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1.
J Transcult Nurs ; 28(4): 398-407, 2017 07.
Artigo em Inglês | MEDLINE | ID: mdl-27389911

RESUMO

PURPOSE: Specific stressors associated with caregiving in Mexican American (MA) families are not well documented, yet caregiving issues are paramount because informal care for parents is central to their culture. Although MA families who band together to provide care for one member are not unique, the literature does not describe the phenomenon of collective caregiving, which may be widespread but unrecognized. This article describes these understudied families who are poorly served by contemporary health systems because their characteristics are unknown. DESIGN: Descriptive, multisite, longitudinal mixed-methods study of MA caregiving families. FINDINGS: We identified three types of collective caregivers: those providing care for multiple family members simultaneously, those providing care successively to several family members, and/or those needing care themselves during their caregiving of others. DISCUSSION AND CONCLUSIONS: Collective caregiving of MA elders warrants further investigation. IMPLICATIONS FOR PRACTICE: Exploration of collective caregiving may provide a foundation for tailored family interventions.


Assuntos
Atitude , Cuidadores/psicologia , Cultura , Família/psicologia , Americanos Mexicanos/psicologia , Adulto , Idoso , Idoso de 80 Anos ou mais , Cuidadores/normas , Família/etnologia , Feminino , Humanos , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Pesquisa Qualitativa , Estados Unidos/etnologia
2.
J Behav Med ; 39(4): 716-26, 2016 08.
Artigo em Inglês | MEDLINE | ID: mdl-27098168

RESUMO

The indirect association of childhood abuse with prevalent hypertension in adulthood through sleep disturbance and pro-inflammatory biomarkers was investigated in 589 community-dwelling, middle-aged adults. Participants completed the Childhood Trauma Questionnaire and self-reported current sleep disturbance and medical diagnoses including hypertension. Blood pressure was taken and blood samples were analyzed for C-reactive protein, interleukin-6, and fibrinogen. Hypertension was present in 41.3 % of the sample. In the full multiple mediation model, tested using structural equation modeling, all hypothesized pathways were significant (p's < 0.05). Childhood abuse was significantly related to both body mass index and sleep disturbance, which, both in turn, were significantly associated with inflammation, which was subsequently associated with hypertension status. The model demonstrated good fit [χ(2) (122) = 352.0, p < 0.001, CFI = 0.918, RMSEA = 0.057] and the indirect effect of all mediators was significant (indirect effect: 0.02, 95 % CI 0.005-0.03, p = 0.001). Sleep disturbance, body mass, and inflammation may be independent, intermediate steps between childhood abuse and subsequent hypertension that may be amenable to biobehavioral interventions.


Assuntos
Sobreviventes Adultos de Maus-Tratos Infantis , Hipertensão/complicações , Inflamação/complicações , Interleucina-6/sangue , Transtornos do Sono-Vigília/complicações , Biomarcadores/sangue , Proteína C-Reativa/metabolismo , Feminino , Fibrinogênio/metabolismo , Humanos , Hipertensão/sangue , Inflamação/sangue , Masculino , Pessoa de Meia-Idade , Modelos Teóricos , Autorrelato , Transtornos do Sono-Vigília/sangue , Inquéritos e Questionários
3.
Cancer Nurs ; 39(1): 3-11, 2016.
Artigo em Inglês | MEDLINE | ID: mdl-25730597

RESUMO

BACKGROUND: Prostate cancer is a common type of cancer worldwide and in the United States. However, little information has been reported on the symptoms of men over time who receive radiation therapy. OBJECTIVE: The objectives of this study were to identify subgroups of men at pre- and post-radiation therapy on general and treatment-related symptoms and to determine transitions in subgroup membership over time. METHODS: Men (n = 84) receiving radiation therapy completed questionnaires on fatigue, insomnia, pain, depression, anxiety, and sexual, urinary, and bowel problems at pretreatment and posttreatment. Latent class analysis identified subgroups. One-way analyses of variance determined subgroups differed on symptoms, participant characteristics, and quality of life. Latent transition analysis examined subgroup transitions over time. RESULTS: At pretreatment, 4 subgroups were identified: resilient group, with little to no symptom reporting; adjusted group, with moderately high treatment-related symptoms, low insomnia, depression, and anxiety; distressed group, consistently high on most symptoms; and emerging group, with moderately high fatigue, depression, and anxiety with few treatment-related symptoms. At posttreatment, similar results were seen in groups to those at pretreatment: resilient, adjusted. and distressed groups with an impacted group having high pain, insomnia, depression, and urinary and bowel symptoms. Quality of life and participant characteristics further distinguished groups at pretreatment and posttreatment. Income level predicted a transition in group membership. CONCLUSIONS: Men can be classified into distinctly different subgroups over time. IMPLICATIONS FOR PRACTICE: Assessment and intervention with men in subgroups such as distressed and emerging before and during treatment may lessen potential for remaining distressed or moving into impacted group where symptom severity is high at posttreatment. Interventions to reduce multiple symptoms are vitally needed.


