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1.
J Safety Res ; 88: 93-102, 2024 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-38485390

RESUMO

INTRODUCTION: Organizations place strong emphasis on the standardized occupational health and safety procedures to reduce work-related illnesses and workplace accidents. However, standardized procedures are not always followed up in daily work practices. Organizations must cope with the differences between standardized procedures and local adaptation by employees. METHODS: This ethnographic field study at an industrial workplace in the Netherlands provides insights into employees' everyday work practices, how these work practices are shaped, and how they relate to local occupational health and safety procedures. Acknowledging safety as a competency embedded in work practices, as introduced by Gherardi and Nicolini (2002), offers a theoretical point of view for looking beyond the dichotomy of standardization and local adaptations. RESULTS: The results show that a standardized and noncontextualized occupational health and safety management system that focuses on accident-free days and compliance actually leads to ignorance of practical and tacit competences of workers and no learning and improvement of safety procedures can take place. However, our findings also illustrate how employees in their informal everyday work practices reduce the risks produced by the safety system itself. CONCLUSION: Overall, the results indicate that social interactions among employees, leaders, and management within the organization play an important role in workplace safety. The analysis highlights the value of vulnerability and trust in relationships at work to be able to learn and develop safety procedures that align with local demands. PRACTICAL APPLICATIONS: This study emphasizes the need for participatory approaches in creating safer and healthier workplaces. The cocreation of occupational health and safety (OHS) rules and procedures, however, can only function if they are combined with a responsive leadership style.


Assuntos
Saúde Ocupacional , Local de Trabalho , Humanos , Países Baixos , Acidentes de Trabalho/prevenção & controle , Indústrias
2.
BMC Public Health ; 24(1): 746, 2024 Mar 08.
Artigo em Inglês | MEDLINE | ID: mdl-38459505

RESUMO

BACKGROUND: The sudden emergence of COVID-19 in 2020 demonstrated that Europe was not prepared for a public health crisis like this pandemic. In the European Union, matters of health have remained primarily under the jurisdiction of individual Member States. However, certain events, such as the Kohll-Decker ruling on free mobility of health services and the COVID-19 pandemic, compelled the EU to address health matters in border regions. This study examines how EU policies address public health in border regions. To that end, we have drawn from border studies, a field that provides insight into the fluidity and complexity of borders in everyday life. Besides that we used constructivist policy studies as a lens for the analysis of EU policy documents. METHODS: A policy discourse analysis was conducted to explore how European policy addresses the development of a transnational, European public health in border regions. Key European policy documents published between 2002 and 2027 were analysed to understand how policies are constructed and problems are framed. The analysis was guided by research questions and the theoretical approach. RESULTS: The analysis reveals that, while having limited competences in the field of health care, the EU is slowly developing a rationale and a knowledge base to increase its competences in health care. It also shows that in the field of public health, the EU argues for addressing health determinants and promoting healthy lifestyles, though it does not address health promotion in border regions. The EU's authority in public health in border regions revolves primarily around addressing physical, biological and chemical threats rather than social health problems. CONCLUSION: Though the EU has carefully developed a transnational perspective on health care, the EU has not developed any authority with respect to transnational public health. Though public health and health promotion in border regions have been confronted with specific challenges, neither specific Member States nor the EU have a transnational collaborative perspective that does justice to the characteristics of border regions. When it comes to public health in border regions, there is no European mindset as yet.


Assuntos
Política de Saúde , Saúde Pública , Humanos , Pandemias/prevenção & controle , União Europeia , Formulação de Políticas
3.
Health Promot Int ; 38(3)2023 Jun 01.
Artigo em Inglês | MEDLINE | ID: mdl-37326404

RESUMO

Organizations offer activities and programmes to improve their employees' health. These workplace health promotion (WHP) activities usually have an individualized and top-down focus, a low uptake among employees, and are perceived to be out of line with employees' experiences and definitions of health. This paper follows up on studies that have broadened the focus of WHP by including social relations and delves deeper into how daily practices and experiences of (un)belonging at work relate to workplace health. Based on ethnographic research in two companies in the Netherlands, this paper analyses how (un)belonging is expressed and experienced by employees. The paper shows that employees define health at work as a social practice. It also demonstrates how dynamics at work shape different dimensions of (un)belonging that, in turn, affect employees' perceived health at work. These findings indicate the importance of including (un)belonging in the workplace as an ingredient of WHP.


