Ten Years of the International Pompe Survey: Patient-Reported Outcomes as a Reliable Tool for Studying Treated and Untreated Children and Adults with Non-Classic Pompe Disease.

van der Meijden, J C; Güngör, D; Kruijshaar, M E; Muir, A D J; Broekgaarden, H A; van der Ploeg, A T

van der Meijden, J C; Güngör, D; Kruijshaar, M E; Muir, A D J; Broekgaarden, H A; van der Ploeg, A T.

Afiliação

van der Meijden JC; Center for Lysosomal and Metabolic diseases, Erasmus MC University Medical Center, Rotterdam, Netherlands.
Güngör D; Center for Lysosomal and Metabolic diseases, Erasmus MC University Medical Center, Rotterdam, Netherlands.
Kruijshaar ME; Center for Lysosomal and Metabolic diseases, Erasmus MC University Medical Center, Rotterdam, Netherlands.
Muir AD; International Pompe Association, Association for Glycogen Storage Disease UK, UK.
Broekgaarden HA; International Pompe Association, Vereniging Spierziekten Nederland, Netherlands.
van der Ploeg AT; Center for Lysosomal and Metabolic diseases, Erasmus MC University Medical Center, Rotterdam, Netherlands.

J Neuromuscul Dis ; 2(s1): S35, 2015.

Article em En | MEDLINE | ID: mdl-27858630

Buscar no Google

Imprimir

XML

PubMed Links

Base de dados: MEDLINE Idioma: En Revista: J Neuromuscul Dis Ano de publicação: 2015 Tipo de documento: Article País de afiliação: Holanda

Buscar no Google

Imprimir

XML

PubMed Links

Base de dados: MEDLINE Idioma: En Revista: J Neuromuscul Dis Ano de publicação: 2015 Tipo de documento: Article País de afiliação: Holanda