Assuntos
Neoplasias da Próstata/complicações , Neoplasias da Próstata/radioterapia , Avaliação de Sintomas , Idoso , Idoso de 80 Anos ou mais , Ansiedade/etiologia , Análise por Conglomerados , Depressão/etiologia , Fadiga/etiologia , Humanos , Estudos Longitudinais , Masculino , Pessoa de Meia-Idade , Dor/etiologia , Neoplasias da Próstata/psicologia , Qualidade de Vida , Distúrbios do Início e da Manutenção do Sono/etiologia , Inquéritos e Questionários , Resultado do Tratamento
4.
Am J Health Promot ; 30(8): 638-644, 2016 11.
Artigo em Inglês | MEDLINE | ID: mdl-26389979

RESUMO

PURPOSE: To assess the feasibility of a new intervention, Ready~Steady, in terms of demand, acceptability, implementation, and limited efficacy. DESIGN: Randomized controlled trial; repeated measures. SETTING: Two rural communities in Itasca County, Minnesota. SUBJECTS: Thirty participants were randomized to an intervention (n = 16) or attention-control (n = 14) group. INTERVENTION: Ready~Steady combined two components: (1) motivational (motivational support, social network support, empowering education), and (2) fall-reducing physical activities (PAs; guidance to practice leg-strengthening, balance, and flexibility activities and walking). MEASURES: Acceptability questionnaire and Indices of Procedural Consistency (investigator developed), Community Health Activity Model Program for Seniors Questionnaire (confirmed with accelerometry), Short Physical Performance Battery, Perceived Environmental Support Scale, Social Support for Exercise Questionnaire, Goal Attainment Scale, Index of Readiness, and Index of Self-Regulation. ANALYSIS: Descriptive statistics and a marginal approach to repeated-measures analysis of variance, using mixed-model procedures. RESULTS: Attrition was 7% and mean attendance was 7.2 of 8 sessions, participants evaluated Ready~Steady as acceptable, and implementation fidelity was good. The intervention group improved significantly more than the attention-control group in PA behavior, F1,27 = 11.92, p = .002; fall risk (functional balance and strength), F1,27 = 14.89, p = .001; support for exercise from friends, F1,27 = 11.44, p = .002; and self-regulation, F1,26 = 38.82, p < .005. CONCLUSION: The Ready~Steady intervention was feasible as evidenced by low attrition and good attendance and implementation, as well as positive effects on targeted outcomes and theoretical mechanisms of change.


Assuntos
Acidentes por Quedas/prevenção & controle , Exercício Físico , Promoção da Saúde/organização & administração , Motivação , Idoso , Idoso de 80 Anos ou mais , Estudos de Viabilidade , Feminino , Humanos , Masculino , Equilíbrio Postural , Fatores de Risco , População Rural , Apoio Social
5.
J Sch Health ; 85(12): 861-70, 2015 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-26522175

RESUMO

BACKGROUND: We evaluated the 12-month effects of the COPE (Creating Opportunities for Personal Empowerment) Healthy Lifestyles TEEN (Thinking, Emotions, Exercise, Nutrition) program versus an attention control program (Healthy Teens) on overweight/obesity and depressive symptoms in high school adolescents. METHODS: A cluster randomized controlled trial was conducted. Participants were 779 culturally diverse adolescents in the US Southwest. COPE is a cognitive-behavioral skills-building intervention with 20 min of physical activity integrated into a health course and taught by teachers once a week for 15 weeks. Outcome measures included body mass index (BMI) and depressive symptoms. RESULTS: COPE teens had a significantly lower BMI at 12 months (F(1,698) = 11.22, p = .001) than Healthy Teens (24.95 versus 25.48). There was a significant decrease in the proportion of overweight and obese COPE teens from baseline to 12 months (χ(2) = 5.40, p = .02) as compared with Healthy Teens. For youth who began the study with extremely elevated depressive symptoms, COPE teens had significantly lower depression at 12 months compared with Healthy Teens (COPE M = 42.39; Healthy Teens M = 57.90); (F(1 ,12) = 5.78, p = .03). CONCLUSIONS: COPE can improve long-term physical and mental health outcomes in teens.


