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1.
Dev World Bioeth ; 22(2): 76-85, 2022 06.
Artigo em Inglês | MEDLINE | ID: mdl-33170560

RESUMO

Due to the financial pressure caused by cutbacks in funding and the race to achieve higher university rankings, researchers are competing for limited funds. These funds enable researchers to contribute to the scientific enterprise and to secure better positions. Given this pressure, there is a need to understand how academic organisations can influence academic integrity. This study uses a qualitative methodology and incudes in-depth interviews with 22 voluntary participants from various Malaysian public and private universities and with different research backgrounds and experience. The findings suggest that mentorship, the pressure to perform, the research environment and research policies related to misconduct can contribute to research misconduct. According to the participants, reward systems that are heavily dependent on publication records can result in a research environment that is not conducive to research ethics, and which creates self-centred individualistic researchers rather than team players. This can lead to bad mentorship where researchers are more concerned with their own performance and do not prioritise their teaching and supervising of junior researchers. The endorsement of well-written research policies may have little significant value for research misconduct without enforcement and awareness of the importance of research integrity. This paper is an attempt to encourage university management to promote research integrity among individuals who are directly or indirectly involved in the research process by taking action against those involved in misconduct. It also suggests rewarding researchers based on their overall performance rather than solely on their publication record.


Assuntos
Pesquisa Biomédica , Má Conduta Científica , Humanos , Malásia , Organizações , Pesquisadores , Universidades
2.
Asian Bioeth Rev ; 13(3): 297-315, 2021 Sep.
Artigo em Inglês | MEDLINE | ID: mdl-34295385

RESUMO

The establishment of MyCohort in 2005 showed that there is a growing interest on the part of the Malaysian government in the creation of biobanks in the country. This project can be considered as the biggest and most comprehensive cohort study in Malaysia, where hundreds of thousands of human samples are stored for epidemiological and biomedical research. However, little is known about the current issues or the situation related to biobank research in Malaysia. There are pressing issues that need answers such as the governance of the national biobank as well as other privately owned biobanks in the nation, the public perspectives and perceptions regarding biobanks, and other matters such as the ethical, legal, and social issues related to biobank research. This article will highlight the status and issues related to biobank research in Malaysia and provide suggestions on future research practices that we feel need to be seriously considered. These suggestions are designed to advance and enlighten researchers' knowledge, as well as provide the public with information on issues associated to biobanking. Good governance increases public knowledge and trust, and religious acceptance of biobank research and accountability can lead to increased participation in biobank research. The direct implications of the discussion about the ethical, legal, and social issues of biobanks are pertinent for the foundation of knowledge relating to biobanks, as well as the forward gestures for future medicine for mankind.

3.
Sci Eng Ethics ; 26(3): 1797-1825, 2020 06.
Artigo em Inglês | MEDLINE | ID: mdl-32266581

RESUMO

The Malaysian government recognises the potential contribution of biotechnology to the national economy. However, ongoing controversy persists regarding its ethical status and no specific ethical guidelines have been published relating to its use. In developing such guidelines, it is important to identify the underlying principles that are acceptable to Malaysian society. This paper discusses the process of determining relevant secular and Islamic ethical principles and establishing their similarities before harmonising them. To achieve this, a series of focus group discussions were conducted with 23 knowledge experts representing various stakeholders in the biotechnology community. Notably, several principles between the secular and Islamic perspectives are indirectly or directly similar. All the experts agreed with the predominant six ethical principles of secular and Islamic philosophy and their importance and relevance in modern biotechnology. These are beneficence and non-maleficence as the main or overarching principles, the preservation of religious and moral values, the preservation of the intellect and the mind, the protection of human safety, the protection of future generations, and protection of the environment and biological diversity. Several adjustments were made to the terminologies and definitions of these six principles to formulate acceptable guiding principles for the ethics of modern biotechnology in Malaysia. These can then be adopted as core values to underpin future national guidelines on modern biotechnology ethics. These principles will be particularly important in guiding the policy makers, enforcers, industries and researchers to streamline their activities. In so doing, modern biotechnology and its products can be properly managed without jeopardising the interests of the Muslim community as well as the general public. Importantly, they are expansive and inclusive enough to embrace the religious sensitivity of diverse quarters of Malaysia.