Assuntos
Serviços de Saúde do Trabalhador , Saúde Ocupacional , Humanos , Local de Trabalho , Promoção da Saúde , Antropologia Cultural
4.
Soc Sci Med ; 317: 115610, 2023 01.
Artigo em Inglês | MEDLINE | ID: mdl-36542926

RESUMO

In our previous article, published in this journal, we argued that epidemiology has a constructive role with regard to socioeconomic health inequalities. We concluded that, as long as the construction of LSES remains unquestioned, social epidemiology might continue to (re)produce what it examines: LSES populations 'known to be unhealthy'. Recently, in this journal, Kamphuis et al. responded to our article. While they welcomed our reflections, the authors also posed critique to our arguments. In this paper, we respond to that critique and deepen the discussion on the use of (L)SES categories in social epidemiology. For this purpose, we further clarify our arguments and state that in health inequality research it is important to: 1) Pay attention to the unintended effects of research; 2) Consider the origin and effects of explanatory concepts; and 3) reflect on the norms of cultural capital.


Assuntos
Disparidades nos Níveis de Saúde , Baixo Nível Socioeconômico , Humanos , Fatores Socioeconômicos , Estudos Epidemiológicos , Classe Social
5.
Soc Sci Med ; 317: 115613, 2023 01.
Artigo em Inglês | MEDLINE | ID: mdl-36527895

RESUMO

Health policy studies usually conceptualise access to medicines as a result of the institutional configuration of policies, legislation, and pharmaceutical markets. This study adopts a different approach that stems from the sociology of health and Science and Technology Studies (STS). Based on an ethnographically inspired qualitative research of access practices of patients with oncological and rare diseases in Russia, we argue that access to medicines is a fluid and unstable trajectory constructed by the everyday practices of patients. Instead of seeing patients as passive recipients of institutionally arranged access, we focus on their practices of building access and identify four types of work they do to steer their access trajectories in the desired direction. These types of work include persisting work, complying work, adjusting work, and knowing work. In many studies of access, these types of work remain invisible, and thus the efforts and skills that patients need to make access possible remain unnoticed, undervalued, and unaccounted for.


Assuntos
Acessibilidade aos Serviços de Saúde , Doenças Raras , Humanos , Doenças Raras/tratamento farmacológico , Política de Saúde , Pesquisa Qualitativa , Federação Russa
6.
Health Promot Int ; 38(4)2023 Aug 01.
Artigo em Inglês | MEDLINE | ID: mdl-35020869

RESUMO

Community Based Participatory Research (CBPR) provides important insights in how to mobilize a community for health promotion. This article explores the possibilities for shifting the frame from community to publics for building new forms of public health engagement in disadvantaged neighbourhoods. We present the results of an ethnographic research project on health and resilience in three low-income neighbourhoods in Maastricht, the Netherlands. In the context of a broader University-Citizens collaboration, citizens and researchers organized a monthly philosophy café to discuss subjects related to health and wellbeing. We analyse this in terms of public building and argue that shifting the perspective from community to publics strengthens the emancipatory tradition within CBPR. By creating an open setting, accommodating diversity and disagreements between its participants, the philosophy café constituted a local epistemic public, generating knowledge on health and wellbeing in disadvantaged neighbourhoods.


In this article, we present an analysis of how researchers and citizens in low-income neighbourhoods collaborated to improve health and resilience. Citizens and researchers together organized a monthly philosophy café to discuss subjects related to health and wellbeing. We analyse the philosophy café as the activities of a public rather than a community. The philosophy café was set up as an open setting in which strangers could meet and exchange ideas and experiences. This resulted in lively exchanges and disagreements on what a good life entails. By presenting the philosophy café as a local public, our paper stresses the desire of neighbourhood inhabitants to meet strangers and exchange ideas, rather than to form close attachments to a neighbourhood community.