Assuntos
Depressão/prevenção & controle , Promoção da Saúde , Sobrepeso/prevenção & controle , Serviços de Saúde Escolar , Adolescente , Feminino , Comportamentos Relacionados com a Saúde , Humanos , Estilo de Vida , Masculino , Avaliação de Programas e Projetos de Saúde , Estudos Prospectivos , Sudoeste dos Estados Unidos
6.
J Med Internet Res ; 17(10): e234, 2015 Oct 16.
Artigo em Inglês | MEDLINE | ID: mdl-26475634

RESUMO

BACKGROUND: Symptom monitoring is a cornerstone of asthma self-management. Conventional methods of symptom monitoring have fallen short in producing objective data and eliciting patients' consistent adherence, particularly in teen patients. We have recently developed an Automated Device for Asthma Monitoring (ADAM) using a consumer mobile device as a platform to facilitate continuous and objective symptom monitoring in adolescents in vivo. OBJECTIVE: The objectives of the study were to evaluate the validity of the device using spirometer data, fractional exhaled nitric oxide (FeNO), existing measures of asthma symptoms/control and health care utilization data, and to examine the sensitivity and specificity of the device in discriminating asthma cases from nonasthma cases. METHODS: A total of 84 teens (42 teens with a current asthma diagnosis; 42 without asthma) aged between 13 and 17 years participated in the study. All participants used ADAM for 7 consecutive days during which participants with asthma completed an asthma diary two times a day. ADAM recorded the frequency of coughing for 24 hours throughout the 7-day trial. Pearson correlation and multiple regression were used to examine the relationships between ADAM data and asthma control, quality of life, and health care utilization at the time of the 7-day trial and 3 months later. A receiver operating characteristic (ROC) curve analysis was conducted to examine sensitivity and specificity based on the area under the curve (AUC) as an indicator of the device's capacity to discriminate between asthma versus nonasthma cases. RESULTS: ADAM data (cough counts) were negatively associated with forced expiratory volume in first second of expiration (FEV1) (r=-.26, P=.05), forced vital capacity (FVC) (r=-.31, P=.02), and overall asthma control (r=-.41, P=.009) and positively associated with daily activity limitation (r=.46, P=.01), nighttime (r=.40, P=.02) and daytime symptoms (r=.38, P=.02), and health care utilization (r=.61, P<.001). Device data were also a significant predictor of asthma control (ß=-.48, P=.003), quality of life (ß=-.55, P=.001), and health care utilization (ß=.74, P=.004) after 3 months. The ROC curve analysis for the presence of asthma diagnosis had an AUC of 0.71 (95% CI 0.58-0.84), which was significantly different from chance (χ(2) 1=9.7, P=.002), indicating the device's discriminating capacity. The optimal cutoff value of the device was 0.56 with a sensitivity of 51.3% and a specificity of 72.7%. CONCLUSIONS: This study demonstrates validity of ADAM as a symptom-monitoring device in teens with asthma. ADAM data reflect the current status of asthma control and predict asthma morbidity and quality of life for the near future. A monitoring device such as ADAM can increase patients' awareness of the patterns of cough for early detection of worsening asthma and has the potential for preventing serious and costly future consequences of asthma.


Assuntos
Asma/diagnóstico , Testes Respiratórios/instrumentação , Tosse/terapia , Monitorização Ambulatorial/instrumentação , Adolescente , Testes Respiratórios/métodos , Feminino , Volume Expiratório Forçado , Humanos , Masculino , Monitorização Ambulatorial/métodos , Qualidade de Vida , Reprodutibilidade dos Testes
7.
Biol Res Nurs ; 16(3): 250-7, 2014 Jul.
Artigo em Inglês | MEDLINE | ID: mdl-23723296

RESUMO

INTRODUCTION: Men with prostate cancer undergoing radiation treatment frequently report fatigue, insomnia, depression, anxiety and urinary, bowel, sexual, and hormonal symptoms. Plasma concentrations of cytokines may be related to these symptoms, but few studies have examined these relationships. The study purpose was to explore the association between prostate cancer symptoms and cytokine levels at pretreatment and posttreatment. METHOD: In this longitudinal, correlational study, 29 men with nonmetastatic prostate cancer completed symptom questionnaires at preradiation and postradiation treatment. Blood drawn at these same time points was used to determine levels of tumor necrosis factor-alpha (TNF-α) and interleukins-1ß, 6, 10, and 4 (IL-1ß, IL-6, IL-10, and IL-4). RESULTS: Men reported symptom severity at pretreatment and posttreatment as low to moderate. There were significant differences from pretreatment to posttreatment in fatigue, insomnia, urinary irritative and incontinence, bowel, sexual, and hormonal problems. There were no significant differences in TNF-α, IL-6, IL-10, or IL-4. At pretreatment, TNF-α was associated with depression, anxiety, urinary irritative, and bowel problems, and IL-4 was related to urinary irritative symptoms. At posttreatment, IL-4 was associated with urinary irritative symptoms. Findings suggest that, in men with prostate cancer, there is no strong association between symptom reporting and cytokine levels. Ongoing research focused on neuroendocrine and genetic markers and their associations with symptoms is promising and may result in the provision of better markers for quantifying the symptom experience in patients with cancer.


