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Patient-Reported Symptom Burden of Charcot-Marie-Tooth Disease Type 1A: Findings From an Observational Digital Lifestyle Study.
Thomas, Florian P; Saporta, Mario A; Attarian, Shahram; Sevilla, Teresa; Sivera, Rafael; Fabrizi, Gian M; Genovese, Filippo; Gray, Amy J; Bull, Simon; Tanesse, Daniel; Rego, Manuel; Moore, Allison; Hollett, Courtney; Paoli, Xavier; Sénéchal, Thomas; Day, Laura; Ouyang, Chengyu; Llewellyn, Samuel; Larkin, Mark; Boutalbi, Youcef.
Afiliação
  • Thomas FP; Hackensack Meridian School of Medicine, Hackensack University Medical Center, Hackensack, NJ.
  • Saporta MA; University of Miami Miller School of Medicine, Miami, FL.
  • Attarian S; Hospital University la Timone, Filnemus ERN-NMD, Marseille, France.
  • Sevilla T; Hospital Universitari i Politècnic La Fe, Universitate de Valencia, CIBERER, Valencia, Spain.
  • Sivera R; Hospital Universitari i Politècnic La Fe, CIBERER, Valencia, Spain.
  • Fabrizi GM; Department of Neurosciences, Biomedicine & Movement Sciences, University of Verona, Verona, Italy.
  • Genovese F; ACMT-Rete per la malattia di Charcot-Marie-Tooth OdV, Bologna, Italy.
  • Gray AJ; Charcot-Marie-Tooth Association, Glenolden, PA.
  • Bull S; Charcot-Marie-Tooth UK, Christchurch, United Kingdom.
  • Tanesse D; CMT France, Saint-Alban, France.
  • Rego M; Federación Española de Enfermedades Neuromusculares, Barcelona, Spain.
  • Moore A; Hereditary Neuropathy Foundation, New York, NY.
  • Hollett C; Hereditary Neuropathy Foundation, New York, NY.
  • Paoli X; Pharnext, Paris, France ; and.
  • Sénéchal T; Pharnext, Paris, France ; and.
  • Day L; Vitaccess, Oxford, United Kingdom .
  • Ouyang C; Vitaccess, Oxford, United Kingdom .
  • Llewellyn S; Vitaccess, Oxford, United Kingdom .
  • Larkin M; Vitaccess, Oxford, United Kingdom .
  • Boutalbi Y; Hackensack Meridian School of Medicine, Hackensack University Medical Center, Hackensack, NJ.
J Clin Neuromuscul Dis ; 24(1): 7-17, 2022 Sep 01.
Article em En | MEDLINE | ID: mdl-36005469
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Charcot-Marie-Tooth Tipo de estudo: Diagnostic_studies / Etiology_studies / Observational_studies Limite: Adult / Humans Idioma: En Revista: J Clin Neuromuscul Dis Assunto da revista: FISIOLOGIA / NEUROLOGIA Ano de publicação: 2022 Tipo de documento: Article
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doença de Charcot-Marie-Tooth Tipo de estudo: Diagnostic_studies / Etiology_studies / Observational_studies Limite: Adult / Humans Idioma: En Revista: J Clin Neuromuscul Dis Assunto da revista: FISIOLOGIA / NEUROLOGIA Ano de publicação: 2022 Tipo de documento: Article