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1.
Psychother Psychosom Med Psychol ; 68(5): 212-224, 2018 May.
Artigo em Alemão | MEDLINE | ID: mdl-29723909

RESUMO

Liver transplantation (LTX) is an established therapy for pediatric patients with liver failure. In recent decades, survival rates have risen continuously. With increased life expectancy, there has been greater attention to children's and adolescents' quality of life following transplantation. This article provides an overview of the tasks of pediatric transplant psychology. We summarize the reviewed literature of research on health-related quality of life in pediatric liver transplant recipients. Furthermore, we present studies on fatigue, mental health, cognitive development and family strain. In adolescents and young adults, the risk of non-adherence is particularly high. Therefore, adherence and transition, i. e. transfer from pediatric to adult-centered transplant care, are discussed separately. Subsequently, studies on long-term survival after LTX are summarized. In conclusion, recommendations for clinical practice are given.


Assuntos
Transplante de Fígado/psicologia , Pediatria , Adolescente , Criança , Pré-Escolar , Feminino , Humanos , Lactente , Falência Hepática/cirurgia , Masculino , Qualidade de Vida , Análise de Sobrevida
2.
Behav Neurol ; 2015: 248193, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-26246692

RESUMO

OBJECTIVES: This study examines the effects of a standardized fitness training on motivational factors such as the intention to be physically active, self-efficacy, perceived barriers, counterstrategies, and exercise specific social support in patients with progressive Multiple Sclerosis (MS) and the relation of these factors to physical performance. METHODS: Moderately disabled patients with secondary or primary progressive MS (Expanded Disability Status Scale of 4-6) were randomized to a training group or a waitlist control group. Patients completed on average 20 sessions of training tailored to their individual fitness at baseline over a course of 8-12 weeks. Motivational variables (stage of change according to the transtheoretical model (TTM), self-efficacy, perceived barriers, counterstrategies, and exercise specific social support) were assessed via questionnaires at baseline and follow-up. RESULTS: Forty patients completed the trial. We found significant effects on stages of change (p = .016) and self-efficacy (p = .014) and a trend in counterstrategies (p = .08). Significant correlations between change of physical performance during the exercise training and change in the TTM, perceived barriers, and counterstrategies were detected. CONCLUSION: This study indicates that tailored individual endurance training could stabilize self-efficacy and increase exercise motivation in patients with progressive MS. Motivational variables were related to the physical performance.


Assuntos
Pessoas com Deficiência/reabilitação , Terapia por Exercício , Exercício Físico/fisiologia , Motivação/fisiologia , Esclerose Múltipla/terapia , Autoeficácia , Adulto , Pessoas com Deficiência/psicologia , Terapia por Exercício/métodos , Feminino , Humanos , Masculino , Pessoa de Meia-Idade , Inquéritos e Questionários
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