Assuntos
Citocinas/sangue , Neoplasias da Próstata/sangue , Neoplasias da Próstata/radioterapia , Idoso , Humanos , Interleucina-10/sangue , Interleucina-1beta/sangue , Interleucina-4/sangue , Interleucina-6/sangue , Estudos Longitudinais , Masculino , Estatística como Assunto , Inquéritos e Questionários , Fator de Necrose Tumoral alfa/sangue
8.
Hisp J Behav Sci ; 36(3): 344-365, 2014 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-27228120

RESUMO

This mixed methods, multi-site, National Institute of Nursing Research (NINR)-funded, interdisciplinary, descriptive study aimed to identify expressions of worry in qualitative data obtained from caregiving Mexican American (MA) families assisting older adults. The purpose of this portion of the inquiry was to determine how worry is expressed, what happens to caregivers when they worry, and what adaptive strategies they used. We examined semi-structured interviews completed during six in-home visits with 116 caregivers. We identified 366 worry quotations from 639 primary documents in ATLAS.ti, entered them into matrices, and organized findings under thematic statements. Caregivers expressed cultural and contextual worries, worried about transitions and turning points in care, and identified adaptive strategies. Despite these strategies, worry persisted. Constant worry may be an allied, important aspect of caregiver burden. We need additional longitudinal research to better understand the experience of MA caregivers for older adults and to provide empirically supported interventions, programs, and services that reduce worry.

9.
J Fam Nurs ; 18(4): 439-66, 2012 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-22740307

RESUMO

La familia drives elder care in Mexican-American (MA) families, but nursing home placement can result from day-to-day caregiving demands that increase caregiver difficulty with activities of daily living (ADLs). Using life course perspective, this article describes the initial data wave of 31 MA caregivers from a descriptive, longitudinal, mixed-methods study of 110 MA caregivers and care recipients over 15 months in their caregiving trajectories. Fifteen of 31 caregivers consistently indicated "no help needed" on the Katz ADL, whereas all but one reported "help needed" during semistructured interviews with cultural brokers. In addition to the discrepancy between results on the Katz ADL and interviews, findings include consideration of nursing home placement by moderately acculturated caregivers and minimization of their illnesses by caregivers. Additional methods of MA caregiver assessment may be needed due to the questionable accuracy of the Katz ADL; additional research should explore minimization and acculturation in MA caregivers.


Assuntos
Atividades Cotidianas , Cuidadores , Família , Americanos Mexicanos , Aculturação , Adulto , Idoso , Enfermagem Familiar , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Adulto Jovem
10.
Respir Care ; 57(12): 2082-9, 2012 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-22710616

RESUMO

BACKGROUND: Asthma is the leading chronic condition in adolescents. Nonetheless, research efforts to address adolescent asthma morbidity by applying a developmentally appropriate self-management intervention have been limited. Recently a peer-led asthma self-management program has been developed and implemented for adolescents. The purpose of the study was to assess the acceptability of a peer-led asthma program for adolescents based on participant feedback and to examine the program's impact on asthma outcomes in peer leaders. METHODS: Adolescents with persistent asthma (n = 91, 13-17 years) participated in a camp-based asthma program led by peer leaders (the intervention group) or healthcare professionals (the control group), and completed a set of program evaluation forms. Peer leaders (n = 14, 16-20 years) completed study questionnaires measuring asthma knowledge, self-efficacy, asthma control, and quality of life at baseline, immediately after camp, and 3, 6, and 9 months post-camp. RESULTS: The peer-led group reported more positive experience with the program than the adult-led group (P = .01, Cohen's d = 0.53), particularly in its usefulness in dealing with asthma. Peer leaders were rated by participants highly on knowledge (98%), attitudes (93-96%), personal skills (91%), and perceived similarities (80-86%). Significant improvements were found in peer leaders' knowledge (P < .001, η(2) = 0.87), self-efficacy (P < .001, η(2) = 0.74), asthma control (P = .01, η(2) = 0.66), and quality of life in emotional functioning (P = .002, η(2) = 0.82) and activity (P = .003, η(2) = 0.62). CONCLUSIONS: A peer-led asthma self-management program was successfully implemented and well received by adolescent learners. Asthma outcomes in peer leaders appear to have improved as a result of the program, although caution should be exercised in determining clinical meaningfulness, given the modest changes in mean scores. ClinicalTrials.gov registration NCT01161225.


