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The End Unexplained Cardiac Death (EndUCD) Registry for Young Australian Sudden Cardiac Arrest.
Paratz, Elizabeth D; Rowsell, Luke; van Heusden, Alexander; Zentner, Dominica; Parsons, Sarah; Morgan, Natalie; Thompson, Tina; James, Paul; Pflaumer, Andreas; Semsarian, Christopher; Ingles, Jodie; Case, Rosalind; Ball, Jocasta; Smith, Karen; Stub, Dion; La Gerche, Andre.
Afiliação
  • Paratz ED; Baker Heart and Diabetes Institute, Melbourne, Vic, Australia; Alfred Hospital, Melbourne, Vic, Australia; St Vincent's Hospital Melbourne, Melbourne, Vic, Australia. Electronic address: eparatz@hotmail.com.
  • Rowsell L; Baker Heart and Diabetes Institute, Melbourne, Vic, Australia.
  • van Heusden A; Baker Heart and Diabetes Institute, Melbourne, Vic, Australia.
  • Zentner D; Royal Melbourne Hospital, Melbourne, Vic, Australia; Royal Melbourne Hospital Clinical School, Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne, Melbourne, Vic, Australia.
  • Parsons S; Victorian Institute of Forensic Medicine, Melbourne, Vic, Australia; Department of Forensic Medicine, Monash University, Melbourne, Vic, Australia.
  • Morgan N; Victorian Institute of Forensic Medicine, Melbourne, Vic, Australia.
  • Thompson T; Royal Melbourne Hospital, Melbourne, Vic, Australia.
  • James P; Royal Melbourne Hospital, Melbourne, Vic, Australia.
  • Pflaumer A; Royal Children's Hospital, Melbourne, Vic, Australia; Department of Paediatrics, Melbourne University, Melbourne, Vic, Australia; Murdoch Children's Research Institute, Royal Children's Hospital, Melbourne, Vic, Australia.
  • Semsarian C; Agnes Ginges Centre for Molecular Cardiology at Centenary Institute, The University of Sydney, Sydney, NSW, Australia.
  • Ingles J; Cardio Genomics Program at Centenary Institute, The University of Sydney, Sydney, NSW, Australia; Department of Cardiology, Royal Prince Alfred Hospital, Sydney, NSW, Australia; Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.
  • Case R; Baker Heart and Diabetes Institute, Melbourne, Vic, Australia; Alfred Hospital, Melbourne, Vic, Australia; Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Vic, Australia; Ambulance Victoria, Melbourne, Vic, Australia; Florey Institute of Neuroscience and Mental Heal
  • Ball J; Baker Heart and Diabetes Institute, Melbourne, Vic, Australia; Ambulance Victoria, Melbourne, Vic, Australia; Department of Community Emergency Health and Paramedic Practice, Monash University, Melbourne, Vic, Australia.
  • Smith K; Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Vic, Australia; Ambulance Victoria, Melbourne, Vic, Australia; Department of Community Emergency Health and Paramedic Practice, Monash University, Melbourne, Vic, Australia.
  • Stub D; Baker Heart and Diabetes Institute, Melbourne, Vic, Australia; Alfred Hospital, Melbourne, Vic, Australia; Ambulance Victoria, Melbourne, Vic, Australia; Florey Institute of Neuroscience and Mental Health, Melbourne, Vic, Australia.
  • La Gerche A; Baker Heart and Diabetes Institute, Melbourne, Vic, Australia; Alfred Hospital, Melbourne, Vic, Australia; St Vincent's Hospital Melbourne, Melbourne, Vic, Australia.
Heart Lung Circ ; 30(5): 714-720, 2021 May.
Article em En | MEDLINE | ID: mdl-33199184
ABSTRACT
In 2019, the first multi-source registry of sudden cardiac arrest and death for patients aged 1-50 years launched in Victoria, Australia. Sudden cardiac arrest (SCA) affects approximately fifteen hundred younger Victorians per year. The End Unexplained Cardiac Death (EndUCD) Registry enrols SCA/death (D) cases aged 1-50 years, providing family screening, access to psychological support through clinical sites and creating a genetic biorepository for whole-genome sequencing. The registry will support clear pathways of cardiac assessment, epidemiological profiling and routine family screening and psychological support.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Morte Súbita Cardíaca / Parada Cardíaca Tipo de estudo: Etiology_studies Limite: Humans País/Região como assunto: Oceania Idioma: En Revista: Heart Lung Circ Assunto da revista: ANGIOLOGIA / CARDIOLOGIA Ano de publicação: 2021 Tipo de documento: Article
Texto completo
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XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Morte Súbita Cardíaca / Parada Cardíaca Tipo de estudo: Etiology_studies Limite: Humans País/Região como assunto: Oceania Idioma: En Revista: Heart Lung Circ Assunto da revista: ANGIOLOGIA / CARDIOLOGIA Ano de publicação: 2021 Tipo de documento: Article