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Self-advocacy Behaviors and Needs in Women with Advanced Cancer: Assessment and Differences by Patient Characteristics.
Thomas, Teresa Hagan; Taylor, Sarah; Rosenzweig, Margaret; Schenker, Yael; Bender, Catherine.
Afiliação
  • Thomas TH; School of Nursing, University of Pittsburgh, 3500 Victoria Street Suite 440, Pittsburgh, PA, 15261, USA. t.thomas@pitt.edu.
  • Taylor S; Palliative Research Center (PaRC), University of Pittsburgh, Pittsburgh, PA, USA. t.thomas@pitt.edu.
  • Rosenzweig M; University of Pittsburgh Medical Center Magee-Womens Hospital, Pittsburgh, PA, USA.
  • Schenker Y; Palliative Research Center (PaRC), University of Pittsburgh, Pittsburgh, PA, USA.
  • Bender C; University of Pittsburgh Medical Center Magee-Womens Hospital, Pittsburgh, PA, USA.
Int J Behav Med ; 30(2): 211-220, 2023 Apr.
Article em En | MEDLINE | ID: mdl-35794411
BACKGROUND: Self-advocacy skills allow individuals with cancer to overcome challenges related to their health, care, and well-being. Understanding the self-advocacy behaviors and needs of individuals with cancer is critical to addressing the lack of evidence-based self-advocacy interventions. The aims of this study are to describe (1) self-advocacy behaviors and needs of women with advanced cancer and (2) associations between self-advocacy and sociodemographic, cancer, and patient-reported outcomes. METHODS: We analyzed cross-sectional data from a clinical trial among women within 3 months of a metastatic breast or stage III or IV gynecologic cancer diagnosis. Descriptive and correlational statistics and tests of group difference were calculated for measures of self-advocacy (Female Self-Advocacy in Cancer Survivorship Scale), sociodemographic characteristics, quality of life (FACT-G), symptom burden (M.D. Anderson Symptom Inventory), and mood (Hospital Anxiety and Depression Scale). RESULTS: Participants (N = 78) reported self-advocacy behaviors including making decisions based on their priorities, asking questions to their healthcare providers, and comparing their experiences to others' experiences. Self-advocacy needs focused on finding health information and talking with healthcare providers. Self-advocacy behaviors and needs did not differ by participants' sociodemographic characteristics or mood. Higher self-advocacy behaviors were associated with higher quality of life (p ≤ .01) and lower symptom severity (p < .05) with a trend for cancer recurrence (p = .05). CONCLUSIONS: Women with advanced cancer report engaging in self-advocacy behaviors and these are associated with higher quality of life and lower symptom burden. Future research should determine if self-advocacy behaviors and needs change over time and how patient characteristics impact self-advocacy behaviors and needs.
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Sobreviventes de Câncer / Neoplasias Tipo de estudo: Prognostic_studies Limite: Female / Humans Idioma: En Revista: Int J Behav Med Assunto da revista: CIENCIAS DO COMPORTAMENTO Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Sobreviventes de Câncer / Neoplasias Tipo de estudo: Prognostic_studies Limite: Female / Humans Idioma: En Revista: Int J Behav Med Assunto da revista: CIENCIAS DO COMPORTAMENTO Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Estados Unidos