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1.
Theor Med Bioeth ; 37(4): 365-82, 2016 Aug.
Artigo em Inglês | MEDLINE | ID: mdl-27480542

RESUMO

This article offers an integrated account of two strands of global health justice: health-related human rights and health-related common goods. After sketching a general understanding of the nature of human rights, it proceeds to explain both how individual human rights are to be individuated and the content of their associated obligations specified. With respect to both issues, the human right to health is taken as the primary illustration. It is argued that (1) the individuation of the right to health is fixed by reference to the subject matter of its corresponding obligations, and not by the interests it serves, and (2) the specification of the content of that right must be properly responsive to thresholds of possibility and burden. The article concludes by insisting that human rights cannot constitute the whole of global health justice and that, in addition, other considerations-including the promotion of health-related global public goods-should also shape such policy. Moreover, the relationship between human rights and common goods should not be conceived as mutually exclusive. On the contrary, there sometimes exists an individual right to some aspect of a common good, including a right to benefit from health-related common goods such as programmes for securing herd immunity from diphtheria.


Assuntos
Saúde Global , Política de Saúde , Direitos Humanos , Humanos , Justiça Social
2.
JAMA ; 316(1): 103-4, 2016 Jul 05.
Artigo em Inglês | MEDLINE | ID: mdl-27380357
3.
J Med Ethics ; 42(4): 216-9, 2016 Apr.
Artigo em Inglês | MEDLINE | ID: mdl-25825527

RESUMO

In recent years, there have been prominent calls for a new social contract that accords a more central role to citizens in health research. Typically, this has been understood as citizens and patients having a greater voice and role within the standard research enterprise. Beyond this, however, it is important that the renegotiated contract specifically addresses the oversight of a new, path-breaking approach to health research: participant-led research. In light of the momentum behind participant-led research and its potential to advance health knowledge by challenging and complementing traditional research, it is vital for all stakeholders to work together in securing the conditions that will enable it to flourish.


Assuntos
Ética em Pesquisa , Experimentação Humana/ética , Política Pública , Sujeitos da Pesquisa , Humanos , Política Pública/legislação & jurisprudência , Política Pública/tendências , Responsabilidade Social
4.
Philos Trans A Math Phys Eng Sci ; 374(2083)2016 Dec 28.
Artigo em Inglês | MEDLINE | ID: mdl-28336802

RESUMO

In this paper, we address the complex relationship between big data and human rights. Because this is a vast terrain, we restrict our focus in two main ways. First, we concentrate on big data applications in scientific research, mostly health-related research. And, second, we concentrate on two human rights: the familiar right to privacy and the less well-known right to science. Our contention is that human rights interact in potentially complex ways with big data, not only constraining it, but also enabling it in various ways; and that such rights are dynamic in character, rather than fixed once and for all, changing in their implications over time in line with changes in the context we inhabit, and also as they interact among themselves in jointly responding to the opportunities and risks thrown up by a changing world. Understanding this dynamic interaction of human rights is crucial for formulating an ethic tailored to the realities-the new capabilities and risks-of the rapidly evolving digital environment.This article is part of the themed issue 'The ethical impact of data science'.


Assuntos
Direitos Humanos , Ciência da Informação , Pesquisa , Humanos , Ciência da Informação/ética , Ciência da Informação/legislação & jurisprudência , Internacionalidade
7.
Genet Med ; 15(11): 868-70, 2013 Nov.
Artigo em Inglês | MEDLINE | ID: mdl-23907644
8.
PLoS Med ; 10(3): e1001402, 2013.
Artigo em Inglês | MEDLINE | ID: mdl-23554580

RESUMO

As participant-led health research increases, Effy Vayena and and John Tasioulas examine what ethical questions are raised, and what types of standards need to be developed for appropriate ethical oversight for participant-led research projects.


Assuntos
Pesquisa Participativa Baseada na Comunidade/ética , Pesquisa Participativa Baseada na Comunidade/normas , Ética em Pesquisa , Academias e Institutos/ética , Academias e Institutos/normas , Humanos , Motivação
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