Assuntos
Promoção da Saúde , Saúde Pública , Humanos , Promoção da Saúde/métodos , Pobreza , Filosofia , Características de Residência
7.
Cureus ; 14(5): e25268, 2022 May.
Artigo em Inglês | MEDLINE | ID: mdl-35755535

RESUMO

Objectives Cycling is an important means of transportation in the Netherlands. Unfortunately, the number of cycling accidents and their adverse outcomes (injury and death) are on the rise. We set out to observe the nature of these accidents in Maastricht from 2001 to 2015 and analyzed the recommendations of stakeholders on ways to improve cycling safety. Methods An explanatory sequential mixed methodology was used for this population-based study. In the first phase, a retrospective quantitative analysis of the VIA® accident database for Maastricht was done. This was followed by a thematic analysis of data from five semi-structured interviews. Integration was at the Interpretation stage. Result The first phase showed males (54%) and under-25s (59.9%) had the most cycling accidents, while a larger percentage of females (50.7%) and people >65 years (67%) had adverse outcomes with accidents. More accidents occurred at intersections (52.6%), on shared roads (61.4%), and involved motorized vehicles (95.6%). Bivariate analysis and multivariable logistic regression showed that cycling accidents involving elderly people, women, wet weather or road surfaces, an innocent cyclist, the northeastern district, and morning hours had a higher chance of injury or death. Thematic analysis summarised stakeholder opinions under four themes: role in cycling safety; partners of cycling safety; the importance of accurate data; and investing in safety. Most of the respondents felt improvements in the city's accident database, cycling policy, and infrastructure were needed. Conclusion Our findings suggest that there has been a decrease in the overall number of cycling accidents in the 15-year period studied. However, differences in sociodemographic variables still determine the distribution and severity of accidents in Maastricht. The existing cycling database at the time of the study needed improvements with data collection and the city needs to involve more stakeholders in its policy-making process.

8.
J Urban Health ; 99(4): 680-687, 2022 08.
Artigo em Inglês | MEDLINE | ID: mdl-35699887

RESUMO

Green zones are potential contributors to health by mitigating disparities between low- and high-income neighborhoods. Against the background of different discourses about city parks-parks as restorative environments, parks as enabling places, and parks as sites for encounters between strangers-we ethnographically studied the coproduction of green spaces and health within low-income neighborhoods. We found three competing notions of urban green, each tied to different notions of neighborhood well-being. Parks as "clean spaces" create expectations of order and peace; parks as places of the community are related to play and activities; and parks as urban stage foster interactions between strangers. By generating experiences that encompass different conceptions of health, citizen-led events can contribute to a shift in the understanding of parks as sites of neighborhood decline to parks as places of hope and new beginnings.


Assuntos
Parques Recreativos , Características de Residência , Cidades , Humanos , Renda , Pobreza
9.
Health Place ; 75: 102777, 2022 05.
Artigo em Inglês | MEDLINE | ID: mdl-35306274

RESUMO

This paper provides insight into collective practices for promoting a healthy city ecology in disadvantaged neighborhoods. Using ethnography, we analyze the actions of a citizen collective to improve a park as 'urban commoning' and 'placemaking.' The analysis shows that first, the collective received ambivalent bureaucratic support; second, the open character of space commons enabled collective responsibility and democratic publics, but also made them vulnerable; and third, in providing informal security, the collective restrained itself to avoid stigma and retaliation. We conclude that open commons enable collective responsibility, but in disadvantaged city areas, they suffer from ongoing bureaucratic governance and accumulations of adversity.