Assuntos
Asma/terapia , Educação em Saúde , Liderança , Grupo Associado , Adolescente , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Qualidade de Vida , Autocuidado
11.
Sleep ; 35(6): 797-805, 2012 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-22654199

RESUMO

STUDY OBJECTIVE: Recently, the use of multicomponent insomnia treatment has increased. This study compares the effect of single component and multicomponent behavioral treatments for insomnia in older adults after intervention and at 3 months and 1 yr posttreatment. DESIGN: A randomized, controlled study. SETTING: Veterans Affairs medical center. PARTICIPANTS: 179 older adults (mean age, 68.9 yr ± 8.0; 115 women [64.2%]) with chronic primary insomnia. INTERVENTIONS: Participants were randomly assigned to 6 wk of stimulus control therapy (SCT), sleep restriction therapy (SRT), the 2 therapies combined into a multicomponent intervention (MCI), or a wait-list control group. MEASUREMENTS AND RESULTS: Primary outcomes were subjective (daily sleep diary) and objective (actigraphy) measures of sleep-onset latency (SOL), wake after sleep onset (WASO), total sleep time (TST), time in bed (TIB), and sleep efficiency (SE). Secondary outcomes were clinical measures including response and remission rates. There were no differences between the single and multicomponent interventions on primary sleep outcomes measured by diary and actigraphy. All treatments produced significant improvement in diary-reported sleep in comparison with the control group. Effect sizes for sleep diary outcomes were medium to large. Treatment gains were maintained at follow-up for diary and actigraph measured SOL, WASO, and SE. The MCI group had the largest proportion of treatment remitters. CONCLUSIONS: For older adults with chronic primary insomnia, the findings provide initial evidence that SCT, SRT, and MCI are equally efficacious and produce sustainable treatment gains on diary, actigraphy, and clinical outcomes. From a clinical perspective, MCI may be a preferred treatment due to its higher remission rate. CLINICAL TRIAL INFORMATION: Behavioral Intervention for Insomnia in Older Adults. NCT01154023. URL: http://clinicaltrials.gov/ct2/show/NCT01154023?term=Behavioral+Intervention+for+Insomnia+in+Older+Adults&rank=1.


Assuntos
Terapia Comportamental/métodos , Distúrbios do Início e da Manutenção do Sono/terapia , Actigrafia , Idoso , Feminino , Humanos , Masculino , Cooperação do Paciente , Sono , Fatores de Tempo , Resultado do Tratamento
12.
Hisp J Behav Sci ; 33(2): 234-260, 2011 May 01.
Artigo em Inglês | MEDLINE | ID: mdl-21643486

RESUMO

We know little about Mexican-American (MA) family adaptation to critical events in the informal caregiving experience but, in these days of economic and social turmoil, sons must sometimes step up to provide personal care for their aging mothers. This article compares two empirically real cases of MA males who provided such care, in lieu of a female relative. The cases are selected from a federally-funded, descriptive, longitudinal, mixed methods study of 110 MA caregivers and their care recipients. In case-oriented research, investigators can generate propositions (connected sets of statements) that reflect their findings and conclusions, and can be tested against subsequent cases: Caregiving strain and burden in MA males may have more to do with physical and emotional costs than financial ones; MA males providing personal care for their mothers adopt a matter-of-fact approach as they act "against taboo"; and this approach is a new way to fulfill family obligations.

