E147-152, 2024 Feb 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-38306204
13.
Perceptions regarding genetic testing in populations at risk for nephropathy.
Am J Nephrol
; 38(6): 453-7, 2013.
Artigo
em Inglês
| MEDLINE | ID: mdl-24280773
14.
Why we should continue to worry about the therapeutic misconception.
J Clin Ethics
; 24(4): 381-6, 2013.
Artigo
em Inglês
| MEDLINE | ID: mdl-24597426
15.
DEI Is Not Enough.
Hastings Cent Rep
; 52(3): 3, 2022 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-35763207
16.
The role of religion and spirituality in caregiver decision-making about tracheostomy for children with medical complexity.
J Health Care Chaplain
; 28(1): 95-107, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-32319863
17.
Collaborative decision-making: A framework for decision-making about life-sustaining treatments in children with medical complexity.
Pediatr Pulmonol
; 57(12): 3094-3103, 2022 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-36098220
18.
Education and Consent for Population-Based DNA Screening: A Mixed-Methods Evaluation of the Early Check Newborn Screening Pilot Study.
Front Genet
; 13: 891592, 2022.
Artigo
em Inglês
| MEDLINE | ID: mdl-35646095
19.
Clarifying the Ethics and Oversight of Chimeric Research.
Hastings Cent Rep
; 52 Suppl 2: S2-S23, 2022 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-36484509
20.
The OHRP and SUPPORT--another view.
N Engl J Med
; 369(2): e3, 2013 Jul 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-23803134