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1.
J Cancer Educ ; 38(4): 1140-1148, 2023 08.
Artigo em Inglês | MEDLINE | ID: mdl-36456891

RESUMO

This study investigates the resources used by childhood cancer survivors (CCS) to learn about their cancer histories and evaluates if CCS feel these resources prepare them to manage their health needs as young adults. Young adult participants (aged 18-30 years) were diagnosed with cancer at ≤ 10 years and recruited by word of mouth and from social media and/or non-profit organizations and completed semi-structured interviews. A descriptive thematic analysis guided by an essentialist/realist paradigm combined inductive and deductive approaches to identify key themes. Fourteen participants were interviewed, and six key themes were identified: (1) CCS are aware of general cancer history (age at diagnosis, treating hospital, cancer type), (2) CCS are unaware of treatment regimen (medications and duration), (3) CCS want to learn more about their treatment regimens and (4) potential late effects of treatment, (5) CCS use diverse resources to learn about their cancer histories and potential late effects, and (6) survivors' interests to learn about their cancer histories change over time. Limited knowledge of their cancer treatments leaves some CCS unprepared to manage their health needs as young adults or to address potential risk of late effects. CCS recognize their limited knowledge, but the resources available to them fall short of their information needs. Identifying the shortcomings of resources used by CCS provides evidence for how resources need to be improved to meet survivors' cancer education needs.


Assuntos
Sobreviventes de Câncer , Neoplasias , Humanos , Criança , Adulto Jovem , Neoplasias/terapia , Sobreviventes
2.
Med Anthropol Q ; 34(4): 504-524, 2020 12.
Artigo em Inglês | MEDLINE | ID: mdl-32529703

RESUMO

The author analyzes the aftermath of Edward Hooper's suggestion that the trial of an oral polio vaccine (OPV) in the Belgian colonies of Africa engendered the pandemic form of the AIDS virus, HIV-1. In response to Hooper's book, The River (1999), the Royal Society in London held a conference to debate the origins of HIV. Examination of the quick dismissal of the OPV theory opens a space for legitimately challenging the widely held belief that the vaccine contamination question was convincingly resolved. This article interrogates the relationship between historiography and the making of scientific facts and history, suggesting that historians have been too credulous of scientists' testimony. The further result of the lack of a thorough analysis of the evidence backing the OPV hypothesis has resulted in a missed opportunity to read The River as one of the few detailed accounts of the immense social, political, technological, and interspecies infrastructure constituted by Cold War vaccine production. This biomedical infrastructure dramatically changed the geographic and interspecies mobility of viruses in ways that may be impossible to reconstruct. Yet these potential transmission routes remain crucial to acknowledge. The COVID-19 pandemic draws attention to the critical importance of studying The WetNet, a concept coined by the author to name the conceptual and material infrastructures of inter- and intraspecies fluid bonding.


Assuntos
Infecções por HIV/história , HIV-1 , Poliomielite/história , Vacina Antipólio Oral/história , África , Animais , Antropologia Médica/história , COVID-19/epidemiologia , COVID-19/transmissão , Cultura , Infecções por HIV/epidemiologia , Infecções por HIV/transmissão , História do Século XX , Humanos , Internacionalidade , Poliomielite/epidemiologia , Poliomielite/prevenção & controle , Vacina Antipólio Oral/imunologia , SARS-CoV-2 , Vacinação/história
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