13.
Arch Pediatr Adolesc Med ; 165(6): 513-9, 2011 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-21646583

RESUMO

OBJECTIVE: To evaluate the effectiveness of a peer-led asthma self-management program for adolescents. DESIGN: Randomized controlled trial comparing a peer-led asthma program (intervention group) and a conventional adult-led asthma program (control group). Each program was implemented at a full-day camp. SETTING: A city and adjacent suburbs in upstate New York. PARTICIPANTS: A total of 112 adolescents aged 13 to 17 years with persistent asthma. INTERVENTION: A peer-led asthma self-management program implemented at a day camp. MAIN OUTCOME MEASURES: The Child Attitude Toward Illness Scale and the Paediatric Asthma Quality of Life Questionnaire were administered at baseline and immediately and 3, 6, and 9 months after the intervention. Spirometry was conducted twice: before and 9 months after the intervention. RESULTS: The intervention group reported more positive attitudes at 6 months (mean difference, 4.11; 95% confidence interval [CI], 0.65-7.56) and higher quality of life at 6 months (difference, 11.38; 95% CI, 0.96-21.79) and 9 months (difference, 12.97; 95% CI, 3.46-22.48) than the control group. The intervention was found to be more beneficial to adolescents of male gender or low family income, as shown by greater improvement in positive attitudes toward asthma and quality of life than their counterparts. CONCLUSION: An asthma self-management program led by peer leaders is a developmentally appropriate approach that can be effective in assisting adolescents with asthma in improving their attitudes and quality of life, particularly for males and those of low socioeconomic status. TRIAL REGISTRATION: clinicaltrials.gov Identifier: NCT01161225.


Assuntos
Antiasmáticos/administração & dosagem , Asma/tratamento farmacológico , Grupo Associado , Autocuidado/métodos , Adolescente , Adulto , Fatores Etários , Asma/diagnóstico , Atitude Frente a Saúde , Feminino , Seguimentos , Humanos , Masculino , Avaliação de Programas e Projetos de Saúde , Medição de Risco , Autoadministração , Índice de Gravidade de Doença , Fatores Sexuais , Método Simples-Cego , Fatores Socioeconômicos , Espirometria , Resultado do Tratamento
14.
J Pediatr Health Care ; 25(2): 105-13, 2011.
Artigo em Inglês | MEDLINE | ID: mdl-21320682

RESUMO

INTRODUCTION: Pediatric asthma is accountable for a substantial use of health care services. The purpose of this study was to systemically examine the extent to which inaccurate perception of asthma symptoms is associated with the use of health care services. METHODS: This exploratory study included 126 adolescents with asthma who were between 13 and 20 years of age. Subjects were classified as having inaccurate symptom perception (IG); well-controlled accurate symptom perception (WCA); and poorly controlled accurate symptom perception (PCA). These groups were compared with respect to health care utilization, including emergency department (ED) visits, hospitalization, and office visits and school absenteeism in the past 3 months. RESULTS: More adolescents in the IG group had at least one hospitalization compared with adolescents in the PCA or WCA groups (23.1% vs. 11.1% vs. 2.6%, respectively). A similar trend was seen for ED visits. Compared with the WCA group, adolescents in the IG group were nearly nine times more likely to have been hospitalized, 3.4 times more likely to have visited an ED, and four times more likely to have missed school days. DISCUSSION: Adolescents with inaccurate symptom perception are more likely to have hospitalizations, ED visits, and missed days from school compared with those who have accurate perceptions. The findings underscore the importance of screening for perceptual accuracy of asthma symptoms and call for interventions promoting accurate symptom assessment in adolescents with asthma to ensure appropriate care.


Assuntos
Asma/psicologia , Serviços de Saúde/estatística & dados numéricos , Adolescente , Adulto , Asma/fisiopatologia , Estudos Transversais , Humanos
15.
J Adolesc Health ; 47(5): 472-8, 2010 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-20970082

RESUMO

PURPOSE: Asthma morbidity in children is associated with family psychosocial functioning. Although the family plays a pivotal role in maintaining optimal asthma care, the mechanism of how family support influences asthma outcomes is not well understood. The purpose of this study was to examine the role of barriers to adherence in mediating the effect of family support on asthma outcomes in adolescents. METHODS: The sample included 126 adolescents with asthma aged 13-20 years, living in the Northeast United States. The sample consisted of 49% Whites and 51% minorities, including primarily Blacks (38%) followed by Hispanic (11%). Adolescents provided self-reported data. Structural equation modeling was performed to examine the direct and indirect relationships between family support and asthma outcomes. RESULTS: Family support was positively associated with asthma control and quality of life. These significant associations were mediated by barriers to adherence. Particularly, family support was found to reduce barriers concerning adolescents' negative attitudes toward medication and healthcare providers, which in turn improved asthma control and quality of life symptoms, emotional functioning, and activity domains. Adolescents' cognitive difficulty also tended to mediate the relationship between family support and emotional functioning. CONCLUSION: This study highlights the beneficial effects of family support in improving asthma outcomes in adolescents. Family support exerts the positive effect by ameliorating barriers to treatment adherence in adolescents, particularly the barriers associated with negative attitudes and cognitive challenges. The findings underscore the importance of incorporating family assessment and intervention in caring for adolescents with asthma.