Assuntos
Características de Residência , Populações Vulneráveis , Cidades , Ecologia , Humanos , Comportamento Social
10.
BMC Infect Dis ; 21(1): 1008, 2021 Sep 27.
Artigo em Inglês | MEDLINE | ID: mdl-34579656

RESUMO

BACKGROUND: Antimicrobial resistance (AMR) is a global public health concern that requires transdisciplinary and bio-social approaches. Despite the continuous calls for a transdisciplinary understanding of this problem, there is still a lack of such studies. While microbiology generates knowledge about the biomedical nature of bacteria, social science explores various social practices related to the acquisition and spread of these bacteria. However, the two fields remain disconnected in both methodological and conceptual levels. Focusing on the acquisition of multidrug resistance genes, encoding extended-spectrum betalactamases (CTX-M) and carbapenemases (NDM-1) among a travelling population of health students, this article proposes a methodology of 'stool and stories' that combines methods of microbiology and sociology, thus proposing a way forward to a collaborative understanding of AMR. METHODS: A longitudinal study with 64 health students travelling to India was conducted in 2017. The study included multiple-choice questionnaires (n = 64); a collection of faecal swabs before travel (T0, n = 45), in the first week in India (T1, n = 44), the second week in India (T2, n = 41); and semi-structured interviews (n = 11). Stool samples were analysed by a targeted metagenomic approach. Data from semi-structured interviews were analysed using the method of thematic analysis. RESULTS: The incidence of ESBL- and carbapenemase resistance genes significantly increased during travel indicating it as a potential risk; for CTX-M from 11% before travel to 78% during travel and for NDM-1 from 2% before travel to 11% during travel. The data from semi-structured interviews showed that participants considered AMR mainly in relation to individual antibiotic use or its presence in a clinical environment but not to travelling. CONCLUSION: The microbiological analysis confirmed previous research showing that international human mobility is a risk factor for AMR acquisition. However, sociological methods demonstrated that travellers understand AMR primarily as a clinical problem and do not connect it to travelling. These findings indicate an important gap in understanding AMR as a bio-social problem raising a question about the potential effectiveness of biologically driven AMR stewardship programs among travellers. Further development of the 'stool and stories' approach is important for a transdisciplinary basis of AMR stewardship.


Assuntos
Antibacterianos , Saúde Global , Antibacterianos/farmacologia , Antibacterianos/uso terapêutico , Farmacorresistência Bacteriana , Humanos , Estudos Longitudinais , Estudantes , beta-Lactamases/genética
11.
Soc Sci Med ; 285: 114263, 2021 09.
Artigo em Inglês | MEDLINE | ID: mdl-34411967

RESUMO

We examine how the category of low socioeconomic status (LSES) was constructed in European social epidemiological research and policy advice from 1977 to 2019. We analysed 22 empirical social epidemiological research publications on LSES and health, as well as six scientific advisory reports that offered government officials an overview of scientific evidence on health inequalities. We show the construction and reification of LSES as a problematic group in dominant thought, which consists of the following components: 1) the proliferation of SES concepts, indicators and groups labelled LSES; 2) generalisation through which LSES is constructed as a single population; 3) problematisation through which LSES is constructed as an inherently unhealthy population; and 4) individualisation by which a LSES personality is presented as an explanation of health differences. We also show how this knowledge is extrapolated into the policy domain in the form of scientific advisory reports. These findings provide evidence of the construction of LSES as an inherently unhealthy population through hyperproliferation and references to the objectivity of scientific research. With respect to the LSES category, the dynamics of research and policy resemble those regarding categories of ethnicity and gender. We conclude that if the construction of LSES remains unquestioned, social epidemiology might continue to (re)produce what it examines: LSES populations 'known to be unhealthy'.


Assuntos
Renda , Classe Social , Estudos Epidemiológicos , Etnicidade , Humanos , Fatores Socioeconômicos
12.
Sociol Health Illn ; 43(2): 353-368, 2021 02.
Artigo em Inglês | MEDLINE | ID: mdl-33636030

RESUMO

Antimicrobial resistance control programmes often aim to "fix" the behaviour of antibiotic users and prescribers. Such behavioural interventions have been widely criticised in social science literature for being inefficient and too narrow in scope. Drawing on these criticisms, this article analyses how political programmes for fixing antibiotic behaviours were adapted into the practices of health-care professionals and patients in Russia. In 2018, we conducted interviews with medical doctors, pharmacists and patients in a Russian city; focusing on their practices around the policy requirement introduced in 2017 which obligated medical prescriptions of antibiotics. We conceptualised the obligatory medical prescription as a political technique which sought to change practices of self-treatment and over-the-counter sales of medications by establishing doctors as an obligatory passage point to access antibiotics. Our analysis shows that the requirement for medical prescriptions does not fulfil the infrastructural gaps that influence antibiotic practices. By navigating the antibiotic prescriptions, doctors, pharmacists and patients informally compensate for the gaps in the existing infrastructure creating informal networks of antibiotic care parallel to the requirement of obligatory prescriptions. Following these informal practices, we could map the inconsistencies in the current policy approaches to tackle AMR as a behavioural rather than infrastructural problem.


