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Evaluating Implementation of the Updated Care Considerations for Duchenne Muscular Dystrophy.
Ong, Katherine S; Kinnett, Kathi; Soelaeman, Rieza; Webb, Lauren; Bain, Jennifer S; Martin, Ann S; Westfield, Christina; Bolen, Julie; Street, Natalie.
Afiliação
  • Ong KS; National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia; ylz4@cdc.gov.
  • Kinnett K; Carter Consulting, Inc, Atlanta, Georgia.
  • Soelaeman R; Parent Project Muscular Dystrophy, Middletown, Ohio.
  • Webb L; National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia.
  • Bain JS; Muscular Dystrophy Association, Chicago, Illinois.
  • Martin AS; National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia.
  • Westfield C; McKing Consulting Corporation, Atlanta, Georgia; and.
  • Bolen J; Parent Project Muscular Dystrophy, Middletown, Ohio.
  • Street N; New York State Health Department, Albany, New York.
Pediatrics ; 142(Suppl 2): S118-S128, 2018 10.
Article em En | MEDLINE | ID: mdl-30275256
ABSTRACT
Care Considerations for Duchenne Muscular Dystrophy were published in 2010. However, little is known about the extent to which these considerations were implemented after publication. With this article, we provide direction on evaluating the uptake of the 2018 Duchenne Muscular Dystrophy Care Considerations. We identify key elements of care and present suggestions for their use in evaluation and research.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Distrofia Muscular de Duchenne / Atenção à Saúde / Implementação de Plano de Saúde Tipo de estudo: Sysrev_observational_studies Limite: Humans Idioma: En Revista: Pediatrics Ano de publicação: 2018 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Distrofia Muscular de Duchenne / Atenção à Saúde / Implementação de Plano de Saúde Tipo de estudo: Sysrev_observational_studies Limite: Humans Idioma: En Revista: Pediatrics Ano de publicação: 2018 Tipo de documento: Article