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1.
Eval Program Plann ; 104: 102431, 2024 Jun.
Artigo em Inglês | MEDLINE | ID: mdl-38608392

RESUMO

This paper documents an innovative research approach undertaken to co-develop an integrated assessment, diagnosis, and support service trajectory for children suspected of having a developmental disability. It employed data-driven practices and involved multiple stakeholders such as parents, professionals, managers, and researchers. It emphasized the importance of incorporating experiential knowledge adopting an integrated care and service trajectory perspective, and using an implementation science framework. The first part of this article presents the theoretical roots and the collaborative method used to co-construct the model trajectory. The second part of this article presents the results of a survey in which participating stakeholders shared their point of view on the value and impact of this approach Overall, this article provides a step-by-step operationalization of participative research in the context of public health and social services. This may help guide future initiatives to improve services for developmental disabilities in partnership with those directly concerned by these services.


Assuntos
Deficiências do Desenvolvimento , Humanos , Deficiências do Desenvolvimento/terapia , Deficiências do Desenvolvimento/diagnóstico , Criança , Serviço Social/organização & administração , Comportamento Cooperativo , Prestação Integrada de Cuidados de Saúde/organização & administração , Participação dos Interessados , Serviços de Saúde da Criança/organização & administração , Avaliação de Programas e Projetos de Saúde/métodos
2.
Disabil Rehabil Assist Technol ; : 1-13, 2023 Jun 24.
Artigo em Inglês | MEDLINE | ID: mdl-37354544

RESUMO

PURPOSE: Assistance and companion dogs have numerous positive effects for family of autistic children, such as supporting their rehabilitation and improving their quality of life. To date, very few studies have compared the effects of both types of dogs. This comparison, considering the limited access to assistance dogs, could be helpful for families wanting to adopt a dog. METHODS: An explanatory sequential design with a mixed-method approach was used. First, 85 parents (nassistance dogs = 57; ncompanion dogs = 28) of children aged between 3 and 17 years old (M = 10.73, SD = 3.67) completed an online questionnaire including sociodemographic questions and the Treatment Acceptability Rating Form-Revised (TARF-R). Then, 17 of these participants (nassistance dogs = 14; ncompanion dogs = 3) completed a semi-structured interview. RESULTS: The quantitative data analyses showed that parents with assistance dogs were significantly more satisfied: t (83) = -2.12, p = .037, d = 0.49. Significant associations between some sociodemographic variables (e.g., number of children, comorbid condition, reasons for acquiring a dog) and acceptability/satisfaction (TARF-R total scores) were found. The qualitative analysis revealed that families with both dog types observed positive effects. CONCLUSIONS: In brief, having an assistance dog constitutes a significant added value; nevertheless, both types of dogs are appreciated.


Parents of children on the autism spectrum show significantly higher levels of satisfaction with having an assistance dog to assist the rehabilitation of their child on the autism spectrum when compared to a companion dog.Assistance and companion dogs are both perceived as beneficial by parents and as an important source of support for the rehabilitation of children on the autism spectrum and other members of their family.Companion dogs trained specifically to assist the rehabilitation of children on the autism spectrum should be offered to families in the context of limited access to assistance dogs.

3.
Res Dev Disabil ; 105: 103747, 2020 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-32763654

RESUMO

A parent coaching intervention program was launched in a Quebec community-based organization for autism spectrum disorder. This initiative was intended to support families following the child's diagnosis, as they awaited public early intensive behavioral intervention services. The parent-mediated intervention program, based on the Early Start Denver Model, included a 3 h parent group training, an initial assessment followed by the development of an individualized intervention plan, 8 weeks of live coaching, a final assessment to evaluate children's progress, and a feedback meeting with families. The present study used a mixed-method design to assess the feasibility and acceptability of the program. Ten families (ten mothers and three fathers) and four coaches participated in the present study. Parents and coaches perceived and achieved high levels of implementation overall (91 %) and there was a moderate improvement of parents' teaching skills. All participating families and coaches were satisfied or highly satisfied with the program and found it acceptable.


Assuntos
Transtorno do Espectro Autista , Tutoria , Criança , Intervenção Educacional Precoce , Estudos de Viabilidade , Feminino , Humanos , Masculino , Pais
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