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Improving care pathways for people living with rare bone diseases (RBDs): outcomes from the first RBD Summit.
Chandran, Manju; Alves, Ines; Carpenter, Thomas; Davis, Michelle; Hsiao, Edward C; Petryk, Anna; Semler, Jorg Oliver; Sleiman, Marwan.
Afiliação
  • Chandran M; Osteoporosis and Bone Metabolism Unit, Department of Endocrinology, Singapore General Hospital, DUKE NUS Medical School, Singapore, Singapore. mchandran7@gmail.com.
  • Alves I; ANDO Portugal, CHRC, University of Évora, European Reference Network On Rare Bone Diseases, Évora, Portugal.
  • Carpenter T; Department of Pediatrics, Yale University School of Medicine Connecticut, New Haven, USA.
  • Davis M; International Fibrodysplasia Ossificans Progressiva Association (IFOPA), North Kansas City, USA.
  • Hsiao EC; Division of Endocrinology and Metabolism, the Institute for Human Genetics, the Eli and Edythe Broad Institute for Regeneration Medicine and Stem Cell Research, the Program in Craniofacial Biology, and the Department of Medicine, University of California, San Francisco, USA.
  • Petryk A; Department of Global Medical Affairs, Alexion Pharmaceuticals, Inc, AstraZeneca Rare Disease, Boston, USA.
  • Semler JO; Department of Pediatrics, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany.
  • Sleiman M; Center for Rare Diseases, Faculty of Medicine and University Hospital Cologne, University of Cologne, Cologne, Germany.
Osteoporos Int ; 34(8): 1301-1310, 2023 Aug.
Article em En | MEDLINE | ID: mdl-37294334
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Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doenças Ósseas / Melhoria de Qualidade Tipo de estudo: Guideline Limite: Humans Idioma: En Revista: Osteoporos Int Assunto da revista: METABOLISMO / ORTOPEDIA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Singapura
Texto completo
Imprimir
XML
PubMed Links
Buscar no Google

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Doenças Ósseas / Melhoria de Qualidade Tipo de estudo: Guideline Limite: Humans Idioma: En Revista: Osteoporos Int Assunto da revista: METABOLISMO / ORTOPEDIA Ano de publicação: 2023 Tipo de documento: Article País de afiliação: Singapura