Assuntos
Antibacterianos , Médicos , Antibacterianos/uso terapêutico , Humanos , Farmacêuticos , Prescrições , Federação Russa
13.
BMJ Open ; 10(12): e040271, 2020 12 15.
Artigo em Inglês | MEDLINE | ID: mdl-33323433

RESUMO

BACKGROUND: Chronic conditions are a leading cause of death and disability worldwide. Low-income and middle-income countries such as India bear a significant proportion of this global burden. Redesigning primary care from an acute-care model to a model that facilitates chronic care is a challenge and requires interventions at multiple levels. OBJECTIVES: In this intervention study, we aimed to strengthen primary care for diabetes and hypertension at publicly funded primary healthcare centres (PHCs) in rural South India. DESIGN AND METHODS: The complexities of transforming the delivery of primary care motivated us to use a 'theory of change' approach to design, implement and evaluate the interventions. We used both quantitative and qualitative data collection methods. Data from patient records regarding processes of care, glycaemic and blood pressure control, interviews with patients, observations and field notes were used to analyse what changes occurred and why. INTERVENTIONS: We implemented the interventions for 9 months at three PHCs: (1) rationalise workflow to include essential tasks like counselling and measurement of blood pressure/blood glucose at each visit; (2) distribute clinical tasks among staff; (3) retain clinical records at the health facility and (4) capacity building of staff. RESULTS: We found that interventions were implemented at all three PHCs for the first 4 months but did not continue at two of the PHCs. This fadeout was most likely the result of staff transfers and a doctor's reluctance to share tasks. The availability of an additional staff member in the role of a coordinator most likely influenced the relative success of implementation at one PHC. CONCLUSION: These findings draw attention to the need for building teams in primary care for managing chronic conditions. The role of a coordinator emerged as an important consideration, as did the need for a stable core of staff to provide continuity of care.


Assuntos
Diabetes Mellitus , Hipertensão , Atenção Primária à Saúde , Diabetes Mellitus/terapia , Humanos , Hipertensão/terapia , Índia , População Rural
14.
Vaccines (Basel) ; 8(4)2020 Nov 03.
Artigo em Inglês | MEDLINE | ID: mdl-33153098

RESUMO

A series of vaccine incidents have stimulated vaccine hesitance in China over the last decade. Many scholars have studied the institutional management of these incidents, but a qualitative study of stakeholders' perspectives on vaccine hesitancy in China is missing. To address this lacuna, we conducted in-depth interviews and collected online data to explore diverse stakeholders' narratives on vaccine hesitance. Our analysis shows the different perspectives of medical experts, journalists, parents, and self-defined vaccination victims on vaccination and vaccination hesitance. Medical experts generally consider vaccines, despite some flaws, as safe, and they consider most vaccine safety incidents to be related to coupling symptoms, not to vaccinations. Some parents agree with medical experts, but most do not trust vaccine safety and do not want to put their children at risk. Media professionals, online medical experts, and doctors who do not need to align with the political goal of maintaining a high vaccination rate are less positive about vaccination and consider vaccine hesitance a failure of expert-lay communication in China. Our analysis exhibits the tensions of medical expert and lay perspectives on vaccine hesitance, and suggests that vaccination experts 'see like a state', which is a finding consistent with other studies that have identified the over-politicization of expert-lay communication in Chinese public discourse. Chinese parents need space to express their concerns so that vaccination programs can attune to them.