Assuntos
Asma/tratamento farmacológico , Família , Adesão à Medicação , Avaliação de Resultados em Cuidados de Saúde , Apoio Social , Adolescente , Estudos Transversais , Feminino , Humanos , Masculino , New England , Qualidade de Vida , Adulto Jovem
16.
Cancer Nurs ; 32(5): 404-11, 2009.
Artigo em Inglês | MEDLINE | ID: mdl-19661794

RESUMO

The purpose of this study was to determine if breast cancer survivors (BCS) with insomnia can be grouped according to their level of fatigue. A secondary data analysis was conducted on baseline data obtained from a randomized clinical trial that focused on a cognitive-behavioral intervention for insomnia in BCS. Participants were BCS (n = 86) with insomnia who were at least 3 months after completion of primary treatment without current evidence of disease. Three subgroups of women were identified with significant differences in fatigue, including exhausted (35%), tired (41%), and restored (24%). Results suggest that most women have moderate to severe fatigue many years after completion of treatment. Severe fatigue was associated with higher levels of other symptoms and poorer quality of life (exhausted subgroup). Significant differences in insomnia severity, anxiety, depression, and quality of life were noted among the exhausted, tired, and restored subgroups. The existence of fatigue-based subgroups offers important information when providing care to BCS. By determining symptoms associated with fatigue, patient care will benefit through a shift in focus from treatment of a single symptom such as fatigue to the delivery of a tailored intervention that targets multiple symptoms.


Assuntos
Neoplasias da Mama/complicações , Fadiga/etiologia , Distúrbios do Início e da Manutenção do Sono/etiologia , Afeto , Análise de Variância , Ansiedade/etiologia , Arizona/epidemiologia , Neoplasias da Mama/epidemiologia , Neoplasias da Mama/mortalidade , Depressão/etiologia , Feminino , Indicadores Básicos de Saúde , Humanos , Pessoa de Meia-Idade , Psicometria , Qualidade de Vida , Fatores de Risco , Índice de Gravidade de Doença , Distúrbios do Início e da Manutenção do Sono/complicações , Inquéritos e Questionários , Análise de Sobrevida , Estados Unidos/epidemiologia
17.
Pediatr Pulmonol ; 44(2): 183-91, 2009 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-19142893

RESUMO

Asthma morbidity in adolescents often results from inadequate asthma self-management. This study was to explore barriers to self-management perceived by adolescents and to examine the associations between barriers and psychosocial factors including knowledge, attitude and self-efficacy. This cross-sectional study included a total of 126 adolescents with asthma (13-20 years) representing diverse race/ethnicity groups with a wide range of socioeconomic status. Self-reported data were analyzed using descriptive statistics, factor analysis and hierarchical regression. The most frequently endorsed barrier (63%) was adolescents' unwillingness to give up "the things the doctors say I have to give up," followed by difficulty in remembering to take care of their asthma (53%), and then "trying to forget" that they have asthma (50%). Psychosocial factors accounted for 32% of the variance in total barrier perceptions. Factor analysis revealed barriers in four domains including negativity toward providers and the medication regimen, cognitive difficulty, peer/family influence and denial. Self-efficacy was found to be the most influential factor that showed strong negative associations with all four barrier subscales independent of the levels of asthma control and sociodemographic characteristics. Poor attitudes toward asthma were also associated with barriers of cognitive difficulty and social influence after adjusting for other factors. Males consistently reported higher total barriers and barriers of negativity, social influence and denial. The gender differences were not explained by psychosocial and sociodemographic factors. This study suggests that psychosocial factors are strong predictors of barriers to self-management in adolescents. Particularly, promoting self-efficacy may be beneficial in addressing the barriers. Special attention is needed to address the higher propensity for barriers in males.


Assuntos
Asma/psicologia , Conhecimentos, Atitudes e Prática em Saúde , Autocuidado , Adolescente , Estudos Transversais , Feminino , Humanos , Masculino , Adulto Jovem
18.
J Pediatr Nurs ; 23(6): 439-50, 2008 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-19026912

RESUMO

Although a high prevalence of substance use and its adverse effects on the course of the disease have been reported in adolescents with asthma, no studies have attempted to ameliorate the risk through adequate interventions. This pilot study evaluates and supports the feasibility and the effectiveness of a decision-making program in improving decision-making quality and reducing risk motivation over a 6-month study period. Differential effectiveness of the intervention was observed by race and gender. Although the improvement of decision-making quality was observed only in Whites, changes in risk motivation were detected only in non-Whites and girls. No significant reduction in actual substance use behavior was found. The intervention was favorably received by participants. An approach enhancing decision-making quality can be effective in addressing the risk of substance use in adolescent with asthma by altering motivations.


