Analyse d'une infrastructure québécoise de transfert de connaissances en autisme : le RNETSA.

INTRODUCTION: Many Knowledge Translation (KT) networks have been set up to support the improvement of research-based practices. However despite the deployment of KT networks, there is little empirical data on how they work. The Réseau national d’expertise en trouble du spectre de l’autisme (RNETSA) is the result of a ministerial initiative. OBJECTIVE AND METHOD: Its mission is to promote the evolution of autism practices and services in the education, early childhood, and health and social services sectors. The purpose of this article is to analyze the governance structure and KT strategy of the RNETSA in terms of its legitimacy. The study was based on a case study design combining a literature review and interviews. RESULTS: The results highlight the key components of 1) the governance structure (e.g., identification of a common need, formalization of bodies, allocation of resources) and 2) the KT strategy (e.g., knowledge dissemination, collaborations, increasing participation in activities). The discussion addresses a number of building blocks that could help strengthen the network’s legitimacy with a view to bringing it closer to its purpose. CONCLUSIONS: RNETSA has demonstrated a strong capacity to ensure its legitimacy in the autism KT ecosystem. The potential to influence public policy in the field of autism is also a key feature of RNETSA. To improve knowledge of RNETSA’s legitimacy, an evaluation of the effects of its KT activities would be necessary.

Access to breast cancer screening programs for women with disabilities.

BACKGROUND: The goal of this study was to identify measures to facilitate access to the Quebec Breast Cancer Screening Program for women with activity limitations, considering the barriers to screening uptake in that population. METHODS: The study was carried out in three stages. First, 124 semi-structured interviews were conducted in five regions of Quebec with five groups of key informants. The content analysis lead to the identification of 64 proposals, which were submitted to 31 experts through a two-round Delphi survey process. Finally, consultations were held with 11 resource people to determine which decision-making levels (local, regional, provincial) could play a key role in implementing the proposals. RESULTS: A strong consensus (≥80%) was achieved for 25 proposals seen as highly relevant and feasible. DISCUSSION: The implementation of such proposals could substantially improve access to screening, given the prevalence of activity limitations in the age group targeted by the program.

Conception of wellness in families with a diabetic child.

Focusing on wellness and adopting perspectives from positive and perceptual psychology, perceptions about health and illness were studied in 55 families with diabetic children, their siblings (8-17 years old) and mothers. Individual interviews were conducted on definitions of wellness, rationale for children's self-evaluation of wellness, consequences of wellness and definition of diabetes. Content analysis revealed that respondents have a comprehensive definition of wellness focusing on adaptation and performance. Significant role-specific differences emerged. Mothers' perceptions reflected their role in caregiving and socializing children. Children emphasized school performance and absence of health problems. Siblings focused on harmonious relationships. In accordance with the perspective of positive psychology, adults' as well as children's perceptions are congruent with the pursuit of wellness despite chronic illness.