15.
Health Policy Plan ; 35(Supplement_2): ii22-ii34, 2020 Nov 01.
Artigo em Inglês | MEDLINE | ID: mdl-33156934

RESUMO

Chronic non-communicable diseases (NCDs), such as diabetes and cardiovascular diseases, have reached epidemic proportions worldwide. Health systems, especially those in low- and middle-income countries, such as India, struggle to deliver quality chronic care. A reorganization of healthcare service delivery is needed to strengthen care for chronic conditions. In this study, we evaluated the implementation of a package of tailored interventions to reorganize care, which were identified following a detailed analysis of gaps in delivering quality NCD care at the primary care level in India. Interventions included a redesign of the workflow at primary care clinics, a redistribution of tasks, the introduction of patient information records and the involvement of community health workers in the follow-up of patients with NCDs. An experimental case study design was chosen to study the implementation of the quality improvement measures. Three public primary care facilities in rural South India were selected. Qualitative methods were used to gain an in-depth understanding of the implementation process and outcomes of implementation. Observations, field notes and semi-structured interviews with staff at these facilities (n = 15) were thematically analysed to identify contextual factors that influenced implementation. Only one of the primary health centres implemented all components of the intervention by the end of 9 months. The main barriers to implementation were hierarchical arrangements that inhibited team-based care, the amount of time required for counselling and staff transfers. Team cohesion, additional staff and staff motivation seem to have facilitated implementation. This quality improvement research highlights the importance of building relational leadership to enable team-based care at primary care clinics in India. Redesigned organization of care and task redistribution is important solutions to deliver quality chronic care. However, implementing these will require capacity building of local primary care teams.


Assuntos
Doenças não Transmissíveis , Doença Crônica , Atenção à Saúde , Humanos , Índia , Doenças não Transmissíveis/terapia , Atenção Primária à Saúde
17.
Reprod Health ; 17(1): 31, 2020 Mar 02.
Artigo em Inglês | MEDLINE | ID: mdl-32122359

RESUMO

BACKGROUND: Pregnancy in adolescence is higher among internally displaced women in Colombia than non-displaced women. It is defined as a problem with significant negative outcomes by both biomedical and epidemiological approaches. However, little is known about pregnancy during adolescence from the perspective of women who experienced this in the specific context of armed conflict and displacement. AIM: This article focuses on how internally displaced women understand their experiences of pregnancy in adolescence in the context of armed conflict through an ethnographic approach in a receptor community of internally displaced women in Bogotá, Colombia. METHODS: Based on 10 years of experience in the community, we conducted 1 year of fieldwork, using an ethnographic approach. We collected life stories of 20 internally displaced women through in-depth interviews and ran 8 workshops with them and other women from the community. We used thematic analysis to analyse the responses of internally-displaced women and understand how they made meaning around their experiences of adolescent pregnancy in the context of displacement. RESULTS: The main themes that emerged from participants' experiences include rural violence, early family life (characterized by violence and mistreatment at home), meanings of pregnancy at an early age (including being challenged and feelings of love), and reactions to their pregnancies during adolescence (such as stigmatization) from their families and partners. CONCLUSION: Our analysis of the in-depth interviews and the workshops suggests that adolescent pregnancy among women who are internally displaced has complex dynamics, characterized by the violent context of the rural areas, but primarily by the violence experienced during their childhood. The experience of pregnancy during adolescence brings feelings of ownership and also challenges, together with the forced displacement. This understanding will provide insights for policy makers and healthcare providers on how to work with this specific population who have experienced pregnancy in adolescence.


Assuntos
Gravidez na Adolescência/etnologia , Refugiados/psicologia , Adolescente , Antropologia Cultural , Colômbia , Feminino , Humanos , Gravidez , Gravidez na Adolescência/psicologia
18.
Med Care Res Rev ; 77(6): 596-608, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-30902036

RESUMO

This article investigates qualitatively the value profile of the da Vinci® surgical robot after almost two decades of extensive clinical use and research. We aimed to understand whether the swiftly growing body of published studies on robotic prostate surgery can now, that is, beyond an early stage, guide decisions on the acquisition, procurement, and public provision of this innovation. We explored both published studies and the perspectives of diverse stakeholders in the Netherlands. Both arenas represent conflicting, often polarised arguments on the (added) value of da Vinci surgery. What was unclear a decade ago due to lack of evidence is now unclear because of controversies about evidence. The article outlines controversial value issues and indicates the unlikelihood that awaiting more research - amid the mantra "further studies are needed" - will resolve the controversy. The study underscores multi-stakeholder deliberation to resolve controversies regarding the value of advanced medical innovations.


