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European Reference Network for Rare Vascular Diseases (VASCERN) position statement on cerebral screening in adults and children with hereditary haemorrhagic telangiectasia (HHT).
Eker, Omer F; Boccardi, Edoardo; Sure, Ulrich; Patel, Maneesh C; Alicante, Saverio; Alsafi, Ali; Coote, Nicola; Droege, Freya; Dupuis, Olivier; Fialla, Annette Dam; Jones, Bryony; Kariholu, Ujwal; Kjeldsen, Anette D; Lefroy, David; Lenato, Gennaro M; Mager, Hans Jurgen; Manfredi, Guido; Nielsen, Troels H; Pagella, Fabio; Post, Marco C; Rennie, Catherine; Sabbà, Carlo; Suppressa, Patrizia; Toerring, Pernille M; Ugolini, Sara; Buscarini, Elisabetta; Dupuis-Girod, Sophie; Shovlin, Claire L.
Afiliação
  • Eker OF; VASCERN HHT Reference Centre, Hospices Civils de Lyon, Lyon, France. omer.eker@chu-lyon.fr.
  • Boccardi E; Niguarda Hospital, Milan, Italy and VASCERN HHT Reference Centre, Crema, Italy.
  • Sure U; VASCERN HHT Reference Centre, Essen University Hospital, Essen, Germany.
  • Patel MC; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK.
  • Alicante S; VASCERN HHT Reference Centre, ASST Maggiore Hospital, Crema, Italy.
  • Alsafi A; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK.
  • Coote N; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK.
  • Droege F; VASCERN HHT Reference Centre, Essen University Hospital, Essen, Germany.
  • Dupuis O; VASCERN HHT Reference Centre, Hospices Civils de Lyon, Lyon, France.
  • Fialla AD; VASCERN HHT Reference Centre, Odense Universitetshospital, Syddansk Universitet, Odense, Denmark.
  • Jones B; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK.
  • Kariholu U; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK.
  • Kjeldsen AD; VASCERN HHT Reference Centre, Odense Universitetshospital, Syddansk Universitet, Odense, Denmark.
  • Lefroy D; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK.
  • Lenato GM; VASCERN HHT Reference Centre, "Frugoni" Internal Medicine Unit, University of Bari "A. Moro", Policlinico, Bari, Italy.
  • Mager HJ; VASCERN HHT Reference Centre, St Antonius Ziekenhuis, Nieuwegein, Netherlands.
  • Manfredi G; VASCERN HHT Reference Centre, ASST Maggiore Hospital, Crema, Italy.
  • Nielsen TH; VASCERN HHT Reference Centre, Odense Universitetshospital, Syddansk Universitet, Odense, Denmark.
  • Pagella F; VASCERN HHT Reference Centre, University of Pavia, IRCCS Policlinico San Matteo Foundation, Pavia, Italy.
  • Post MC; VASCERN HHT Reference Centre, St Antonius Ziekenhuis, Nieuwegein, Netherlands.
  • Rennie C; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK.
  • Sabbà C; VASCERN HHT Reference Centre, "Frugoni" Internal Medicine Unit, University of Bari "A. Moro", Policlinico, Bari, Italy. carlo.sabba@uniba.it.
  • Suppressa P; VASCERN HHT Reference Centre, "Frugoni" Internal Medicine Unit, University of Bari "A. Moro", Policlinico, Bari, Italy.
  • Toerring PM; VASCERN HHT Reference Centre, Odense Universitetshospital, Syddansk Universitet, Odense, Denmark.
  • Ugolini S; VASCERN HHT Reference Centre, University of Pavia, IRCCS Policlinico San Matteo Foundation, Pavia, Italy.
  • Buscarini E; VASCERN HHT Reference Centre, ASST Maggiore Hospital, Crema, Italy. elisabetta.buscarini@asst-crema.it.
  • Dupuis-Girod S; VASCERN HHT Reference Centre, Hospices Civils de Lyon, Lyon, France.
  • Shovlin CL; VASCERN HHT Reference Centre, Imperial College Healthcare National Health Service Trust, London, UK and Imperial College London, London, UK. c.shovlin@imperial.ac.uk.
Orphanet J Rare Dis ; 15(1): 165, 2020 06 29.
Article em En | MEDLINE | ID: mdl-32600364
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Telangiectasia Hemorrágica Hereditária / Malformações Arteriovenosas Intracranianas Tipo de estudo: Diagnostic_studies / Guideline / Prognostic_studies / Qualitative_research / Screening_studies Limite: Adult / Child / Humans Idioma: En Revista: Orphanet J Rare Dis Assunto da revista: MEDICINA Ano de publicação: 2020 Tipo de documento: Article País de afiliação: França
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Telangiectasia Hemorrágica Hereditária / Malformações Arteriovenosas Intracranianas Tipo de estudo: Diagnostic_studies / Guideline / Prognostic_studies / Qualitative_research / Screening_studies Limite: Adult / Child / Humans Idioma: En Revista: Orphanet J Rare Dis Assunto da revista: MEDICINA Ano de publicação: 2020 Tipo de documento: Article País de afiliação: França