Assuntos
Islamismo , Religião e Medicina , Biotecnologia , Humanos , Malásia , Obrigações Morais
4.
Account Res ; 26(3): 157-175, 2019 04.
Artigo em Inglês | MEDLINE | ID: mdl-30982340

RESUMO

The purpose of this study is to highlight the experiences of individuals who participate in the Responsible Conduct of Research (RCR) training program held at various universities in Malaysia. In response to a mailing request sent to 40 individuals who had undertaken a RCR training program, 15 participants agreed to be interviewed. The results of the study showed that the three main reasons for participating in the training were as follows: anticipation for knowledge gained; personal experience with research misconduct; and establishing a new network of researchers. In terms of the positive effects gained from undertaking the training, the participants highlighted an increased awareness of the issues and problems related to research misconduct; the need to promote integrity in research conduct; a change in the way they conduct their research; and a change in the way they confront and address misconduct. The findings of this study should be valuable for policy makers and those involved in the management of research programs and ethics, as it demonstrated the importance of RCR training in equipping researchers with the necessary knowledge to conduct research responsibly, and to avoid research misconduct.


Assuntos
Ética em Pesquisa/educação , Pesquisadores/psicologia , Feminino , Humanos , Entrevistas como Assunto , Malásia , Masculino , Pesquisa Qualitativa , Universidades
5.
Sci Eng Ethics ; 25(4): 1111-1124, 2019 08.
Artigo em Inglês | MEDLINE | ID: mdl-29717467

RESUMO

The purpose of this study is to encourage and highlight discussion on how to improve the teaching of research ethics in institutions of higher education in Malaysia. Drawing on semi-structured interviews with 21 academics in a research-intensive university in Malaysia, interviewees agreed on the importance of emphasizing the subject of research ethics among students, as well as academics or researchers. This study reveals that participants felt that there is an urgent need to improve the current awareness and knowledge of issues related to misconduct in research among students and academics. The results of this study indicate a need for better teaching on the subject of research ethics in order to prevent misconduct in research. Finally, it concludes with suggestions that there should be a clear definition of research misconduct, to include consequences when engaging in misconduct; a separate research ethics syllabus for pure and social sciences should be conducted; research ethics should be implemented as a core subject, and there should be an early intervention and continuous learning of research ethics, with an emphasis on ethics training.


Assuntos
Ética em Pesquisa/educação , Pesquisadores/educação , Pesquisadores/ética , Má Conduta Científica/classificação , Má Conduta Científica/ética , Universidades/ética , Currículo , Feminino , Humanos , Entrevistas como Assunto , Malásia , Masculino
6.
Account Res ; 26(1): 17-32, 2019 01.
Artigo em Inglês | MEDLINE | ID: mdl-30489163

RESUMO

This study found that less than half of the respondents are willing to blow the whistle. The results reveal that a lack of protection with regard to the whistleblower's identity, the tedious investigative process, and the notion of avoiding confrontation, which is more apparent in Asian cultures as compared to the West, are among the reasons why individuals who witnessed misconduct chose to remain silent. Adhering to the Asian cultural upbringing where the young must respect the old, those of lower rank must obey those with higher authority, and subordinates do not question the actions of their superior, has become a norm even in the working environment. Therefore, emphasize the need for better protection for whistleblowers including using experienced individuals with a research ethics background to handle allegations from whistleblowers. In addition, established guidelines and procedures for whistleblowers with regard to voicing their allegations against colleagues engaged in research misconduct is still lacking or, to a certain extent, is still unknown to researchers. Thus, the concern indicates a need for institutions to create awareness among researchers regarding the existing platform for whistleblowers, or to develop a systematic and clear procedure which is reliable and independent to promote professionalism in academia.