Assuntos
Laparoscopia , Procedimentos Cirúrgicos Robóticos , Humanos , Masculino , Países Baixos
19.
Soc Sci Med ; 245: 112674, 2020 01.
Artigo em Inglês | MEDLINE | ID: mdl-31756627

RESUMO

In contemporary healthcare policies the logic of Evidence-based Medicine (EBM) is typically proposed as a way of addressing a demand to explicitly justify policy decisions. Policymakers' use of 'evidence' is presumed to pertain to ideals of justice in decision-making. However, according to some, EBM is liable to generate 'epistemic injustice' because it prefers quantitative types of evidence and - as a result of that - potentially undervalues the qualitative testimonies of doctors and patients. Miranda Fricker's concept of 'epistemic injustice' refers to a wrong done to a person in their capacity as a knower. This paper explores the usefulness and limits of this concept in the context of public decision-making. How is evidence-based policymaking intertwined with questions of 'epistemic injustice'? Drawing from ethnographic research conducted at the National Health Care Institute, we analyze two cases of EBM-inspired policy practices in Dutch social health insurance: 1) the use of the principles of EBM in making a public reimbursement decision, and 2) private insurers' use of quantitative performance indicators for the practice of selective contracting on the Dutch healthcare market. While the concept of 'epistemic injustice' misses some key processes involved in understanding how 'knowing gets done' in public policy, it does shed new light on priority-setting processes. Patients or medical professionals who are not duly recognized as credible and intelligible epistemic agents, subsequently, lack the social power to influence priority-setting practices. They are thus not merely frustrated in their capacity to be heard and make themselves understood, they are potentially deprived of a fair share in collective financial and medical resources. If we fail to recognize inequalities in credibility and intelligibility between diverse groups of knowers, there is a chance that these epistemic inequalities are being reproduced in our system of health insurance and our ways of distributing healthcare provisions.


Assuntos
Política de Saúde/legislação & jurisprudência , Seguro Saúde/legislação & jurisprudência , Formulação de Políticas , Política de Saúde/tendências , Humanos , Seguro Saúde/tendências , Conhecimento , Programas Nacionais de Saúde , Países Baixos
20.
Health Expect ; 23(1): 84-95, 2020 02.
Artigo em Inglês | MEDLINE | ID: mdl-31691452

RESUMO

OBJECTIVE: This article provides insights into the democratic character of local enactments of welfare reforms by analysing narrative interactions about changes in care. We analyse processes of storytelling that are part of the interactions between citizens giving, receiving and organizing care and the policymakers governing welfare reforms. We also study how narrative interactions shape understandings about changing care practices and what types of narrative interactions support democracy in care. BACKGROUND: Stories about recent welfare reforms include messages about citizens' care, citizen participation, citizens' powers and revitalization of democracy. However, researchers have cast doubt on their emancipatory and democratic character. RESEARCH SETTING AND METHODOLOGY: We conducted research of four initiatives and municipal policy settings in the city of Maastricht that organized social care in lifeworlds connected to arts, crafts, farming and entrepreneurship during welfare reforms. Using narrative ethnography, we analyse narrative interactions between the master narrative of welfare reforms about 'lifeworld care' and 'citizen powers', and small stories told by participants in new care practices. RESULTS: We identified two types of narrative interaction: idealizing and pragmatizing. Idealizing narrative interactions were strategic for care initiatives in finding support and for policymakers in proving that a so-called 'participation society' works. Pragmatizing narrative interactions gave expression to insights into the everyday practices of social care experiments and included a greater variety of stories. CONCLUSIONS: We conclude that pragmatizing narrative interactions adjust the master narrative about welfare reforms and replace ideals of independency with ideals of active participation in webs of dependency and care.


Assuntos
Pessoal Administrativo , Participação da Comunidade , Democracia , Narração , Seguridade Social , Antropologia Cultural , Cidades , Humanos , Países Baixos
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