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Critical incidents, nocturnal supervision, and caregiver knowledge on SUDEP in patients with Dravet syndrome: A prospective multicenter study in Germany.
Maltseva, Margarita; Rosenow, Felix; Schubert-Bast, Susanne; Flege, Silke; Wolff, Markus; von Spiczak, Sarah; Trollmann, Regina; Syrbe, Steffen; Ruf, Susanne; Polster, Tilman; Neubauer, Bernd A; Mayer, Thomas; Jacobs, Julia; Kurlemann, Gerhard; Kluger, Gerhard; Klotz, Kerstin A; Kieslich, Matthias; Kay, Lara; Hornemann, Frauke; Bettendorf, Ulrich; Bertsche, Astrid; Bast, Thomas; Strzelczyk, Adam.
Afiliação
  • Maltseva M; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.
  • Rosenow F; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Schubert-Bast S; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.
  • Flege S; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Wolff M; Epilepsy Center Frankfurt Rhine-Main and Department of Neurology, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.
  • von Spiczak S; Center for Personalized Translational Epilepsy Research (CePTER), Goethe-University Frankfurt, Frankfurt am Main, Germany.
  • Trollmann R; Department of Neuropediatrics, Goethe-University and University Hospital Frankfurt, Frankfurt am Main, Germany.
  • Syrbe S; Dravet Syndrom e.V., Frankfurt am Main, Germany.
  • Ruf S; Center of Pediatric Neurology, Vivantes Hospital Neukoelln, Berlin, Germany.
  • Polster T; Swiss Epilepsy Center, Klinik Lengg AG, Zürich, Switzerland.
  • Neubauer BA; Northern German Epilepsy Centre for Children and Adolescents, Kiel-Raisdorf, Germany.
  • Mayer T; Department of Neuropediatrics, Friedrich-Alexander University, Erlangen, Germany.
  • Jacobs J; Division of Pediatric Epileptology, Center for Pediatrics and Adolescent Medicine, University Hospital Heidelberg, Heidelberg, Germany.
  • Kurlemann G; Department of Neuropediatrics, University of Tübingen, Tübingen, Germany.
  • Kluger G; Department of Epileptology, Bielefeld University, Krankenhaus Mara, Epilepsy Center Bethel, Bielefeld, Germany.
  • Klotz KA; Department of Neuropediatrics, Justus-Liebig-University Giessen, Giessen, Germany.
  • Kieslich M; Epilepsy Center Kleinwachau, Dresden-Radeberg, Germany.
  • Kay L; Department of Neuropediatrics and Muscle Disorders, Medical Center, University of Freiburg, Freiburg im Breisgau, Germany.
  • Hornemann F; Department of Pediatrics and Clinical Neurosciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
  • Bettendorf U; St. Bonifatius Hospital, Lingen, Germany.
  • Bertsche A; Clinic for Neuropediatrics and Neurorehabilitation, Epilepsy Center for Children and Adolescents, Schoen Clinic Vogtareuth, Vogtareuth, Germany.
  • Bast T; Research Institute "Rehabilitation, Transition, and Palliation", PMU Salzburg, Salzburg, Austria.
  • Strzelczyk A; Department of Neuropediatrics and Muscle Disorders, Medical Center, University of Freiburg, Freiburg im Breisgau, Germany.
Epilepsia ; 65(1): 115-126, 2024 Jan.
Article em En | MEDLINE | ID: mdl-37846648

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Epilepsias Mioclônicas / Morte Súbita Inesperada na Epilepsia Limite: Adolescent / Adult / Child / Female / Humans / Male País/Região como assunto: Europa Idioma: En Revista: Epilepsia Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Alemanha

Texto completo: 1 Base de dados: MEDLINE Assunto principal: Epilepsias Mioclônicas / Morte Súbita Inesperada na Epilepsia Limite: Adolescent / Adult / Child / Female / Humans / Male País/Região como assunto: Europa Idioma: En Revista: Epilepsia Ano de publicação: 2024 Tipo de documento: Article País de afiliação: Alemanha