Assuntos
Má Conduta Científica/ética , Universidades , Denúncia de Irregularidades/psicologia , Cultura , Feminino , Humanos , Entrevistas como Assunto , Malásia , Masculino , Pesquisa Qualitativa
7.
Dev World Bioeth ; 18(3): 271-278, 2018 09.
Artigo em Inglês | MEDLINE | ID: mdl-30048029

RESUMO

INTRODUCTION: To explore academia perceptions and experience with unethical authorship practices in their respective institutions. METHOD: 21 in-depth interviews were carried out. RESULTS: Our analysis revealed variability in experiences with various types of unethical authorship practices among the interviewees. Second, we found that unethical authorship practices are not so unusual among academia although the exact numbers of incidents are unknown due to the fact that such practices are seldom reported. Third, our interviewees revealed that the culture of 'publish or perish' could be the main contributor to unethical practices of authorship because publication records are the main criteria for researcher's career evaluation besides, others, which are set by the university. CONCLUSION: It was suggested that the institution must play a proactive role in educating and promoting awareness on authorship guidelines, through education and training, ethical leadership as well as promoting the importance of publication ethics.


Assuntos
Autoria , Pesquisa Biomédica/ética , Plágio , Pesquisadores/ética , Má Conduta Científica , Humanos , Malásia , Pesquisa Qualitativa
8.
Account Res ; 25(3): 125-141, 2018.
Artigo em Inglês | MEDLINE | ID: mdl-29394103

RESUMO

This article offers a qualitative analysis of research misconduct witnessed by researchers during their careers, either by research students or fellow researchers, when conducting or supervising research in their respective departments. Interviews were conducted with 21 participants from various research backgrounds and with a range of research experience, from selected universities in Malaysia. Our study found that misbehavior such as manipulating research data, misrepresentation of research outcomes, plagiarism, authorship disputes, breaching of research protocols, and unethical research management was witnessed by participants among junior and senior researchers, albeit for different reasons. This indicates that despite the steps taken by the institutions to monitor research misconduct, it still occurs in the research community in Malaysian institution of higher education. Therefore, it is important to admit that misconduct still occurs and to create awareness and knowledge of it, particularly among the younger generation of researchers. The study concludes that it is better for researchers to be aware of the behaviors that are considered misconduct as well as the factors that contribute to misconduct to solve this problem.


Assuntos
Pesquisadores/ética , Má Conduta Científica/ética , Universidades , Autoria , Feminino , Humanos , Entrevistas como Assunto , Malásia , Masculino , Plágio , Pesquisa Qualitativa , Inquéritos e Questionários
9.
Sci Eng Ethics ; 24(6): 1755-1776, 2018 12.
Artigo em Inglês | MEDLINE | ID: mdl-29249021

RESUMO

Published data and studies on research misconduct, which focuses on researchers in Malaysia, is still lacking, therefore, we decided that this was an area for investigation. This study provides qualitative results for the examined issues through series of in-depth interviews with 21 researchers and lecturers in various universities in Malaysia. The aims of this study were to investigate the researchers' opinions and perceptions regarding what they considered to be research misconduct, their experience with such misconduct, and the factors that contribute to research misconduct. Our findings suggest that the most common research misconducts that are currently being witnessed in Malaysian universities are plagiarism and authorship disputes, however, researchers seldom report incidents of research misconduct because it takes too much time, effort and work to report them, and some are just afraid of repercussions when they do report it. This suggests possible loopholes in the monitoring system, which may allow some researchers to bypass it and engage in misconduct. This study also highlights the structural and individual factors as the most influential factors when it comes to research misconduct besides organizational, situational and cultural factors. Finally, this study highlights the concerns of all participants regarding the 'publish or perish' pressure that they believe would lead to a hostile working environment, thus enhancing research misconduct, as researchers tend to think about their own performance rather than that of whole team or faculty. Consequently this weakens the interpersonal relationships among researchers, which may compromise the teaching and supervision of junior researchers and research students.


Assuntos
Pesquisa Biomédica/ética , Pesquisadores/ética , Má Conduta Científica , Universidades , Atitude , Autoria , Ética em Pesquisa , Feminino , Humanos , Malásia , Masculino , Plágio , Pesquisa Qualitativa
10.
Account Res ; 24(8): 469-482, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-29087734

RESUMO

Based on a previous survey by the Office of Research Integrity (ORI) in the USA, a considerable number of foreign research scientists have been found guilty of research misconduct. However, it remains unclear as to whether or not cultural factors really contribute to research misconduct. This study is based on a series of interviews with Malaysian researchers from the local universities regarding their own professional experiences involving working with researchers or research students from different countries or of different nationalities. Most of the researchers interviewed agreed that cultures do shape individual character, which influences the way that such individuals conduct research, their decision-making, and their style of academic writing. Our findings also showed that working culture within the institution also influences research practices, as well as faculty mentorship of the younger generation of researchers. Given the fact such misconduct might be due to a lack of understanding of research or working cultures or practices within the institution, the impact on the scientific community and on society could be destructive. Therefore, it is suggested that the institution has an important role to play in orienting foreign researchers through training, mentoring, and discussion with regard to the "does" and "don'ts" related to research, and to provide them with an awareness of the importance of ethics when it comes to conducting research.