Assuntos
Asma , Tomada de Decisões , Educação em Saúde/métodos , Comportamento de Redução do Risco , Prevenção do Hábito de Fumar , Transtornos Relacionados ao Uso de Substâncias/prevenção & controle , Adolescente , Asma/psicologia , CD-ROM , Estudos de Viabilidade , Feminino , Humanos , Masculino , Motivação , Projetos Piloto , Estudos Prospectivos , População Rural , Estados Unidos
19.
J Asthma ; 45(7): 600-6, 2008 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-18773334

RESUMO

OBJECTIVE: The purpose was to identify and describe the patterns of asthma control perception in relation to actual symptom reports in adolescents and to compare the group with accurate control perception with those of inaccurate perception in relationship to sociodemographic characteristics, illness-related factors, and psychosocial factors. METHODS: A sample of 126 adolescents from 13 through 20 years of age participated in the study. Patterns of control perception were constructed based on participants' rating of their perception of asthma control and self-reported asthma symptoms using Latent Class Analysis. Analyses of variance (ANOVAs) and multinomial logistic regressions were computed for group comparisons. RESULTS: Participants were classified into four groups according to the patterns of control perception. Accurate groups were divided into either the well-controlled (62%) or the poorly-controlled group (7%), and inaccurate groups were manifested inaccuracy either with nighttime symptoms (25%) or daytime symptoms (6%). Minority participants (p < 0.001) or those with low socioeconomic status (p < 0.001) were more likely to be represented in the inaccurate group than their counterparts. The well-controlled accurate group consistently reported higher asthma-related knowledge (p = 0.02), more positive attitude toward asthma (p < 0.001), fewer barriers to self-management (p = 0.04), and higher quality of life (p < 0.001) than the inaccurate group. CONCLUSION: This study demonstrated that accuracy of asthma control perception can be classified into four criteria based on patterns of various asthma symptoms. Adolescents' tendency toward underperception was evident. The inaccurate groups are at greater risk for psychosocial impairments. This study underscores the importance of an intervention that improves the accuracy of asthma control perception in adolescents while promoting psychosocial well-being among adolescents with inaccurate perception.


Assuntos
Asma/psicologia , Adolescente , Adulto , Asma/fisiopatologia , Asma/terapia , Feminino , Conhecimentos, Atitudes e Prática em Saúde , Humanos , Masculino , Percepção , Fatores de Risco , Índice de Gravidade de Doença , Classe Social
20.
Oncol Nurs Forum ; 33(6): 1075-83, 2006 Nov 27.
Artigo em Inglês | MEDLINE | ID: mdl-17149391

RESUMO

PURPOSE/OBJECTIVES: To examine key aspects of delirium in a sample of hospitalized older patients with cancer. DESIGN: Secondary analysis of data from studies on acute confusion in hospitalized older adults. SETTING: Tertiary teaching hospital in the southeastern United States. SAMPLE: 76 hospitalized older patients with cancer (mean age = 74.4 years) evenly divided by gender and ethnicity and with multiple cancer diagnoses. METHODS: Data were collected during three studies of acute confusion in hospitalized older patients. Delirium was measured with the NEECHAM Confusion Scale on admission, daily during hospitalization, and at discharge. Patient characteristics and clinical risk markers were determined at admission. MAIN RESEARCH VARIABLES: Prevalent and incident delirium, etiologic risk patterns, and patient characteristics. FINDINGS: Delirium was noted in 43 (57%) patients; 29 (38%) were delirious on admission. Fourteen of 47 (30%) who were not delirious at admission became delirious during hospitalization. Delirium was present in 30 patients (39%) at discharge. Most delirious patients had evidence of multiple (mean = 2.3) etiologic patterns for delirium. CONCLUSIONS: Delirium was common in this sample of hospitalized older patients with cancer. Patients with delirium were more severely ill, were more functionally impaired, and exhibited more etiologic patterns than nondelirious patients. IMPLICATIONS FOR NURSING: Nurses caring for older patients with cancer should perform systematic and ongoing assessments of cognitive behavioral performance to detect delirium early. The prevention and management of delirium hinge on the identification and treatment of the multiple risk factors and etiologic mechanisms that underlie delirium. The large number of patients discharged while still delirious has significant implications for posthospital care and recovery.


Assuntos
Delírio/epidemiologia , Delírio/enfermagem , Neoplasias/epidemiologia , Neoplasias/enfermagem , Enfermagem Oncológica , APACHE , Doença Aguda , Idoso , Idoso de 80 Anos ou mais , Delírio/diagnóstico , Feminino , Hospitalização , Humanos , Masculino , Alta do Paciente , Prevalência , Fatores de Risco
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