Detalhe da pesquisa
1.
From collected stamps to hair locks: ethical and legal implications of testing DNA found on privately owned family artifacts.
Hum Genet
; 142(3): 331-341, 2023 Mar.
Artigo
em Inglês
| MEDLINE | ID: mdl-36456648
2.
The Data Governance Act and the EU's move towards facilitating data sharing.
Mol Syst Biol
; 17(3): e10229, 2021 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-33755313
3.
Data sharing platforms and the academic evaluation system.
EMBO Rep
; 21(8): e50690, 2020 08 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-32656889
4.
Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study.
J Med Internet Res
; 24(1): e25983, 2022 01 13.
Artigo
em Inglês
| MEDLINE | ID: mdl-35023849
5.
Raw Genomic Data: Storage, Access, and Sharing.
Trends Genet
; 34(1): 8-10, 2018 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-29132689
6.
Forensic Epigenetic Age Estimation and Beyond: Ethical and Legal Considerations.
Trends Genet
; 34(7): 489-491, 2018 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-29674182
7.
Ethics review of big data research: What should stay and what should be reformed?
BMC Med Ethics
; 22(1): 51, 2021 04 30.
Artigo
em Inglês
| MEDLINE | ID: mdl-33931049
8.
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions.
J Med Ethics
; 2020 Oct 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-33023977
9.
Variant data sharing by clinical laboratories through public databases: consent, privacy and further contact for research policies.
Genet Med
; 21(5): 1031-1037, 2019 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-30293992
10.
Reconciling diversity in health and genomic data collection with the regulation of AI in clinical genomics.
Genet Med
; : 101127, 2024 Mar 28.
Artigo
em Inglês
| MEDLINE | ID: mdl-38555522
11.
Transparency and objectivity in governance of clinical trials data sharing: Current practices and approaches.
Clin Trials
; 16(5): 547-551, 2019 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-31347399
12.
Model consent clauses for rare disease research.
BMC Med Ethics
; 20(1): 55, 2019 08 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-31370847
13.
Controlled Access under Review: Improving the Governance of Genomic Data Access.
PLoS Biol
; 13(12): e1002339, 2015 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-26720729
14.
"You want the right amount of oversight": interviews with data access committee members and experts on genomic data access.
Genet Med
; 18(9): 892-7, 2016 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-26795589
15.
Re-identifiability of genomic data and the GDPR: Assessing the re-identifiability of genomic data in light of the EU General Data Protection Regulation.
EMBO Rep
; 20(6)2019 06.
Artigo
em Inglês
| MEDLINE | ID: mdl-31126909
16.
Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?
Ann Intern Med
; 170(5): 332-334, 2019 03 05.
Artigo
em Inglês
| MEDLINE | ID: mdl-30776795
17.
Ethical and social reflections on the proposed European Health Data Space.
Eur J Hum Genet
; 32(5): 498-505, 2024 May.
Artigo
em Inglês
| MEDLINE | ID: mdl-38355959
18.
Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory.
Eur J Hum Genet
; 32(1): 69-76, 2024 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-37322132
19.
Genomic Data as a National Strategic Resource: Implications for the Genomic Commons and International Data Sharing for Biomedical Research and Innovation.
J Law Med Ethics
; 51(2): 301-313, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-37655566
20.
Reward systems for cohort data sharing: An interview study with funding agencies.
PLoS One
; 18(3): e0282969, 2023.
Artigo
em Inglês
| MEDLINE | ID: mdl-36961773