Assuntos
Características Culturais , Internacionalidade , Pesquisadores/ética , Má Conduta Científica/ética , Tomada de Decisões , Humanos , Malásia , Mentores , Cultura Organizacional
11.
Sci Eng Ethics ; 23(6): 1563-1580, 2017 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-27995446

RESUMO

Pre-implantation genetic diagnosis (PGD) became well known in Malaysia after the birth of the first Malaysian 'designer baby', Yau Tak in 2004. Two years later, the Malaysian Medical Council implemented the first and only regulation on the use of Pre-implantation Genetic Diagnosis in this country. The birth of Yau Tak triggered a public outcry because PGD was used for non-medical sex selection thus, raising concerns about PGD and its implications for the society. This study aims to explore participants' perceptions of the future implications of PGD for the Malaysian society. We conducted in-depth interviews with 21 participants over a period of one year, using a semi-structured questionnaire. Findings reveal that responses varied substantially among the participants; there was a broad acceptance as well as rejection of PGD. Contentious ethical, legal and social issues of PGD were raised during the discussions, including intolerance to and discrimination against people with genetic disabilities; societal pressure and the 'slippery slope' of PGD were raised during the discussions. This study also highlights participants' legal standpoint, and major issues regarding PGD in relation to the accuracy of diagnosis. At the social policy level, considerations are given to access as well as the impact of this technology on families, women and physicians. Given these different perceptions of the use of PGD, and its implications and conflicts, policies and regulations of the use of PGD have to be dealt with on a case-by-case basis while taking into consideration of the risk-benefit balance, since its application will impact the lives of so many people in the society.


Assuntos
Atitude , Testes Genéticos , Diagnóstico Pré-Implantação , Opinião Pública , Política Pública , Pré-Seleção do Sexo , Valores Sociais , Pessoas com Deficiência , Dissidências e Disputas , Feminino , Testes Genéticos/ética , Testes Genéticos/legislação & jurisprudência , Regulamentação Governamental , Humanos , Malásia , Masculino , Princípios Morais , Percepção , Gravidez , Pré-Seleção do Sexo/ética , Pré-Seleção do Sexo/legislação & jurisprudência , Justiça Social , Inquéritos e Questionários
12.
Sci Eng Ethics ; 22(1): 133-46, 2016 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-25724710

RESUMO

While pre-implantation genetic diagnosis (PGD) is available and legal in Malaysia, there is an ongoing controversy debate about its use. There are few studies available on individuals' attitudes toward PGD, particularly among those who have a genetic disease, or whose children have a genetic disease. To the best of our knowledge, this is, in fact, the first study of its kind in Malaysia. We conducted in-depth interviews, using semi-structured questionnaires, with seven selected potential PGD users regarding their knowledge, attitudes and decisions relating to the use PGD. The criteria for selecting potential PGD users were that they or their children had a genetic disease, and they desired to have another child who would be free of genetic disease. All participants had heard of PGD and five of them were considering its use. The participants' attitudes toward PGD were based on several different considerations that were influenced by various factors. These included: the benefit-risk balance of PGD, personal experiences of having a genetic disease, religious beliefs, personal values and cost. The study's findings suggest that the selected Malaysian participants, as potential PGD users, were supportive but cautious regarding the use of PGD for medical purposes, particularly in relation to others whose experiences were similar. More broadly, the paper highlights the link between the participants' personal experiences and their beliefs regarding the appropriateness, for others, of individual decision-making on PGD, which has not been revealed by previous studies.


Assuntos
Tomada de Decisões , Doenças Genéticas Inatas , Testes Genéticos , Conhecimentos, Atitudes e Prática em Saúde , Criança , Feminino , Doenças Genéticas Inatas/diagnóstico , Humanos , Malásia , Masculino , Inquéritos e Questionários
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